108 patient evaluations for Riluzole

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Mar 30, 2009 (Started Mar 30, 1998)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks

Sep 21, 2009 (Started May 21, 2009)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: $200+ monthly

  • 0 helpful marks

Oct 3, 2009 (Started Feb 27, 2009)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily

  • 0 helpful marks

Nov 9, 2009 (Started Apr 08, 2009)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (for Overall) (fatigue, tachycardia (fast heart rate))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: The only proven treatment: so I will keep on taking it.
Cost: < $25 monthly
Side effects: tachycardia (fast heart rate), fatigue, fatigue

Sep 20, 2009 (Started Apr 08, 2009)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (for Overall) (fatigue, tachycardia (fast heart rate))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: Can't tell if it helps. But I have seen the statistics: so I keep on taking it. I just believe it helps, even if I cant be sure.
Cost: < $25 monthly
Side effects: tachycardia (fast heart rate), fatigue, fatigue

May 10, 2009 (Started Apr 08, 2009)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly
Side effects: tachycardia (fast heart rate), fatigue, fatigue

  • 0 helpful marks

Nov 15, 2009 (Started Aug 07, 2008)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: I will take any medication that the medical community recommendends. It has helped my Crohn's Disease.
Cost: $200+ monthly

  • 0 helpful marks

Jan 21, 2010 (Started Mar 30, 2002)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: Initially it made me more tired but i seemed to get used to it. (Jan 2008) After 6 years with MND I reduced my daily dose by half with seemingly no affect to my progression rate.

  • 0 helpful marks

Mar 2, 2010 (Started Jun 22, 2006)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Cost: $25-49 monthly

  • 0 helpful marks

Mar 31, 2010 (Started Feb 09, 2010)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: I don't know how this treatment is working for me. I figure take it, it may help
Cost: $50-99 monthly

  • 0 helpful marks

Mar 17, 2010 (Started Dec 15, 2004)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: started on Hospice; did not make sense therefore to continue. I am ready to die. No problem - I expected this and planned for it when the time came.

  • 0 helpful marks

Mar 20, 2010 (Started Dec 14, 2008)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (for Overall) (difficulty staying asleep)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 100 mg Daily
Side effects: difficulty staying asleep

  • 0 helpful marks
Last updated:
Showing 10 of 108 patient evaluations for Riluzole