30 patient evaluations for Deep Brain Stimulation

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Oct 1, 2009 (Started Oct 01, 2009)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (for Overall)
  • Adherence
    Never taken as prescribed
  • Burden
    Somewhat hard to take
Dosage: One time
Advice & Tips: You have to believe that the treatment will work. In my case my quality of life after the treatment became much better. Before i could not do anything after 5:00 PM. Now I feel almost normal.
  • 0 helpful marks

May 5, 2012 (Started Jul 01, 2015)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Moderate (for Overall) (jerky movements)
  • Adherence
    Always
  • Burden
    A little hard to take
Cost: < $25 monthly
  • 0 helpful marks

Feb 25, 2014 (Started Dec 01, 2013)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 1 other Every Other Week
Advice & Tips: Ii ask my self the question "if you needed dbs as you know it , would you take it again" answer = yes
Cost: $200+ monthly
  • 0 helpful marks

Mar 7, 2011 (Started Mar 07, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: One time
Advice & Tips: Blog article posted at http://shakypawsgrampa.blogspot.com/2011/09/deep-brain-stimulation.html
Cost: < $25 monthly
  • 0 helpful marks

Oct 27, 2012 (Started May 10, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate (for Overall) (headaches, uncomfortable)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: One time
Advice & Tips: DO IT!!! Find an excellent Movement Disorder Specialist go through all the evaluation process and get the implants. It will change your life. Very little and mostly no shaking any more. I am completely off the medications (I insisted). I can now sleep again (that is the best benefit) although my body is still trying to catch up for all the nights that I only got 2~3 hours sleep.
  • 3 helpful marks

Mar 1, 2012 (Started Mar 01, 2012)

  • Effectiveness
    Can't tell (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: One time
Advice & Tips: I just had the surgery a little over a month. The Honeymoon only lasted a week for me. I get the DBS turned on and first programming on April 19, 2012. I can't wait.
  • 0 helpful marks

Jan 12, 2012 (Started Jun 28, 2010)

  • Effectiveness
    Major (for Parkinson's disease)
  • Effectiveness
    Major (for dystonia)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: One time
Advice & Tips: My DBS Neurostimulator FINALLY kicked in after close to one year of monthly programming visits to the DBS clinic at Robert Wood Johnson medical center. I am doing MUCH better now. I have not reduced my meds but that's OK. It has brought me back to life and some days I almost feel like my old self.
Cost: $25-49 monthly
Side effects: dizziness, neck and shoulder muscle soreness

Nov 18, 2010 (Started Jun 28, 2010)

  • Effectiveness
    Can't tell (for dystonia)
  • Effectiveness
    Can't tell (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (dizziness, neck and shoulder muscle soreness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: One time
Advice & Tips: AS OF 11/2010: Right now I am in the middle of programming sessions for the IPG battery in my chest. I go once a month to a "DBS clinic" Robert Wood Johnsohn Medical Center in New Brunswick NJ, USA. I see the DBS programmer and a neurologist. Even though I only have PD on my left side, it is quite severe. Unfortunately, the neuro has INCREASED my meds and the DBS programming has been very very slow - each time I get the voltage increased the PD seems to "compensate" It has been 5 months since the surgery and so far the benefits have been minimal. One unexpected positive effect has been reduced sense of bladder urgency. The surgery itself was not bad since they only had to install the wire lead on the right side of my brain.
Side effects: dizziness, neck and shoulder muscle soreness
  • 1 helpful mark

May 17, 2011 (Started May 17, 2011)

  • Effectiveness
    Can't tell (for Parkinson's disease)
  • Side effects
    Moderate (for Overall)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: One time
Advice & Tips: Still take meds q 2hrs--must increase volts slowly over time to improove this ; one month later, meds still the same. I'm nauseated --is this related?
Cost: < $25 monthly
Side effects: word fishing
  • 1 helpful mark

Nov 10, 2010 (Started Jun 19, 2009)

  • Effectiveness
    Major (for Improve mobility)
  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate (for Overall) (loss of balance)
  • Adherence
    Always
  • Burden
    A little hard to take
Advice & Tips: increase mobility, no tremors at alll,filing beter
Cost: $200+ monthly
Side effects: loss of balance

Apr 14, 2010 (Started Jun 19, 2009)

  • Effectiveness
    Major (for Improve mobility)
  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: every day i improve more, and i feel better and my motion is faster
Cost: $200+ monthly
Side effects: loss of balance

Feb 2, 2010 (Started Jun 19, 2009)

  • Effectiveness
    Major (for tremor(s))
  • Side effects
    Moderate (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Personally it was me very easy to make the decision since i had the opportunity to know a patient that had been already operated and my only question to him was it is that he had to be operate again and he told me that If without doubting it one minute. also i had the opportunity to know a youth from another social stratum to which they operated very recently for the epilepsy to the day that we saw each other and it was one of people that more push myself to operate me. Regarding other benefits I consider that the benefit is to have recovered the initiative of finishing quick very fast anything that I start. What also produces certain frustration for what the last 10 years of my illness I cannot recover it in 6 months
Cost: $200+ monthly
Side effects: loss of balance
  • 3 helpful marks

Dec 21, 2010 (Started Oct 08, 2008)

  • Effectiveness
    Major (for Parkinson's disease)
  • Effectiveness
    Major (for tremor(s))
  • Side effects
    Mild (for Overall) (excess saliva, problems with focusing eyes, dependent on doctor)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Monthly
Advice & Tips: no problem at all EVERY THING ; TREMORS; PHISICAL ; THINKING WORKING:DRIVING I AM FREE AGAIN 100%
Cost: $200+ monthly
Side effects: problems with focusing eyes, excess saliva, dependent on doctor

Feb 16, 2010 (Started Oct 08, 2008)

  • Effectiveness
    Major (for Parkinson's disease)
  • Effectiveness
    Major (for tremor(s))
  • Side effects
    Mild (for Overall) (excess saliva, dependent on doctor)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Monthly
Advice & Tips: I have all ready explain this, i am more or absoluty streight, much more alert , less depresion,i am working in nano technologic and electronic, i have already practicing golf again, reading much more. beter position and beter balance out side off home i don´t know wy probabily because i tray harder. and my steps are more longer and slower. The impact was all ,to my family and me i am a more hapier person i have a new pet that it is a cokerspaniel blcak who i take hin out every day to play at a park
Cost: $200+ monthly
Side effects: problems with focusing eyes, excess saliva, dependent on doctor
  • 1 helpful mark
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