Jan 15, 2013
(Started Apr 05, 2010)
-
Effectiveness
Can't tell
(for amyotrophic lateral sclerosis)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
100 mg
Daily
Advice & Tips:
After the criteria for acceptance into the patient assistance program changed and after discussing it with my neurologist we determined that the cost far outweighed the benefits.
Cost:
< $25 monthly
Jun 17, 2011
(Started Apr 05, 2010)
-
Effectiveness
Can't tell
(for amyotrophic lateral sclerosis)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
100 mg
Daily
Cost:
< $25 monthly
Dec 22, 2010
(Started Apr 05, 2010)
-
Effectiveness
Slight
(for amyotrophic lateral sclerosis)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
100 mg
Daily
Advice & Tips:
Rilutek is expensive but I am currently on a Patient Assistance Program sponsored by the manufacturer that offers the medication at no charge. I do believe that it has slowed the progression to some degree. Information about this program can be found by contacting Sanofi Aventis directly or through NORD, the National Organization for Rare Disorders.
Cost:
$200+ monthly
Sep 19, 2010
(Started Apr 05, 2010)
-
Effectiveness
Can't tell
(for amyotrophic lateral sclerosis)
-
Side effects
None
(for Overall)
-
-
Burden
Somewhat hard to take
Dosage:
100 mg
Daily
Advice & Tips:
It is expensive if you do not have insurance, and some insurance policies do not cover it. However there is some help from the manufacturer through a program called the Rilutek continuity program. You can contact him directly at 1-800-745-8835. Cost listed below is without this program.
Cost:
$200+ monthly