132 patient evaluations for Carbidopa-Levodopa

1,398 members have decided to share their profiles only with other members of PatientsLikeMe.

Sort by: Helpfulness

Dec 15, 2015 (Started May 15, 2009)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 6 x 25 mg-100 mg Daily
Cost: < $25 monthly
  • 0 helpful marks

Mar 23, 2016 (Started Jul 16, 2014)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: < $25 monthly
  • 0 helpful marks

Apr 24, 2016 (Started Jun 30, 2012)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (involuntary movement)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: I look and feel better taking the meds.  My hand writing is much better.  I don't stare as much.  I move better.
Cost: < $25 monthly
  • 0 helpful marks

May 30, 2016 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Parkinson's disease)
  • Effectiveness
    Major (for tremor(s))
  • Side effects
    Moderate (for Overall) (fatigue, sleep problems, nausea, dizziness, balance problems, on to off fluctuations worsening, jerky movements)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 3 x 25-100 mg Five times daily
Cost: < $25 monthly
Side effects: dizziness, sleep problems, nausea, fatigue

Jan 9, 2014 (Started Aug 26, 2008)

  • Effectiveness
    Major (for tremor(s))
  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate (for Overall) (fatigue, sleep problems, nausea, dizziness)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 10 x 25 mg-100 mg Daily
Advice & Tips: This medication appears to be the primary building block with individuals having the type that I have (Mainly tremors and speech). It all too often happens that you feel so good that you fail to realize that it is time for another dose. Stress is a big factor in the degree of symptoms experienced. In stressful situations I sometimes take an addition pill. This seems to help.
Cost: < $25 monthly
Side effects: dizziness, sleep problems, nausea, fatigue

Mar 25, 2013 (Started Aug 26, 2008)

  • Effectiveness
    Major (for tremor(s))
  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (fatigue, sleep problems, nausea, dizziness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 x 25 mg-100 mg Daily
Cost: < $25 monthly
Side effects: dizziness, sleep problems, nausea, fatigue

Feb 13, 2012 (Started Aug 26, 2008)

  • Effectiveness
    Major (for tremor(s))
  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (fatigue, sleep problems, nausea, dizziness)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 10 x 25 mg-100 mg Daily
Cost: < $25 monthly
Side effects: dizziness, sleep problems, nausea, fatigue

Jan 27, 2009 (Started Aug 26, 2008)

  • Effectiveness
    Major (for Parkinson's disease)
  • Effectiveness
    Major (for tremor(s))
  • Side effects
    Moderate (for Overall) (fatigue, sleep problems, nausea, dizziness)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 2 x 25 mg-100 mg Daily
Cost: < $25 monthly
Side effects: dizziness, sleep problems, nausea, fatigue

Dec 1, 2008 (Started Aug 26, 2008)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Effectiveness
    Slight (for tremor(s))
  • Side effects
    Mild (for Overall) (sleep problems, nausea)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 2 x 25 mg-100 mg Daily
Advice & Tips: uncertain at this point
Cost: < $25 monthly
Side effects: dizziness, sleep problems, nausea, fatigue
  • 0 helpful marks

Jun 11, 2016 (Started Sep 15, 2010)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate (for Overall) (nausea and vomiting, muscle and joint pain)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 12 x 25-100 mg Five times daily
Advice & Tips: During a month long stay in hospital I did not have a problem with the nausea and vomiting.
Cost: $25-49 monthly

Jun 30, 2013 (Started Sep 15, 2010)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (nausea and vomiting)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 4 x 25 mg-100 mg Daily
Advice & Tips: In spite of the recommendation of taking the pills an hour before eating, I take it with food.
Cost: $25-49 monthly
  • 0 helpful marks

Jul 31, 2015 (Started Aug 31, 2010)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (jerky movements, excessive daytime sleepiness (somnolence))
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 3 x 25 mg-100 mg Daily
Advice & Tips: I stopped this formulation to try Rytary.
Cost: < $25 monthly
Side effects: excessive daytime sleepiness (somnolence)

Mar 2, 2012 (Started Aug 31, 2010)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Moderate (for Overall) (jerky movements, excessive daytime sleepiness (somnolence))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 x 25 mg-100 mg Daily
Cost: < $25 monthly
Side effects: excessive daytime sleepiness (somnolence)

Aug 23, 2011 (Started Aug 31, 2010)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate (for Overall) (jerky movements, excessive daytime sleepiness (somnolence))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 x 25 mg-100 mg Daily
Advice & Tips: When I first started this 11 months ago, I felt so light and free on my feet. Much easier to type. Much more effective than Mirapex which made me tired). Then, I started getting more rigid, so the Dr increased the dose from from 1 tab 3x a day to 1.5 tabs 3x a day. I developed dyskenisia immediatley. Very disappointed, but he said i was very sensitive to it and that is also good. So, I dropped back to 1 tab 3x a day with the addition of amantadine 100mg 2x a day. I may experiment with 1.25tabs dosage to try to get the max. Dr said increasing the amantadine may contribute to insomnia.
Cost: < $25 monthly
Side effects: excessive daytime sleepiness (somnolence)
  • 0 helpful marks

Sep 19, 2016 (Started Aug 15, 2016)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (nausea)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2 x 50-200 mg Daily
  • 0 helpful marks

Sep 23, 2016 (Started Jul 27, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (jerky movements)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Advice & Tips: Have stopped this and have been on Rytary since about August 2015
Cost: < $25 monthly
Side effects: jerky movements

Oct 15, 2015 (Started Jul 27, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (jerky movements)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: As needed
Advice & Tips: Rytary is better. It gives me a much smoother delivery.
Cost: < $25 monthly
Side effects: jerky movements

Feb 1, 2015 (Started Jul 27, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (jerky movements)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As needed
Advice & Tips: On the average, it is best to take 0.75 tablet every 4.00 to 4.25 hrs. If I am doing something physical like a long walk or if I have to keep moving my whole body for 2-3 hours, then 1.00 tablet. Do not do this if sitting at a desk-dyskinesia.
Cost: < $25 monthly
Side effects: jerky movements

Nov 8, 2014 (Started Jul 27, 2011)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Moderate (for Overall) (jerky movements)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: As needed
Advice & Tips: It's the fall/winter season, and I made a med change. IT coincides with the daylight getting shorter. About mid-to late Sept I increase the Cymbalta(depression) from 60mg to 120mg. This seems to affect how the L-dopa is metabolized. For a few weeks I was taking 1 whole tablet (100/25), every 5-6 hrs. The 0.75 dose wasn't doing its work. I also start on modafinil for alertness. Due to Rx screw up I wasn't able to start in Oct, but had to start in Nov. I was maintaining, but now I feel better with the modafinil. Like someone turning up the TV brightness switch just a little bit. But now I think I am very sensitive to the amount of L-dopa. I will work it out.
Cost: < $25 monthly
Side effects: jerky movements

Apr 18, 2013 (Started Jul 27, 2011)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Moderate (for Overall) (jerky movements)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As needed
Advice & Tips: This survey doesn't account for the way i take L-dopa. I started out at 1 tablet every 6 hours. Now I am at 0.75 tablet every 4 hours. So this means i am taking a smaller dose at more frequent intervals as Parkinson's progresses. If I take more than needed, the dyskinesia starts. If I go too long without a dose (usually sitting at work or computer), forget to take it, hand tremor starts.
Cost: < $25 monthly
Side effects: jerky movements
  • 0 helpful marks

Oct 11, 2016 (Started Jun 30, 2012)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (freezing of gait)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 25-250 mg Four times daily
Advice & Tips: n/a
Cost: < $25 monthly
  • 0 helpful marks

Nov 10, 2016 (Started Jan 20, 2009)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (jerky movements)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25-250 mg Five times daily
Cost: $25-49 monthly

May 26, 2015 (Started Jan 20, 2009)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate (for Overall) (jerky movements)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 4 x 25 mg-250 mg Daily
Cost: < $25 monthly

May 19, 2013 (Started Jan 20, 2009)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (jerky movements)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 4 x 25 mg-100 mg Daily
Advice & Tips: I use a talking alarm watch to help me take my medication on time.
Cost: < $25 monthly

May 24, 2009 (Started Jan 20, 2009)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2 x 25 mg-100 mg Daily
Advice & Tips: Take your pills on time
Cost: $25-49 monthly
  • 0 helpful marks
Last updated:
Showing 10 of 132 patient evaluations for Carbidopa-Levodopa