Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Multiple sclerosis 68 44
Lupus nephritis 25 9
Systemic lupus erythematosus 24 14
Breast cancer 11 4
Multiple myeloma 11 6
CNS lupus 10 6

Show all 44 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations Percentage
Severe 19
Moderate 44
Mild 32
None 12

Commonly reported side effects and conditions associated with Cyclophosphamide

Side effect Patients Percentage
Nausea 26
Fatigue 13
Hair loss 11
Constipation 7
Hair thinning 5
Headaches 3

Show all 58 reported side effects

Dosages

Based on patients currently taking Cyclophosphamide

Dosage Patients Percentage
600 mg monthly 1
25mg as needed 1

Why patients stopped taking Cyclophosphamide

Multiple reasons could be selected

Reason Patients Percentage
Course of treatment ended 84
Doctor's advice 31
Did not seem to work 30
Side effects too severe 22
Other 13
Personal research 3
Expense 1
See all 143 patients who've stopped taking Cyclophosphamide

Duration

Currently taking Cyclophosphamide

Duration Patients Percentage
6 months - 1 year 1
2 - 5 years 1
10 years or more 2

Stopped taking Cyclophosphamide

Duration Patients Percentage
Less than 1 month 21
1 - 6 months 46
6 months - 1 year 32
1 - 2 years 24
2 - 5 years 13
5 - 10 years 6
10 years or more 3
Adherence
Adherence Evaluations Percentage
Always 94
Usually 3
Sometimes 4
Never taken as prescribed 6
Burden
Burden Evaluations Percentage
Very hard to take 16
Somewhat hard to take 45
A little hard to take 16
Not at all hard to take 30
Cost per month
Cost per month Evaluations Percentage
$200+ 5
$100-199 1
$50-99 5
$25-49 5
< $25 34
Not specified 57

What people switch to and from

Patients started taking Cyclophosphamide after stopping:

Treatment Patients Percentage
Mycophenolate mofetil (CellCept) 6
Azathioprine (Imuran) 4
Interferon beta-1a IM Injection (Avonex) 2
Lenalidomide (Revlimid) 2
Methylprednisolone (Solu-Medrol Infusion) 2

Show all 17 treatments patients report switching from

Patients stopped taking Cyclophosphamide and switched to:

Treatment Patients Percentage
Mycophenolate mofetil (CellCept) 3
Rituximab (Rituxan) 3
Azathioprine (Imuran) 2
Dimethyl fumarate (Tecfidera) 1
Doxycycline (Doxylin) 1

Show all 13 treatments patients report switching to

Last updated:

10 patient evaluations for Cyclophosphamide

Oct 22, 2016 (Started Jun 30, 2008)

  • Effectiveness
    Slight (for CNS lupus)
  • Side effects
    Mild (bone marrow suppression)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Advice & Tips: This is a muscle relaxer and theoretically should have no effect on nerve pain, but when I went off of it for a short time because my insurance wanted me to try a different drug, I immediately started having worse nerve pain in my feet.  Now I've been back on it for about a week and I think the pain is better.  Of course, it could be placebo effect, but that doesn't matter to me, does it?
Cost: < $25 monthly

Oct 14, 2016 (Started Jun 30, 2008)

  • Effectiveness
    Major (for CNS lupus)
  • Side effects
    Severe (bone marrow suppression)
  • Adherence
    Never taken as prescribed
  • Burden
    Very hard to take
Advice & Tips: This is Cytoxen, a chemotherapy drug.  I had monthly treatments for nine months, became so anemic that I got dehydrated from low blood volume and went into renal failure twice.  It did stop my seizures, episodes of amnesia and other neuropsychiatric symptoms for a long time.  It was worth the risks.
Cost: $200+ monthly

  • 0 helpful marks

Dec 11, 2011 (Started Dec 16, 2011)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Advice & Tips: I put this treatment in as a mistake
Cost: < $25 monthly

  • 0 helpful marks

Sep 5, 2011 (Started Oct 06, 2010)

  • Effectiveness
    Slight (for multiple sclerosis)
  • Side effects
    Mild (nausea)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 g Monthly
Cost: $50-99 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 10 patient evaluations for Cyclophosphamide