Jun 12, 2019
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
Mild
(for Overall)
(coughing while drinking, dry cough, hoarseness)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Advice & Tips:
Actually catches most seizures. The bulk Happens when going to bed. I was flabberghasted because battery is at 75%-100%. I have had it since Aug. 29, 2017. The nuerosurgeon said it should last 3-4 years. Looks like I will hit 4-6 year, or hoping. Has picked up my attitude.
Cost:
< $25 monthly
Apr 23, 2019
(Started Dec 10, 1999)
-
Effectiveness
Moderate
(for epilepsy)
-
Side effects
Mild
(for Overall)
(coughing while drinking, dry cough, hoarseness)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Advice & Tips:
Various sensations. Pain when tashecadia turns it on in the hollow area under my addams apple. At various time theres a rapid pulsating sensation 1 or 1.5 inches above the middle of right clavicle. Sometimes along with the aura theres a super rapid tritchig on the inner side of the bicep on right arm
Cost:
< $25 monthly
Dec 1, 2018
(Started Dec 10, 1999)
-
Effectiveness
Moderate
(for epilepsy)
-
Side effects
Mild
(for Overall)
(coughing while drinking, dry cough, hoarseness)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Sep 8, 2018
(Started Dec 10, 1999)
-
Effectiveness
Moderate
(for epilepsy)
-
Side effects
Mild
(for Overall)
(coughing while drinking, dry cough, hoarseness)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Advice & Tips:
still hoarse some and only have problem swallowing a drink when the Tachecardia sensor turns it on.
Cost:
< $25 monthly
May 9, 2018
(Started Dec 10, 1999)
-
Effectiveness
Moderate
(for epilepsy)
-
Side effects
Mild
(for Overall)
(coughing while drinking, dry cough, hoarseness)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Nov 16, 2017
(Started Dec 10, 1999)
-
Effectiveness
Moderate
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Advice & Tips:
left lead has 2 wires and the new VNS's have 1. So had to get a new lead on mt right sideon 8/29/17.
Cost:
< $25 monthly
Dec 11, 2016
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
Mild
(for Overall)
(dry cough, hoarseness)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Oct 14, 2016
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
Mild
(for Overall)
(dry cough, hoarseness)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Advice & Tips:
Ever since increasing the frequency last time my seizures dropped at a very noticlable rate unless I was very stressed. The end of September I noticed the hiccups happen only after using the magnet. So I want magnet lowered to match when the VNS goes off normally. I want what ever they did increased by half.
Cost:
< $25 monthly
May 24, 2016
(Started Dec 10, 1999)
-
Effectiveness
Moderate
(for epilepsy)
-
Side effects
Mild
(for Overall)
(dry cough, hoarseness)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Apr 26, 2016
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Advice & Tips:
Was implanted 8/12/09 and on my last study visit approx January 2014 it was at 50%. my first clinic on 2/13/14 its still 50%. On 1/18/16 it was raised along with my Aptiom. Seizures Decreased but not sure why, still at 50%. At this appointment 4/25/16 it was increased again along with making the maknet setting higher. Was STILL at 50%.
I asked his nurse and was told so BS excuse that is where it should be. you Mean to tell me that in 5 years 4 months I used 50%. But 2 years 5 months later It is common to have not used even 1%. I think it should have at least used 5-10%.
Cost:
< $25 monthly
Nov 12, 2015
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Advice & Tips:
no packing list.
Cost:
< $25 monthly
Feb 19, 2015
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Jan 21, 2015
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Advice & Tips:
the last replacement of the generator was 8-12-2009. not sure how much more juice this uses now since increased. After my last visit in December 18th 2014 the seizure have gone down the following week but are back up now. I have had 136 in the past 4 weeks according to this.
Cost:
< $25 monthly
Dec 20, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Nov 28, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Nov 18, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
Mild
(for Overall)
(hoarseness)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Advice & Tips:
the cough lasted only 2 hours after the increase.
Cost:
< $25 monthly
Nov 3, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Oct 24, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Advice & Tips:
wanna raise strength maybe frequency.
Cost:
< $25 monthly
Oct 21, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Oct 17, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Oct 14, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Oct 12, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Advice & Tips:
eanna raise it or the frequency.
Cost:
< $25 monthly
Oct 11, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Oct 9, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Advice & Tips:
curious about raising it. Since being replaced it has only been changed a couple times. I just dont want it to be as strong as the magnet. msybe legthen time on. Ask Dr. Labiner
Cost:
< $25 monthly
Oct 7, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Advice & Tips:
like to try to raise VNS a little. Dont think we do much but check it in the drug study may have raised the manual activation strength. Can't remember any other times.
Cost:
< $25 monthly
Oct 5, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Sep 26, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Sep 25, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Sep 18, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Sep 15, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Sep 12, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Advice & Tips:
at about 50% so have 4-5 more years on this one.
Cost:
< $25 monthly
Sep 10, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Sep 8, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Sep 4, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Aug 31, 2014
(Started Dec 10, 1999)
-
Effectiveness
Major
(for epilepsy)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
As needed
Cost:
< $25 monthly