What is Tocilizumab?

Category: Prescription Drugs

Most popular types: Actemra Roactemra

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Tocilizumab is an antirheumatic, interleukin-6 receptor antagonist used as a treatment of moderately- to severely-active rheumatoid arthritis.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Rheumatoid arthritis 99 67
Muscle and joint pain 5 5
Joint pain 4 3
Systemic lupus erythematosus 4 4
Amyotrophic lateral sclerosis 2 0
Adult Still's disease 1 0

Show all 14 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations Percentage
Severe 11
Moderate 17
Mild 20
None 25

Commonly reported side effects and conditions associated with Tocilizumab

Side effect Patients Percentage
Fatigue 6
Nausea 5
Headaches 3
Itching 3
Mouth sores (ulcers) 2
Bleeding gums 1

Show all 38 reported side effects

Dosages

Based on patients currently taking Tocilizumab

Dosage Patients Percentage
180 mg weekly 2
1 other monthly 1
180 mg every 4 weeks 1
200 Chemo cycles every 4 weeks 1
162 mg/kg weekly 1
800 mg/kg monthly 1

Why patients stopped taking Tocilizumab

Multiple reasons could be selected

Reason Patients Percentage
Did not seem to work 27
Side effects too severe 17
Doctor's advice 14
Other 3
Change in health plan coverage 1
Expense 1
See all 42 patients who've stopped taking Tocilizumab

Duration

Currently taking Tocilizumab

Duration Patients Percentage
Less than 1 month 1
6 months - 1 year 1
1 - 2 years 2
2 - 5 years 3
5 - 10 years 3

Stopped taking Tocilizumab

Duration Patients Percentage
Less than 1 month 7
1 - 6 months 11
6 months - 1 year 8
1 - 2 years 8
2 - 5 years 8
Adherence
Adherence Evaluations Percentage
Always 67
Usually 0
Sometimes 1
Never taken as prescribed 5
Burden
Burden Evaluations Percentage
Very hard to take 2
Somewhat hard to take 18
A little hard to take 23
Not at all hard to take 30
Cost per month
Cost per month Evaluations Percentage
$200+ 14
$100-199 4
$50-99 1
$25-49 4
< $25 32
Not specified 18

What people switch to and from

Patients started taking Tocilizumab after stopping:

Treatment Patients Percentage
Abatacept (Orencia) 10
Etanercept (Enbrel SureClick) 5
Infliximab (Remicade) 5
Methotrexate (Trexall) 5
Rituximab (Rituxan) 5

Show all 11 treatments patients report switching from

Patients stopped taking Tocilizumab and switched to:

Treatment Patients Percentage
Abatacept (Orencia) 8
Tofacitinib (Xeljanz) 5
Adalimumab (Humira) 3
Infliximab (Remicade) 3
Etanercept (Enbrel SureClick) 2

Show all 9 treatments patients report switching to

Last updated:

2 patient evaluations for Tocilizumab

Mar 21, 2017 (Started Mar 15, 2013)

  • Effectiveness
    None (for rheumatoid arthritis)
  • Side effects
    Moderate (fatigue)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 20 mg/kg every 4 weeks
Cost: $200+ monthly

  • 0 helpful marks

Aug 5, 2016 (Started Oct 05, 2014)

  • Effectiveness
    Moderate (for rheumatoid arthritis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 162 mg Every Other Week
Cost: < $25 monthly

Nov 1, 2014 (Started Oct 05, 2014)

  • Effectiveness
    Major (for rheumatoid arthritis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 162 mg Weekly
Cost: < $25 monthly

Oct 16, 2014 (Started Oct 05, 2014)

  • Effectiveness
    Can't tell (for rheumatoid arthritis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 162 mg Weekly
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 2 of 2 patient evaluations for Tocilizumab