What is Mycophenolate mofetil?

Category: Prescription Drugs

Most popular types: CellCept Myfenax

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Mycophenolate is an immunosuppressant agent that may be used for the prevention of organ rejection in patients receiving allogeneic renal, cardiac or hepatic transplants. Mycophenolate should be used concomitantly with cyclosporine and corticosteroids.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Systemic lupus erythematosus 1913 85
Prevent organ rejection 818 96
Lupus nephritis 263 14
Neuromyelitis optica 98 26
Multiple sclerosis 69 29

Show all 114 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations Percentage
Severe 42
Moderate 95
Mild 122
None 166

Commonly reported side effects and conditions associated with Mycophenolate mofetil

Side effect Patients Percentage
Diarrhea 36
Nausea 28
Fatigue 13
Headaches 8
Stomach pain 8
Hair loss 7

Show all 130 reported side effects

Dosages

Based on patients currently taking Mycophenolate mofetil

Dosage Patients Percentage
1000 mg twice daily 6
1000 mg daily 5
500 mg twice daily 5
1500 mg twice daily 4
250 mg twice daily 3
2000 mg daily 3
750 mg twice daily 2
1 g twice daily 1
250 mg daily 1
360 tablet(s) twice daily 1

See all 15 dosages

Why patients stopped taking Mycophenolate mofetil

Multiple reasons could be selected

Reason Patients Percentage
Side effects too severe 97
Doctor's advice 90
Did not seem to work 52
Other 52
Course of treatment ended 21
Change in health plan coverage 5
Personal research 5
Expense 4
See all 252 patients who've stopped taking Mycophenolate mofetil

Duration

Currently taking Mycophenolate mofetil

Duration Patients Percentage
Less than 1 month 1
1 - 6 months 4
6 months - 1 year 6
1 - 2 years 4
2 - 5 years 3
5 - 10 years 10
10 years or more 8

Stopped taking Mycophenolate mofetil

Duration Patients Percentage
Less than 1 month 26
1 - 6 months 57
6 months - 1 year 48
1 - 2 years 35
2 - 5 years 44
5 - 10 years 28
10 years or more 7
Adherence
Adherence Evaluations Percentage
Always 365
Usually 40
Sometimes 6
Never taken as prescribed 14
Burden
Burden Evaluations Percentage
Very hard to take 16
Somewhat hard to take 52
A little hard to take 88
Not at all hard to take 269
Cost per month
Cost per month Evaluations Percentage
$200+ 24
$100-199 19
$50-99 28
$25-49 32
< $25 152
Not specified 170

What people switch to and from

Patients started taking Mycophenolate mofetil after stopping:

Treatment Patients Percentage
Azathioprine (Imuran) 38
Methotrexate (Apo-Methotrexate) 29
Prednisone (Prednisone Intensol) 20
Hydroxychloroquine (Plaquenil) 15
Cyclophosphamide (Cytoxan) 6

Show all 29 treatments patients report switching from

Patients stopped taking Mycophenolate mofetil and switched to:

Treatment Patients Percentage
Azathioprine (Imuran) 15
Belimumab (Benlysta) 12
Methotrexate (Apo-Methotrexate) 11
Hydroxychloroquine (Plaquenil) 8
Cyclophosphamide (Cytoxan) 7

Show all 23 treatments patients report switching to

Last updated:

36 patient evaluations for Mycophenolate mofetil

Jan 9, 2019 (Started Oct 23, 2016)

  • Effectiveness
    Major (for Sjogren's syndrome)
  • Side effects
    Moderate (for Overall) (cluster headaches)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 1000 mg Twice daily
Cost: < $25 monthly

Apr 18, 2017 (Started Oct 23, 2016)

  • Effectiveness
    Major (for Sjogren's syndrome)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 1000 mg Twice daily
Cost: < $25 monthly

  • 0 helpful marks

Dec 8, 2016 (Started Jun 01, 2000)

  • Effectiveness
    Major (for Prevent organ rejection)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3000 mg Daily

  • 0 helpful marks

Apr 15, 2016 (Started Jan 09, 2016)

  • Effectiveness
    Major (for transplant rejection prevention)
  • Side effects
    Mild (for Overall) (diarrhea)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 250 mg Twice daily
Advice & Tips: Does cause some bowel problems, diarrhea specifically, but its infrequent and manageable
Cost: $25-49 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 36 patient evaluations for Mycophenolate mofetil