What is Mycophenolate mofetil?

Category: Prescription Drugs

Most popular types: CellCept Myfenax

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Mycophenolate is an immunosuppressant agent that may be used for the prevention of organ rejection in patients receiving allogeneic renal, cardiac or hepatic transplants. Mycophenolate should be used concomitantly with cyclosporine and corticosteroids.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Prevent organ rejection 502 93
Systemic lupus erythematosus 214 81
Multiple sclerosis 70 30
Lupus nephritis 43 13
Neuromyelitis optica 37 26

Show all 97 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations Percentage
Severe 37
Moderate 90
Mild 115
None 154

Commonly reported side effects and conditions associated with Mycophenolate mofetil

Side effect Patients Percentage
Diarrhea 36
Nausea 27
Fatigue 12
Headaches 8
Stomach pain 8
Tremor in hands 7

Show all 119 reported side effects

Dosages

Based on patients currently taking Mycophenolate mofetil

Dosage Patients Percentage
500 mg twice daily 20
1000 mg twice daily 17
1000 mg daily 8
1500 mg twice daily 8
2000 mg daily 7
250 mg twice daily 5
500 mg daily 5
1500 mg daily 5
250 mg daily 3
750 mg twice daily 3

See all 19 dosages

Why patients stopped taking Mycophenolate mofetil

Multiple reasons could be selected

Reason Patients Percentage
Side effects too severe 94
Doctor's advice 87
Did not seem to work 49
Other 48
Course of treatment ended 19
Change in health plan coverage 5
Personal research 5
Expense 4
See all 237 patients who've stopped taking Mycophenolate mofetil

Duration

Currently taking Mycophenolate mofetil

Duration Patients Percentage
Less than 1 month 1
1 - 6 months 8
6 months - 1 year 7
1 - 2 years 16
2 - 5 years 22
5 - 10 years 27
10 years or more 12

Stopped taking Mycophenolate mofetil

Duration Patients Percentage
Less than 1 month 25
1 - 6 months 55
6 months - 1 year 46
1 - 2 years 33
2 - 5 years 44
5 - 10 years 27
10 years or more 6
Adherence
Adherence Evaluations Percentage
Always 339
Usually 39
Sometimes 7
Never taken as prescribed 11
Burden
Burden Evaluations Percentage
Very hard to take 16
Somewhat hard to take 51
A little hard to take 81
Not at all hard to take 248
Cost per month
Cost per month Evaluations Percentage
$200+ 24
$100-199 19
$50-99 28
$25-49 29
< $25 147
Not specified 149

What people switch to and from

Patients started taking Mycophenolate mofetil after stopping:

Treatment Patients Percentage
Azathioprine (Imuran) 30
Methotrexate (Apo-Methotrexate) 21
Prednisone (Deltasone) 15
Hydroxychloroquine (Plaquenil) 9
Cyclophosphamide (Cytoxan) 5

Show all 27 treatments patients report switching from

Patients stopped taking Mycophenolate mofetil and switched to:

Treatment Patients Percentage
Azathioprine (Imuran) 12
Methotrexate (Apo-Methotrexate) 8
Belimumab (Benlysta) 7
Cyclophosphamide (Cytoxan) 5
Rituximab (Rituxan) 4

Show all 17 treatments patients report switching to

Last updated:

37 patient evaluations for Mycophenolate mofetil

Jan 9, 2019 (Started Oct 23, 2016)

  • Effectiveness
    Major (for Sjogren's syndrome)
  • Side effects
    Moderate (cluster headaches)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 500 mg Twice daily
Cost: < $25 monthly

Apr 18, 2017 (Started Oct 23, 2016)

  • Effectiveness
    Major (for Sjogren's syndrome)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 1000 mg Twice daily
Cost: < $25 monthly

  • 0 helpful marks

Dec 8, 2016 (Started Jun 01, 2000)

  • Effectiveness
    Major (for Prevent organ rejection)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3000 mg Daily

  • 0 helpful marks

Oct 31, 2016 (Started Dec 01, 2005)

  • Effectiveness
    Major (for kidney transplant)
  • Effectiveness
    Major (for Prevent organ rejection)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 37 patient evaluations for Mycophenolate mofetil