Aug 10, 2012
(Started Oct 19, 2009)
-
Effectiveness
Can't tell
(for amyotrophic lateral sclerosis)
-
Side effects
None
(for Overall)
-
-
Burden
Not at all hard to take
Dosage:
100 mg
Daily
Advice & Tips:
it may have been effective, after all I am 40 months on since diagnosis. I have stopped taking it now that I am almost physically incapable. I don't relish the prospect of spending an extra three months in physical decrepitude.
Cost:
< $25 monthly
Side effects:
complete exhaustion
Apr 30, 2010
(Started Oct 19, 2009)
-
Effectiveness
Can't tell
(for amyotrophic lateral sclerosis)
-
Side effects
Mild
(for Overall)
(complete exhaustion)
-
-
Burden
Not at all hard to take
Dosage:
100 mg
Daily
Advice & Tips:
initially I was dreadfully tired and I thought I experienced a bad taste in my mouth but both effects wore off. As to the benefits of the treatment, what can I say, it's difficult to know if it helps, I've not had MND before. However, my MND has slow progression. It should benoted that in the UK there is no cost implication in the decision to take riluzole as the medication is paid for by the National Health Service and costs the patient $10 a month.
Cost:
< $25 monthly
Side effects:
complete exhaustion