108 patient evaluations for Riluzole

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May 15, 2010 (Started Feb 15, 2007)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
  • 0 helpful marks

May 7, 2010 (Started Jan 09, 2010)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (for Overall) (nausea and vomiting)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 100 mg Daily
Advice & Tips: The side effects for the first two months were pretty bad.I had trouble keeping any food down in the mornings and I got really dizzy at times. then the side effects eased off about 85% and I am doing better.
Cost: $25-49 monthly
Side effects: nausea and vomiting
  • 0 helpful marks

May 1, 2010 (Started Sep 29, 2009)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: Remembering to take it at appropriate times, time before or after meals.
Cost: $50-99 monthly
  • 0 helpful marks

Mar 20, 2010 (Started Dec 14, 2008)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (for Overall) (difficulty staying asleep)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 100 mg Daily
Side effects: difficulty staying asleep
  • 0 helpful marks

Mar 17, 2010 (Started Dec 15, 2004)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: started on Hospice; did not make sense therefore to continue. I am ready to die. No problem - I expected this and planned for it when the time came.
  • 0 helpful marks

Mar 31, 2010 (Started Feb 09, 2010)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: I don't know how this treatment is working for me. I figure take it, it may help
Cost: $50-99 monthly
  • 0 helpful marks

Mar 2, 2010 (Started Jun 22, 2006)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Cost: $25-49 monthly
  • 0 helpful marks

Jan 28, 2010 (Started Feb 11, 2007)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

Oct 26, 2009 (Started Feb 11, 2007)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

Aug 19, 2008 (Started Feb 11, 2007)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Advice & Tips: MY DOCTOR SAYS MAKE SURE I TAKE IT SO I DO
Cost: < $25 monthly
  • 1 helpful mark

Jan 21, 2010 (Started Mar 30, 2002)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: Initially it made me more tired but i seemed to get used to it. (Jan 2008) After 6 years with MND I reduced my daily dose by half with seemingly no affect to my progression rate.
  • 0 helpful marks

Nov 5, 2009 (Started Sep 05, 2000)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: HELPS WITH ALS

Jul 1, 2009 (Started Sep 05, 2000)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: survivor it is

Jan 16, 2009 (Started Sep 05, 2000)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
  • 1 helpful mark
Last updated:
Showing 10 of 108 patient evaluations for Riluzole