Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Systemic lupus erythematosus 713 18
Lupus nephritis 152 9
Multiple sclerosis 79 46
Chronic lymphocytic leukemia 67 1
Granulomatosis with polyangiitis (Wegener's) 55 7
Interstitial lung disease 27 6

Show all 60 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations Percentage
Severe 19
Moderate 47
Mild 37
None 13

Commonly reported side effects and conditions associated with Cyclophosphamide

Side effect Patients Percentage
Nausea 27
Fatigue 14
Hair loss 12
Constipation 7
Hair thinning 5
Vomiting 4

Show all 61 reported side effects

Dosages

Based on patients currently taking Cyclophosphamide

Dosage Patients Percentage
600 mg monthly 1
2565 mg monthly 1
25mg as needed 1

Why patients stopped taking Cyclophosphamide

Multiple reasons could be selected

Reason Patients Percentage
Course of treatment ended 88
Doctor's advice 31
Did not seem to work 30
Side effects too severe 22
Other 13
Personal research 3
Expense 1
See all 147 patients who've stopped taking Cyclophosphamide

Duration

Currently taking Cyclophosphamide

Duration Patients Percentage
5 - 10 years 1
10 years or more 2

Stopped taking Cyclophosphamide

Duration Patients Percentage
Less than 1 month 21
1 - 6 months 49
6 months - 1 year 32
1 - 2 years 24
2 - 5 years 13
5 - 10 years 6
10 years or more 3
Adherence
Adherence Evaluations Percentage
Always 101
Usually 3
Sometimes 6
Never taken as prescribed 6
Burden
Burden Evaluations Percentage
Very hard to take 17
Somewhat hard to take 47
A little hard to take 18
Not at all hard to take 34
Cost per month
Cost per month Evaluations Percentage
$200+ 5
$100-199 1
$50-99 5
$25-49 5
< $25 35
Not specified 65

What people switch to and from

Patients started taking Cyclophosphamide after stopping:

Treatment Patients Percentage
Mycophenolate mofetil (CellCept) 7
Azathioprine (Imuran) 4
Methotrexate (Apo-Methotrexate) 3
Interferon beta-1a IM Injection (Avonex) 2
Lenalidomide (Revlimid) 2

Show all 18 treatments patients report switching from

Patients stopped taking Cyclophosphamide and switched to:

Treatment Patients Percentage
Mycophenolate mofetil (CellCept) 6
Rituximab (Rituxan) 5
Azathioprine (Imuran) 2
Belimumab (Benlysta) 2
Hydroxychloroquine (Plaquenil) 2

Show all 15 treatments patients report switching to

Last updated:

10 patient evaluations for Cyclophosphamide

Oct 22, 2016 (Started Jun 30, 2008)

  • Effectiveness
    Slight (for CNS lupus)
  • Side effects
    Mild (bone marrow suppression)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Advice & Tips: This is a muscle relaxer and theoretically should have no effect on nerve pain, but when I went off of it for a short time because my insurance wanted me to try a different drug, I immediately started having worse nerve pain in my feet.  Now I've been back on it for about a week and I think the pain is better.  Of course, it could be placebo effect, but that doesn't matter to me, does it?
Cost: < $25 monthly

Oct 14, 2016 (Started Jun 30, 2008)

  • Effectiveness
    Major (for CNS lupus)
  • Side effects
    Severe (bone marrow suppression)
  • Adherence
    Never taken as prescribed
  • Burden
    Very hard to take
Advice & Tips: This is Cytoxen, a chemotherapy drug.  I had monthly treatments for nine months, became so anemic that I got dehydrated from low blood volume and went into renal failure twice.  It did stop my seizures, episodes of amnesia and other neuropsychiatric symptoms for a long time.  It was worth the risks.
Cost: $200+ monthly

  • 0 helpful marks

Dec 11, 2011 (Started Dec 16, 2011)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Advice & Tips: I put this treatment in as a mistake
Cost: < $25 monthly

  • 0 helpful marks

Sep 5, 2011 (Started Oct 06, 2010)

  • Effectiveness
    Slight (for multiple sclerosis)
  • Side effects
    Mild (nausea)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 g Monthly
Cost: $50-99 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 10 patient evaluations for Cyclophosphamide