108 patient evaluations for Riluzole

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Nov 12, 2010 (Started Jul 14, 2010)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: $200+ monthly

Sep 2, 2010 (Started Jul 14, 2010)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 100 mg Daily
Advice & Tips: The directions say to take 12 hours apart and either 1 hour before or 2 hours after eating. This is easy in the morning because my husband brings the pill and some water to me at 6:00 a.m., and I don't get up until after 8 a.m. usually. It's harder to schedule my meals in the evening, however, so I take it again at 5:00 p.m. if I'm already hungry then, or at 6:00 p.m., but sometimes I've eaten just before or after taking the evening dose. I don't know if this really matters or not.
Cost: $200+ monthly
  • 0 helpful marks

Nov 8, 2010 (Started Jan 10, 2010)

  • Effectiveness
    Slight (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: marked reduction in fascics since moving to 100mg twice daily, although leg strength continues to decline.
Cost: < $25 monthly
  • 0 helpful marks

Oct 15, 2010 (Started Jun 01, 2009)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 50 mg Daily
  • 0 helpful marks

Oct 12, 2010 (Started Jun 08, 2010)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: $200+ monthly
  • 0 helpful marks

Oct 5, 2010 (Started Mar 12, 2010)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (for Overall) (tiredness)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 50 mg Daily
Cost: $25-49 monthly
Side effects: tiredness

Jun 30, 2010 (Started Mar 12, 2010)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (for Overall) (tiredness)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Advice & Tips: I made a decision that 10% increased lifespan from onset was not worth being very sleepy all the time. I would rather require far less sleep each day than live slightly longer. I am typing this about 10 days after stopping and have enjoyed being far less tired. I wasn't sure if tiredness was a symptom of ALS or side effect of Rilutek. I have now confirmed it was a side effect of Rilutek.
Cost: $25-49 monthly
Side effects: tiredness

Apr 12, 2010 (Started Mar 12, 2010)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: $25-49 monthly
Side effects: tiredness
  • 0 helpful marks

Oct 2, 2010 (Started Aug 23, 2009)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: STUDY MEDICATION
  • 0 helpful marks

Sep 30, 2010 (Started Mar 16, 2000)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly
  • 0 helpful marks

Sep 3, 2010 (Started Sep 20, 2006)

  • Effectiveness
    Can't tell (for fatigue)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Advice & Tips: Taken once in the morning and once at bedtime, about 12 hours apart. Unsure of effectiveness but disease has progressed slower than originally anticipated. I have been taking Rilutek since October of 2006. Currently purchasing under Medicare as a tier 4 drug. When in the doughnut hole the cost is approximately $985 per month.
Cost: $200+ monthly
  • 0 helpful marks

Sep 3, 2010 (Started Feb 06, 2007)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: I don't have problems with Saliva so maybe it's working.
Cost: $25-49 monthly
  • 0 helpful marks

Sep 3, 2010 (Started Jun 25, 2004)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly
  • 0 helpful marks
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