197 patient evaluations for Copaxone

1,482 members have decided to share their profiles only with other members of PatientsLikeMe.

Sort by: Most recent

Oct 20, 2011 (Started Jul 14, 2005)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Advice & Tips: I developed lumps/knots under my skin that may not have been related to the Copaxone. After ultra-sound and MRI, no conclusive diagnoses for the knots. I was so tired of the daily shots and the sudden development of the knots I decided to stop the treatment.
Cost: < $25 monthly

Aug 20, 2010 (Started Jul 14, 2005)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Advice & Tips: I get tired of taking this shot every day, however, I have had no major flare ups since beginning this medication. Very soon after I began this medication I lost 15 pounds and that was an unexpected benefit. In the beginning and for six or eight months the injection site itched and nearly drove me nuts. I ignored the itching and one day realized the itching had stopped.
  • 0 helpful marks

Mar 31, 2011 (Started Jun 17, 2010)

  • Effectiveness
    None (for multiple sclerosis)
  • Effectiveness
    None (for fatigue)
  • Side effects
    Moderate (for Overall) (rigors, hair loss, decreased appetite)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 20 mg Every other day
Advice & Tips: I decided the side effects were not worth the unseen bebefits in 6 mo. of taking the drug and discontinued

Aug 12, 2010 (Started Jun 17, 2010)

  • Effectiveness
    None (for fatigue)
  • Side effects
    Severe (for Overall) (rigors, hair loss, decreased appetite)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 20 mg Every other day
Advice & Tips: So far I have only been getting the side effects. I get golfball sized painful lumps at the injectino sites which are red and hot to the touch for up to 4 days following the injection. The lumps have yet to go away or lessen in size. I have been told, "this happens" and I can "rub them to minimize the size". Okay......NOT WORKING!!! Then I had what they called 'seepage' the last injection. Once the needle was remove my body basically spit the solution out. Not drip, drip, but a steady flow until just about all of it was gone. Again, I got "this can happen". These do not sound like normal reactions, nor positive things ones body should be going through to me. Just saying.
  • 0 helpful marks

May 11, 2010 (Started Feb 20, 2007)

  • Effectiveness
    None (for Other)
  • Side effects
    Severe (for Overall) (back pain, Tremendous backpain)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Advice & Tips: I injected myself with this treatment every morning. I did suffer excruciating back-pain but was unaware of Copaxone being the cause of my pain until I was removed from SSI then after two months of being drug free, my back-pain all but disappeared. Now I am on "The MS Recovery Diet by Anne D. Sawyer and Judith E. Bachrach," and feel even better! I didn't know that just a change in diet and exercise could change my life for the better! My advice is to buy the book and follow the instructions in diet. Almond or Soy milk and Almond cheese also Lactose-free cream cheese and other dairy-free even Gluten-free can be purchased at Smith's Grocery. The recovery from disabilities and other happens individually and does happen depending on the person and how committed they are about the diet. www.msrecoverydiet.com
Cost: < $25 monthly
  • 0 helpful marks

Oct 7, 2011 (Started Apr 07, 2001)

  • Effectiveness
    None (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take

Jul 12, 2010 (Started Apr 07, 2001)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Sometimes
  • Burden
    A little hard to take
Dosage: 20 Daily
  • 0 helpful marks

Aug 31, 2011 (Started Jul 27, 2005)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Mild (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Cost: $50-99 monthly
  • 0 helpful marks

Jun 24, 2011 (Started Oct 08, 2010)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Mild (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Cost: $25-49 monthly

Oct 10, 2010 (Started Oct 08, 2010)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Advice & Tips: For burden I put that it is not difficult at all, not because self injections aren't a little creepy, but because it is not hard for me to suck it up and do it anyway. I want to get better and I will do anything I can to help myself. The injections really aren't that bad, just a little sting (I will admit right now I take a deep breath, count and go on 3). :) So far I have NO SIDE EFFECTS, no bump, blister or anything :)
Cost: $25-49 monthly
  • 0 helpful marks

Jun 2, 2011 (Started Nov 01, 2010)

  • Effectiveness
    Slight (for multiple sclerosis)
  • Side effects
    Mild (for Overall)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 20 mg Daily
Advice & Tips: I stopped taking Copaxone because I started taking LDN on October 12,2011
  • 0 helpful marks

Sep 2, 2011 (Started Feb 04, 2009)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 20 mg Daily
Cost: < $25 monthly
  • 0 helpful marks

Mar 1, 2011 (Started Aug 17, 2007)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Mild (for Overall) (redness, injection site reaction, lumps and bumps)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 20 mg Daily
Cost: $25-49 monthly
Side effects: injection site reaction, redness, lumps and bumps

Aug 23, 2008 (Started Aug 17, 2007)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Mild (for Overall) (redness, injection site reaction, lumps and bumps)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 20 mg Daily
Advice & Tips: It takes time to get used to the idea of having to do this everyday. It doesn't make you feel better. It is not like an aspirin for a headache. So it's more of a cerebral fight...you have to believe that you are benefing from it. There is no sure way to know, as MS is so diverse.
Cost: $25-49 monthly
Side effects: injection site reaction, redness, lumps and bumps
  • 0 helpful marks

Aug 26, 2011 (Started Aug 26, 2010)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Mild (for Overall) (injection site bruising)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Cost: < $25 monthly
Side effects: injection site bruising
  • 0 helpful marks
Last updated:
Showing 10 of 197 patient evaluations for Copaxone