What is Fingolimod?

Category: Prescription Drugs

Most popular types: Gilenya

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Fingolimod is used to treat relapsing forms of multiple sclerosis (MS) by decreasing the number of MS relapses, or periods of time with worsening of symptoms.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Multiple sclerosis 893 655
Fever/chills 3 0
Participate in clinical trial 2 2
Amyotrophic lateral sclerosis 1 1
Balance problems 1 1

Show all 21 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations Percentage
Severe 96
Moderate 67
Mild 131
None 375

Commonly reported side effects and conditions associated with Fingolimod

Side effect Patients Percentage
Fatigue 25
Headaches 25
Elevated liver enzymes 14
Nausea 14
Heart rate low (bradycardia) 12
Hair loss 11

Show all 146 reported side effects

Dosages

Based on patients currently taking Fingolimod

Dosage Patients Percentage
0.5 mg daily 43
1 capsule(s) daily 9
0.05 mg daily 3
1 mg daily 2
5 mg daily 2
0.5 mg monthly 1
0.5 mg weekly 1
0.5 mg m,w,f 1
0.25 mg daily 1
0.5 g daily 1

See all 16 dosages

Why patients stopped taking Fingolimod

Multiple reasons could be selected

Reason Patients Percentage
Side effects too severe 111
Doctor's advice 99
Did not seem to work 84
Other 61
Personal research 12
Expense 8
Change in health plan coverage 4
Course of treatment ended 4
See all 265 patients who've stopped taking Fingolimod

Duration

Currently taking Fingolimod

Duration Patients Percentage
1 - 6 months 1
6 months - 1 year 1
1 - 2 years 3
2 - 5 years 15
5 - 10 years 44
10 years or more 6

Stopped taking Fingolimod

Duration Patients Percentage
Less than 1 month 32
1 - 6 months 62
6 months - 1 year 55
1 - 2 years 59
2 - 5 years 49
5 - 10 years 8
Adherence
Adherence Evaluations Percentage
Always 606
Usually 31
Sometimes 4
Never taken as prescribed 28
Burden
Burden Evaluations Percentage
Very hard to take 11
Somewhat hard to take 9
A little hard to take 38
Not at all hard to take 611
Cost per month
Cost per month Evaluations Percentage
$200+ 32
$100-199 22
$50-99 27
$25-49 67
< $25 337
Not specified 184

What people switch to and from

Patients started taking Fingolimod after stopping:

Treatment Patients Percentage
Glatiramer acetate (Copaxone) 67
Natalizumab (Tysabri) 48
Interferon beta-1a SubQ injection (Rebif) 41
Interferon beta-1a IM Injection (Avonex) 37
Dimethyl fumarate (Tecfidera) 34

Show all 18 treatments patients report switching from

Patients stopped taking Fingolimod and switched to:

Treatment Patients Percentage
Natalizumab (Tysabri) 22
Dimethyl fumarate (Tecfidera) 21
Teriflunomide (Aubagio) 16
Ocrelizumab (Ocrevus) 13
Glatiramer acetate (Copaxone) 8

Show all 14 treatments patients report switching to

Last updated:

38 patient evaluations for Fingolimod

Sep 21, 2017 (Started Aug 28, 2014)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Moderate (hair thinning)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: < $25 monthly

Mar 27, 2017 (Started Aug 28, 2014)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Mild (hair thinning)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Advice & Tips: Its one pill everyday, easier than having to give myself a shot, I can take pill with me anywhere. Consistency is the key, same time every day.
Cost: < $25 monthly

  • 0 helpful marks

Jan 5, 2017 (Started Dec 15, 2013)

  • Effectiveness
    Moderate (for relapse MS (exacerbation))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks

Sep 30, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: < $25 monthly

Jun 9, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: < $25 monthly

May 13, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Advice & Tips: every morning, I have my coffee and my pill
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 38 patient evaluations for Fingolimod