What is Mycophenolate mofetil?

Category: Prescription Drugs

Most popular types: CellCept Myfenax

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Mycophenolate is an immunosuppressant agent that may be used for the prevention of organ rejection in patients receiving allogeneic renal, cardiac or hepatic transplants. Mycophenolate should be used concomitantly with cyclosporine and corticosteroids.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Systemic lupus erythematosus 1900 84
Prevent organ rejection 811 95
Lupus nephritis 260 14
Neuromyelitis optica 96 26
Multiple sclerosis 69 29

Show all 106 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations Percentage
Severe 42
Moderate 94
Mild 117
None 162

Commonly reported side effects and conditions associated with Mycophenolate mofetil

Side effect Patients Percentage
Diarrhea 37
Nausea 28
Fatigue 13
Headaches 8
Stomach pain 8
Hair loss 7

Show all 133 reported side effects

Dosages

Based on patients currently taking Mycophenolate mofetil

Dosage Patients Percentage
1000 mg twice daily 6
1000 mg daily 5
500 mg twice daily 5
1500 mg twice daily 3
250 mg daily 2
250 mg twice daily 2
500 mg daily 2
3000 mg daily 2
625 mg twice daily 1
750 mg twice daily 1

See all 13 dosages

Why patients stopped taking Mycophenolate mofetil

Multiple reasons could be selected

Reason Patients Percentage
Side effects too severe 99
Doctor's advice 92
Did not seem to work 52
Other 51
Course of treatment ended 20
Change in health plan coverage 5
Personal research 5
Expense 4
See all 250 patients who've stopped taking Mycophenolate mofetil

Duration

Currently taking Mycophenolate mofetil

Duration Patients Percentage
Less than 1 month 1
6 months - 1 year 2
1 - 2 years 5
2 - 5 years 8
5 - 10 years 11
10 years or more 7

Stopped taking Mycophenolate mofetil

Duration Patients Percentage
Less than 1 month 25
1 - 6 months 57
6 months - 1 year 49
1 - 2 years 35
2 - 5 years 44
5 - 10 years 27
10 years or more 6
Adherence
Adherence Evaluations Percentage
Always 356
Usually 41
Sometimes 6
Never taken as prescribed 12
Burden
Burden Evaluations Percentage
Very hard to take 16
Somewhat hard to take 50
A little hard to take 85
Not at all hard to take 264
Cost per month
Cost per month Evaluations Percentage
$200+ 24
$100-199 20
$50-99 28
$25-49 32
< $25 153
Not specified 158

What people switch to and from

Patients started taking Mycophenolate mofetil after stopping:

Treatment Patients Percentage
Azathioprine (Imuran) 34
Methotrexate (Apo-Methotrexate) 24
Prednisone (Prednisone Intensol) 17
Hydroxychloroquine (Plaquenil) 13
Cyclophosphamide (Cytoxan) 6

Show all 29 treatments patients report switching from

Patients stopped taking Mycophenolate mofetil and switched to:

Treatment Patients Percentage
Azathioprine (Imuran) 14
Belimumab (Benlysta) 12
Methotrexate (Apo-Methotrexate) 10
Hydroxychloroquine (Plaquenil) 8
Cyclophosphamide (Cytoxan) 7

Show all 23 treatments patients report switching to

Last updated:

37 patient evaluations for Mycophenolate mofetil

Jan 9, 2019 (Started Oct 23, 2016)

  • Effectiveness
    Major (for Sjogren's syndrome)
  • Side effects
    Moderate (cluster headaches)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 1000 mg Twice daily
Cost: < $25 monthly

Apr 18, 2017 (Started Oct 23, 2016)

  • Effectiveness
    Major (for Sjogren's syndrome)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 1000 mg Twice daily
Cost: < $25 monthly

  • 0 helpful marks

Dec 8, 2016 (Started Jun 01, 2000)

  • Effectiveness
    Major (for Prevent organ rejection)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3000 mg Daily

  • 0 helpful marks

Oct 31, 2016 (Started Dec 01, 2005)

  • Effectiveness
    Major (for kidney transplant)
  • Effectiveness
    Major (for Prevent organ rejection)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 37 patient evaluations for Mycophenolate mofetil