39 patient evaluations for Non-invasive Ventilator

164 members have decided to share their profiles only with other members of PatientsLikeMe.

Sort by: Helpfulness

Oct 27, 2012 (Started Nov 25, 2011)

  • Effectiveness
    Slight (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (for Overall) (abdominal bloating, insomnia due to pain)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 9 hr Daily
Advice & Tips: since my feeding tube implant, I get extreme gas and bloating in my stomach while using the BiPAP. It makes it very difficult to sleep. Additionally, I sometimes wake in the middle of the night with thick mucus. Overall however, I still believe the BiPAP to have somewhat slowed down the progression of the disease.
Cost: $50-99 monthly

Dec 4, 2011 (Started Nov 25, 2011)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 3 hr Daily
Advice & Tips: My energy levels are much improved!
Cost: $50-99 monthly
  • 0 helpful marks

May 29, 2012 (Started Jan 30, 2012)

  • Effectiveness
    Slight (for Support lung health)
  • Side effects
    None (for Overall)
  • Adherence
    Sometimes
  • Burden
    Somewhat hard to take
Dosage: 10 hr Weekly
Cost: $25-49 monthly
  • 0 helpful marks

Jul 18, 2015 (Started Jul 01, 2011)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Effectiveness
    Major (for decreased diaphragm strength)
  • Side effects
    Mild (for Overall) (granulation tissue both peg and trach site)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 23 hr Daily
  • 0 helpful marks

Jul 6, 2012 (Started Nov 30, 2007)

  • Effectiveness
    Moderate (for fatigue)
  • Effectiveness
    Major (for headaches)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 14 hr Daily
  • 0 helpful marks

Aug 30, 2016 (Started May 25, 2005)

  • Effectiveness
    Slight (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 3 hr Daily

Nov 17, 2010 (Started May 25, 2005)

  • Effectiveness
    Slight (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (for Overall)
  • Adherence
    Sometimes
  • Burden
    Very hard to take
Dosage: 3 hr Daily
  • 0 helpful marks

Aug 31, 2016 (Started Jan 02, 2014)

  • Effectiveness
    Major (for General health)
  • Effectiveness
    Major (for shortness of breath with little or minimal activity (ie standing))
  • Side effects
    Mild (for Overall) (difficult to move or walk)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 10 hr Daily
Advice & Tips: Of I'm going out I try to stay on the bipap as long as possible on previous days to store up energy.  Free on NHS 
Cost: < $25 monthly

May 27, 2016 (Started Jan 02, 2014)

  • Effectiveness
    Major (for General health)
  • Effectiveness
    Major (for shortness of breath with little or minimal activity (ie standing))
  • Side effects
    Moderate (for Overall) (difficult to move or walk)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 10 hr Daily
Advice & Tips: I now use for 20 hours.mits certainly rough but it is worth the effort in terms of energy
Cost: < $25 monthly

Mar 22, 2013 (Started Jan 02, 2014)

  • Effectiveness
    Moderate (for General health)
  • Side effects
    None (for Overall)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Advice & Tips: I'm new to this device. I've had it for a year but I've only just started to use it on a regular basis. I try to put 3 to 4 hours into each day. I do this because at times I feel a slight breathlessness and also because my voice appears weak. It also appears to raise my energy levels.
Cost: < $25 monthly
  • 0 helpful marks

Feb 28, 2017 (Started Mar 11, 2014)

  • Effectiveness
    Major (for breathing difficulty)
  • Side effects
    Mild (for Overall) (dry mouth)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 20 hr Daily
Advice & Tips: I have a bi-pap in my office and my bedroom. Also a portable battery powered one. I have elected not to have a tracheotomy, so as my breathing becomes more difficult I am using a bi-pap more. Currently about 20 hours a day.
Cost: < $25 monthly

Jan 28, 2017 (Started Mar 11, 2014)

  • Effectiveness
    Major (for breathing difficulty)
  • Side effects
    Mild (for Overall) (dry mouth)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 hr Daily
Advice & Tips: Using it almost continuously, can only take it off for bath and moving from one room to another.
Cost: < $25 monthly

Nov 10, 2016 (Started Mar 11, 2014)

  • Effectiveness
    Major (for breathing difficulty)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 hr Daily
Advice & Tips: I have a bi-pap in my office and my bedroom. Also a portable battery powered one. I have elected not to have a tracheotomy, so as my breathing becomes more difficult I am using a bi-pap more. Currently about 20 hours a day.
Cost: < $25 monthly
  • 0 helpful marks

Mar 20, 2017 (Started Sep 15, 2016)

  • Effectiveness
    Moderate (for sleep apnea disorder)
  • Side effects
    Moderate (for Overall) (difficulty staying asleep, dry mouth)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 5 hr Daily
Advice & Tips: I've had a hard time getting used to this machine. I wake up more often than before starting the bi-pap. The recommended settings were too much for me to get use to. Lowering them makes it easier for me, but I am having too many apnea episodes, avg 20+/hr down from 48.8/hr. I've yet to see the benefit from this treatment.
  • 0 helpful marks

Nov 17, 2020 (Started Jul 22, 2012)

  • Effectiveness
    Major (for breathing difficulty)
  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 hr Daily

Jul 19, 2015 (Started Jul 22, 2012)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Effectiveness
    Major (for breathing difficulty)
  • Side effects
    Mild (for Overall) (dry mouth)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 10 hr Daily
Advice & Tips: listen to your doctor and use the bpap asap
  • 0 helpful marks
Last updated:
Showing 9 of 39 patient evaluations for Non-invasive Ventilator