What is Mycophenolate mofetil?

Category: Prescription Drugs

Most popular types: CellCept Myfenax

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Mycophenolate is an immunosuppressant agent that may be used for the prevention of organ rejection in patients receiving allogeneic renal, cardiac or hepatic transplants. Mycophenolate should be used concomitantly with cyclosporine and corticosteroids.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Prevent organ rejection 502 93
Systemic lupus erythematosus 213 81
Multiple sclerosis 68 29
Lupus nephritis 42 13
Neuromyelitis optica 38 26

Show all 96 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations Percentage
Severe 37
Moderate 92
Mild 117
None 154

Commonly reported side effects and conditions associated with Mycophenolate mofetil

Side effect Patients Percentage
Diarrhea 36
Nausea 27
Fatigue 12
Headaches 8
Stomach pain 8
Tremor in hands 7

Show all 125 reported side effects

Dosages

Based on patients currently taking Mycophenolate mofetil

Dosage Patients Percentage
1000 mg twice daily 20
500 mg twice daily 14
500 mg daily 9
2000 mg daily 7
1000 mg daily 6
1500 mg twice daily 6
250 mg twice daily 5
1500 mg daily 5
250 mg daily 2
1000 mg three times daily 2

See all 22 dosages

Why patients stopped taking Mycophenolate mofetil

Multiple reasons could be selected

Reason Patients Percentage
Side effects too severe 95
Doctor's advice 87
Did not seem to work 49
Other 49
Course of treatment ended 19
Change in health plan coverage 5
Personal research 5
Expense 4
See all 239 patients who've stopped taking Mycophenolate mofetil

Duration

Currently taking Mycophenolate mofetil

Duration Patients Percentage
1 - 6 months 6
6 months - 1 year 3
1 - 2 years 10
2 - 5 years 26
5 - 10 years 28
10 years or more 16

Stopped taking Mycophenolate mofetil

Duration Patients Percentage
Less than 1 month 25
1 - 6 months 56
6 months - 1 year 47
1 - 2 years 33
2 - 5 years 44
5 - 10 years 27
10 years or more 6
Adherence
Adherence Evaluations Percentage
Always 342
Usually 41
Sometimes 6
Never taken as prescribed 11
Burden
Burden Evaluations Percentage
Very hard to take 16
Somewhat hard to take 50
A little hard to take 83
Not at all hard to take 251
Cost per month
Cost per month Evaluations Percentage
$200+ 24
$100-199 19
$50-99 29
$25-49 31
< $25 147
Not specified 150

What people switch to and from

Patients started taking Mycophenolate mofetil after stopping:

Treatment Patients Percentage
Azathioprine (Imuran) 30
Methotrexate (Trexall) 21
Prednisone (Deltasone) 15
Hydroxychloroquine (Plaquenil) 9
Cyclophosphamide (Cytoxan) 5

Show all 26 treatments patients report switching from

Patients stopped taking Mycophenolate mofetil and switched to:

Treatment Patients Percentage
Azathioprine (Imuran) 11
Methotrexate (Trexall) 8
Belimumab (Benlysta) 7
Cyclophosphamide (Cytoxan) 5
Mycophenolic acid (Myfortic) 4

Show all 17 treatments patients report switching to

Last updated:

37 patient evaluations for Mycophenolate mofetil

Jan 9, 2019 (Started Oct 23, 2016)

  • Effectiveness
    Major (for Sjogren's syndrome)
  • Side effects
    Moderate (cluster headaches)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 1000 mg Twice daily
Cost: < $25 monthly

Apr 18, 2017 (Started Oct 23, 2016)

  • Effectiveness
    Major (for Sjogren's syndrome)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 1000 mg Twice daily
Cost: < $25 monthly

  • 0 helpful marks

Dec 8, 2016 (Started Jun 01, 2000)

  • Effectiveness
    Major (for Prevent organ rejection)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3000 mg Daily

  • 0 helpful marks

Oct 31, 2016 (Started Dec 01, 2005)

  • Effectiveness
    Major (for kidney transplant)
  • Effectiveness
    Major (for Prevent organ rejection)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 37 patient evaluations for Mycophenolate mofetil