113 patient evaluations for Topiramate

1,050 members have decided to share their profiles only with other members of PatientsLikeMe.

Jan 13, 2011 (Started Dec 21, 2009)

  • Effectiveness
    Major (for epilepsy)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Side effects: hands tingling, feet tingling, sleepiness, weight loss, erectile dysfunction, erectile dysfunction

Dec 20, 2010 (Started Dec 21, 2009)

  • Effectiveness
    Major (for epilepsy)
  • Side effects
    Moderate (for Overall) (weight loss, feet tingling, hands tingling, sleepiness, erectile dysfunction)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Side effects: hands tingling, feet tingling, sleepiness, weight loss, erectile dysfunction, erectile dysfunction

Dec 13, 2010 (Started Dec 21, 2009)

  • Effectiveness
    Major (for epilepsy)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Side effects: hands tingling, feet tingling, sleepiness, weight loss, erectile dysfunction, erectile dysfunction

Jun 10, 2010 (Started Dec 21, 2009)

  • Effectiveness
    Major (for epilepsy)
  • Side effects
    Moderate (for Overall) (weight loss, feet tingling, hands tingling, sleepiness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Side effects: hands tingling, feet tingling, sleepiness, weight loss, erectile dysfunction, erectile dysfunction

Mar 22, 2010 (Started Dec 21, 2009)

  • Effectiveness
    Major (for epilepsy)
  • Side effects
    Mild (for Overall) (weight loss, feet tingling, hands tingling, sleepiness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Side effects: hands tingling, feet tingling, sleepiness, weight loss, erectile dysfunction, erectile dysfunction

Mar 17, 2010 (Started Dec 21, 2009)

  • Effectiveness
    Major (for epilepsy)
  • Side effects
    Mild (for Overall) (weight loss, feet tingling, hands tingling, sleepiness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Side effects: hands tingling, feet tingling, sleepiness, weight loss, erectile dysfunction, erectile dysfunction

  • 0 helpful marks

Jan 2, 2011 (Started Jul 01, 2010)

  • Effectiveness
    Moderate (for Support weight loss)
  • Side effects
    Moderate (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: I originally took Topiramate because I was (wrongly)diagnosed with chronic migraines. On it, I lost 20 pounds. Since getting my diagnosis of Fibromyalgia, I have since gained 40 pounds. My doctor and I have decided that going back on Topiramate might help me get back to a healthy weight. HOWEVER, I think that the Topiramate is causing me to have increased pain and increased intestinal distress. In addition, the weight loss has been minimal. All of the other medications are too strong for the topiramate's weight-loss effects too take effect.

  • 0 helpful marks

Nov 4, 2010 (Started Oct 17, 2010)

  • Effectiveness
    Slight (for migraine headaches)
  • Side effects
    Severe (for Overall) (drowsiness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg Daily
Cost: < $25 monthly
Side effects: drowsiness

  • 0 helpful marks

Sep 30, 2010 (Started Sep 03, 2010)

  • Effectiveness
    Moderate (for anxious mood)
  • Effectiveness
    Slight (for neuropathic pain- waist down and hands)
  • Side effects
    Mild (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Oct 27, 2010 (Started Jan 01, 2004)

  • Effectiveness
    Moderate (for epilepsy)
  • Side effects
    Severe (for Overall) (weight loss, blurry vision, hearing problems, unexplained itching)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: Hearing loss is becoming more obvious, vision problems are rapidly becoming a problem also. itching of my larger skin areas is an unusual and new problem that could maybe be due to Topamax or the antidepressant Prozac, unsure about this. I have had terrible crying jags and depression over inappropriate issues in the last year or so that was assumed to be due to my aging process, but was recently debunked by a hormonal test. I therefore believe that the Topamax is a more likely suspect.
Cost: < $25 monthly
Side effects: weight loss, blurry vision, hearing problems, unexplained itching, unexplained itching

Feb 15, 2010 (Started Jan 01, 2004)

  • Effectiveness
    Major (for epilepsy)
  • Side effects
    Moderate (for Overall) (weight loss, blurry vision, hearing problems)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: The side effects of Topamax are really tough, but not as tough as others, and certainly not as tough as beating the heck out of yourself and frying your brain during a seizure. I never miss a dose, if I do, I could really end up hurting myself. I take it as exactly to the minute as I can, I do the same with all my meds, and for the last several years since I have been doing this, my seizures have been much less invasive into my life. I also NEVER NEVER take generic epilepsy medication. It must be brand always! Generic is NOT the same, no matter who insists that it is. I can take generic on other medication, but generic Topamax allowed me to have 3 months of severe cluster seizures last year.
Cost: < $25 monthly
Side effects: weight loss, blurry vision, hearing problems, unexplained itching, unexplained itching

  • 2 helpful marks

Oct 13, 2010 (Started Jan 01, 2000)

  • Effectiveness
    Moderate (for epilepsy)
  • Side effects
    Moderate (for Overall) (bumps on face)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 500 mg Daily
Cost: < $25 monthly
Side effects: bumps on face

  • 0 helpful marks

Oct 1, 2009 (Started Oct 17, 2003)

  • Effectiveness
    Slight (for migraine headaches)
  • Side effects
    Severe (for Overall)
  • Adherence
    Always
  • Burden
    Somewhat hard to take

  • 0 helpful marks

Sep 13, 2010 (Started Sep 13, 2009)

  • Effectiveness
    Moderate (for migraine headaches)
  • Side effects
    Mild (for Overall) (hands tingling)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 150 mg Daily
Side effects: hands tingling

  • 0 helpful marks

Sep 8, 2010 (Started Nov 01, 2009)

  • Effectiveness
    Moderate (for Increase effect of another treatment)
  • Effectiveness
    Major (for headaches)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Mar 1, 2010 (Started Jan 05, 2010)

  • Effectiveness
    Slight (for fibromyalgia)
  • Effectiveness
    Slight (for depressed mood)
  • Side effects
    Severe (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg Daily
Advice & Tips: it caused severe dry mouth, I now have a hard time making my own saliva. And it ruined my teeth because of the dry mouth.

  • 1 helpful mark
Last updated:
Showing 10 of 113 patient evaluations for Topiramate