Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Multiple myeloma 142 135
Kaposi's sarcoma 2 1
Myelodysplastic syndrome 2 1
Participate in clinical trial 2 2
Discoid lupus erythematosus 1 0
Non-Hodgkin's lymphoma 1 2

Show all 7 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations Percentage
Severe 15
Moderate 56
Mild 49
None 19

Commonly reported side effects and conditions associated with Lenalidomide

Side effect Patients Percentage
Diarrhea 27
Fatigue 24
Rashes (redness, swelling) 5
Tiredness 5
Low white blood cell count (leukopenia) 4
Constipation 3

Show all 81 reported side effects

Dosages

Based on patients currently taking Lenalidomide

Dosage Patients Percentage
10 mg daily 5
15 mg daily 3
25 mg daily 3
5 mg daily 2
25 mg every 3 weeks 1
5 mg every other day 1
10 mg m,w,f 1
5mg as needed 1

Why patients stopped taking Lenalidomide

Multiple reasons could be selected

Reason Patients Percentage
Side effects too severe 11
Doctor's advice 10
Did not seem to work 8
Course of treatment ended 7
Other 4
See all 34 patients who've stopped taking Lenalidomide

Duration

Currently taking Lenalidomide

Duration Patients Percentage
1 - 2 years 1
2 - 5 years 7
5 - 10 years 10
10 years or more 1

Stopped taking Lenalidomide

Duration Patients Percentage
Less than 1 month 9
1 - 6 months 9
6 months - 1 year 5
1 - 2 years 4
2 - 5 years 7
Adherence
Adherence Evaluations Percentage
Always 131
Usually 5
Sometimes 0
Never taken as prescribed 3
Burden
Burden Evaluations Percentage
Very hard to take 5
Somewhat hard to take 15
A little hard to take 16
Not at all hard to take 103
Cost per month
Cost per month Evaluations Percentage
$200+ 17
$100-199 5
$50-99 7
$25-49 23
< $25 51
Not specified 36

What people switch to and from

Patients started taking Lenalidomide after stopping:

Treatment Patients Percentage
Bortezomib (Velcade) 8
Bortezomib-lenalidomide-dexamethasone (VRd) 4
Bortezomib-dexamethasone (Vd) 3
Lenalidomide-dexamethasone (Rd) 2
Thalidomide 2

Show all 8 treatments patients report switching from

Patients stopped taking Lenalidomide and switched to:

Treatment Patients Percentage
Bortezomib (Velcade) 4
Pomalidomide (Pomalyst) 4
Pomalidomide-dexamethasone 4
Carfilzomib (Kyprolis) 3
Ixazomib (Ninlaro) 3

Show all 12 treatments patients report switching to

Last updated:

2 patient evaluations for Lenalidomide

Jun 29, 2017 (Started Nov 15, 2015)

  • Effectiveness
    Moderate (for multiple myeloma)
  • Side effects
    Moderate (fatigue)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Daily
Cost: $200+ monthly

  • 0 helpful marks

Feb 4, 2016 (Started Feb 01, 2016)

  • Effectiveness
    Major (for non-Hodgkin's lymphoma)
  • Side effects
    Severe (fluid retention (edema), heart palpitations, breathing difficulty, chest pain, itchy scalp)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 20 mg Daily
Advice & Tips: Don't touch this stuff!
Cost: $50-99 monthly

Feb 1, 2016 (Started Feb 01, 2016)

  • Effectiveness
    Can't tell (for non-Hodgkin's lymphoma)
  • Side effects
    Severe
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 20 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks
Last updated:
Showing 2 of 2 patient evaluations for Lenalidomide