108 patient evaluations for Riluzole

860 members have decided to share their profiles only with other members of PatientsLikeMe.

Nov 15, 2009 (Started Aug 07, 2008)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: I will take any medication that the medical community recommendends. It has helped my Crohn's Disease.
Cost: $200+ monthly

  • 0 helpful marks

Nov 13, 2009 (Started Sep 19, 2008)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Cost: $50-99 monthly

Aug 10, 2009 (Started Sep 19, 2008)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily

May 23, 2009 (Started Sep 19, 2008)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Cost: $50-99 monthly

Feb 18, 2009 (Started Sep 19, 2008)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Cost: $50-99 monthly

Nov 20, 2008 (Started Sep 19, 2008)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily

  • 1 helpful mark

Nov 9, 2009 (Started Apr 08, 2009)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (for Overall) (fatigue, tachycardia (fast heart rate))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: The only proven treatment: so I will keep on taking it.
Cost: < $25 monthly
Side effects: tachycardia (fast heart rate), fatigue, fatigue

Sep 20, 2009 (Started Apr 08, 2009)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (for Overall) (fatigue, tachycardia (fast heart rate))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: Can't tell if it helps. But I have seen the statistics: so I keep on taking it. I just believe it helps, even if I cant be sure.
Cost: < $25 monthly
Side effects: tachycardia (fast heart rate), fatigue, fatigue

May 10, 2009 (Started Apr 08, 2009)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly
Side effects: tachycardia (fast heart rate), fatigue, fatigue

  • 0 helpful marks

Oct 3, 2009 (Started Feb 27, 2009)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily

  • 0 helpful marks

Sep 21, 2009 (Started May 21, 2009)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: $200+ monthly

  • 0 helpful marks

Aug 3, 2009 (Started Mar 10, 2009)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 1 helpful mark

Jul 18, 2009 (Started May 03, 2009)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: Don't think it's the "Silver Bullet"
Cost: $50-99 monthly
Side effects: abdominal pain, stomach pain, nausea

May 3, 2009 (Started May 03, 2009)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (for Overall) (nausea)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 100 mg Daily
Advice & Tips: Stay close to the bathroom
Cost: $50-99 monthly
Side effects: abdominal pain, stomach pain, nausea

  • 1 helpful mark

Jun 16, 2009 (Started Dec 20, 2008)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Sometimes
  • Burden
    Somewhat hard to take
Dosage: 100 mg Daily
Advice & Tips: Stick to a consistent schedule for awakening, meal times and getting to bed.
Cost: $25-49 monthly

  • 1 helpful mark

Mar 30, 2009 (Started Mar 30, 1998)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks

Feb 24, 2009 (Started Jan 16, 2009)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 10 of 108 patient evaluations for Riluzole