What is Alemtuzumab?

Category: Prescription Drugs

Most popular types: Lemtrada Campath

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Alemtuzumab is commonly used as a single agent for the treatment of B-cell chronic lymphocytic leukemia (B-CLL) and multiple sclerosis.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Multiple sclerosis 90 91
Participate in clinical trial 3 2
Bone marrow transplant 1 1
Chronic lymphocytic leukemia 1 0
Intention tremor 1 1
Kidney transplant 1 0

Show all 10 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations Percentage
Severe 7
Moderate 22
Mild 31
None 36

Commonly reported side effects and conditions associated with Alemtuzumab

Side effect Patients Percentage
Headaches 17
Fatigue 15
Fever/chills 7
Hives (urticaria) 5
Generalized weakness (asthenia) 4
Nausea 4

Show all 62 reported side effects

Dosages

Based on patients currently taking Alemtuzumab

Dosage Patients Percentage
10 mg yearly 4
30 mg yearly 2
10 mg daily 2
0.12 mL yearly 1
1 dose yearly 1
5 other yearly 1
10 mg four times daily 1
10 mg five times daily 1
50 mg one time 1
60 mg one time 1

Why patients stopped taking Alemtuzumab

Multiple reasons could be selected

Reason Patients Percentage
Course of treatment ended 14
Did not seem to work 3
Other 3
Doctor's advice 1
See all 24 patients who've stopped taking Alemtuzumab

Duration

Currently taking Alemtuzumab

Duration Patients Percentage
6 months - 1 year 1
1 - 2 years 1
2 - 5 years 13
10 years or more 2

Stopped taking Alemtuzumab

Duration Patients Percentage
Less than 1 month 16
6 months - 1 year 1
1 - 2 years 4
2 - 5 years 3
5 - 10 years 1
Adherence
Adherence Evaluations Percentage
Always 85
Usually 1
Sometimes 3
Never taken as prescribed 7
Burden
Burden Evaluations Percentage
Very hard to take 13
Somewhat hard to take 18
A little hard to take 23
Not at all hard to take 42
Cost per month
Cost per month Evaluations Percentage
$200+ 1
$100-199 0
$50-99 0
$25-49 0
< $25 45
Not specified 50

What people switch to and from

Patients started taking Alemtuzumab after stopping:

Treatment Patients Percentage
Natalizumab (Tysabri) 17
Dimethyl fumarate (Tecfidera) 12
Fingolimod (Gilenya) 7
Glatiramer acetate (Copaxone) 5
Teriflunomide (Aubagio) 5

Show all 9 treatments patients report switching from

Patients stopped taking Alemtuzumab and switched to:

Treatment Patients Percentage
Dimethyl fumarate (Tecfidera) 2
Ocrelizumab (Ocrevus) 1
Teriflunomide (Aubagio) 1
Last updated:

4 patient evaluations for Alemtuzumab

Aug 15, 2016 (Started Sep 21, 2015)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg One time
Advice & Tips: Have been feeling positive effects of this treatment.

Nov 28, 2015 (Started Sep 21, 2015)

  • Effectiveness
    None (for multiple sclerosis)
  • Side effects
    Mild (fatigue, muscle weakness, headaches, abnormal urine smell, whole body ache)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg One time
Advice & Tips: Not seeing any difference from before the treatment, and now.

Oct 16, 2015 (Started Sep 21, 2015)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Moderate (fatigue, muscle weakness, headaches, abnormal urine smell, whole body ache)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 50 mg One time
Advice & Tips: Can't overdo anything before serious fatigue, pace myself throughout the day. Had a stomach flu that went away last week. Getting better though.

Oct 3, 2015 (Started Sep 21, 2015)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Moderate (fatigue, muscle weakness, headaches, abnormal urine smell, whole body ache)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 50 mg One time
Advice & Tips: Having bad and good days. Today is the best day yet. I also slept 10 hours last night.

Sep 29, 2015 (Started Sep 21, 2015)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Moderate (fatigue, muscle weakness, headaches, abnormal urine smell, whole body ache)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 50 mg One time
Advice & Tips: Off steroids, and reality set it. Experienced a lot of pain and weakness over the weekend, but already first decent day since treatment ended.

Sep 25, 2015 (Started Sep 21, 2015)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Mild (fatigue, muscle weakness, headaches, abnormal urine smell, whole body ache)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 50 mg One time
Advice & Tips: 5 day infusion ended today. Still have steroids in my system.

  • 4 helpful marks

Jun 9, 2015 (Started Jul 01, 1900)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Advice & Tips: I HAVE 'NEVER' BEEN PRESCRIBED THIS MEDICATION.....I DO 'NOT' HAVE ANY IDEA OF HOW IT WAS POSTED AS A TREATMENT FOR MY MS DIAGNOSIS!! I AM CURRENTLY 'NOT' TAKING ANY FDA APPROVED DISEASE MODIFYING DRUGS FOR MY MS DIAGNOSIS.....'NONE'......THE LAST DMD THAT IS WAS APPROVED WAS 'TECFIDERA' AND THAT WAS DISCONTINUED JULY 2014 DUE TO SIDE EFFECTS!

  • 1 helpful mark

Sep 1, 2009 (Started Jan 03, 2007)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 30 mg One time
Advice & Tips: This drug was a blessing to me!

  • 0 helpful marks
Last updated:
Showing 3 of 4 patient evaluations for Alemtuzumab