What is Riluzole?

Category: Prescription Drugs

Most popular types: Rilutek Riluzole (oral film) Teglutik (oral solution)

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Riluzole is a drug used to treat amyotrophic lateral sclerosis (ALS). Riluzole does not cure ALS or improve symptoms, but may extend survival or the time to tracheostomy.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Amyotrophic lateral sclerosis 5283 1148
Primary lateral sclerosis 99 34
Progressive muscular atrophy 74 41
General health 15 9
Stiffness/spasticity 9 3
Muscle twitching (fasciculations) 8 4

Show all 23 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations Percentage
Severe 92
Moderate 114
Mild 169
None 836

Commonly reported side effects and conditions associated with Riluzole

Side effect Patients Percentage
Fatigue 54
Nausea 38
Elevated liver enzymes 24
Tiredness 21
Stomach pain 14
Abdominal pain 9

Show all 119 reported side effects

Dosages

Based on patients currently taking Riluzole

Dosage Patients Percentage
50 mg twice daily 43
100 mg daily 21
50 mg daily 7
100 mg twice daily 4
1 capsule(s) twice daily 1
10 mg daily 1
25 mg daily 1
twice daily 1

Why patients stopped taking Riluzole

Multiple reasons could be selected

Reason Patients Percentage
Side effects too severe 255
Did not seem to work 215
Expense 94
Doctor's advice 83
Other 67
Personal research 59
Change in health plan coverage 16
Course of treatment ended 13
See all 578 patients who've stopped taking Riluzole

Duration

Currently taking Riluzole

Duration Patients Percentage
1 - 6 months 6
6 months - 1 year 4
1 - 2 years 5
2 - 5 years 31
5 - 10 years 23
10 years or more 12

Stopped taking Riluzole

Duration Patients Percentage
Less than 1 month 89
1 - 6 months 171
6 months - 1 year 73
1 - 2 years 105
2 - 5 years 98
5 - 10 years 22
10 years or more 6
Adherence
Adherence Evaluations Percentage
Always 993
Usually 104
Sometimes 30
Never taken as prescribed 84
Burden
Burden Evaluations Percentage
Very hard to take 37
Somewhat hard to take 109
A little hard to take 200
Not at all hard to take 865
Cost per month
Cost per month Evaluations Percentage
$200+ 115
$100-199 53
$50-99 85
$25-49 127
< $25 440
Not specified 391

What people switch to and from

Patients started taking Riluzole after stopping:

Treatment Patients Percentage
Intravenous Immunoglobulin (IVIG) (Gammaglobulin (IVIg)) 1
Lunasin (Lunasin Duke Virtual Trial) 1
Prednisone (Prednisone Intensol) 1

Patients stopped taking Riluzole and switched to:

Treatment Patients Percentage
Edaravone (Radicava) 3
Baclofen (Mylan-Baclofen) 2
Duloxetine (Cymbalta) 1
Last updated:

109 patient evaluations for Riluzole

Jan 5, 2019 (Started Aug 07, 2018)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: It controls my mood.I don't cry every day any more.
Cost: < $25 monthly

Aug 7, 2018 (Started Aug 07, 2018)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: I don't notice any difference with this drug
Cost: < $25 monthly

  • 0 helpful marks

Feb 15, 2018 (Started Dec 15, 2017)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks

Jan 15, 2018 (Started Jan 01, 2002)

  • Effectiveness
    Slight (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: It is impossible to evaluate the effectiveness for oneself. However, statistical studies do show it extends life expectancy. I would start ASAP after diagnosis.
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 109 patient evaluations for Riluzole