108 patient evaluations for Natalizumab

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Jan 10, 2011 (Started May 07, 2009)

  • Effectiveness
    Major (for Support quality of life)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL every 4 weeks
  • 0 helpful marks

Nov 11, 2010 (Started May 26, 2009)

  • Effectiveness
    Slight (for multiple sclerosis)
  • Side effects
    Moderate (for Overall) (jerky movements)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: clicking noise in ears was very bothersome for my sleep
Cost: $50-99 monthly
Side effects: jerky movements

May 13, 2010 (Started May 26, 2009)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: $50-99 monthly
Side effects: jerky movements
  • 0 helpful marks

Nov 2, 2010 (Started Jun 01, 2007)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: recommend - follow up with jcv tests
Cost: $25-49 monthly
  • 0 helpful marks

Oct 20, 2010 (Started Jul 23, 2008)

  • Effectiveness
    Slight (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: Monthly

Sep 28, 2008 (Started Jul 23, 2008)

  • Effectiveness
    Slight (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Monthly
  • 0 helpful marks

Oct 31, 2009 (Started May 12, 2008)

  • Effectiveness
    None (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Monthly
Cost: $200+ monthly
  • 0 helpful marks

Sep 21, 2010 (Started Aug 19, 2009)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Severe (for Overall) (weakness in leg(s), weakness in left leg, weakness in hips)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: became much more disabled while on it. Tested for PML, antibodies,new lesions,active lesions. All tests came back "normal". Was getting much better from a relapse before starting tysabri. once tysabri was in system,worsening disability started and progressed throughout the year of being on it.
Cost: < $25 monthly
Side effects: weakness in hips, weakness in left leg, weakness in leg(s), weakness in leg(s)
  • 0 helpful marks

Jun 10, 2010 (Started Aug 10, 2008)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Mild (for Overall) (itching)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: This worked very well.My timeline on the treatment was up and we decided to try something else for a while.
Cost: < $25 monthly
Side effects: itching

Jan 20, 2010 (Started Aug 10, 2008)

  • Effectiveness
    Slight (for multiple sclerosis)
  • Side effects
    Mild (for Overall) (itching)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I have not had any major relaspses since I started tysabri .There was some side effects when I first started taking it ,but not as much now.I am getting around a little better now.It seems there are more good days then bad.
Cost: < $25 monthly
Side effects: itching
  • 1 helpful mark

Sep 14, 2010 (Started Jul 08, 2010)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Moderate (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL Monthly
Cost: < $25 monthly
  • 0 helpful marks

Feb 15, 2010 (Started Feb 12, 2010)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: i am allergic.
Side effects: sleepiness

Feb 12, 2010 (Started Feb 12, 2010)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Mild (for Overall) (sleepiness)
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: i got a rash 2 days later. a month later i got a blood test saying that i was allergic tysabri.
Side effects: sleepiness
  • 1 helpful mark

Aug 20, 2010 (Started Oct 15, 2008)

  • Effectiveness
    None (for multiple sclerosis)
  • Side effects
    Severe (for Overall) (generalized weakness (asthenia), excessive daytime sleepiness (somnolence), brain fog, losing train of thought, loss of short term memory, addiction, vision problem due to fatigue heat and stress, difficulty staying asleep)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Make sure that you have taken the new test to see if you have a chance of getting pml. I have been sick since October of 2009 with severe side effects if Tysabri. I had twenty four monthly treatments and shoul have had no more than 20 without a 6 month "vacation". From October through june of 2010 I spend most of every day in bed. I virtually have no memory of the eight months and was offered no assisatnce from Biogen or their partners it was as if I did not exist. every morning I awoke I felt blessed by GOD. I know that God healed me from the severe effects of Tysabri.
Cost: $200+ monthly
Side effects: difficulty staying asleep, addiction, vision problem due to fatigue heat and stress, excessive daytime sleepiness (somnolence), brain fog, losing train of thought, generalized weakness (asthenia), loss of short term memory

Jan 11, 2010 (Started Oct 15, 2008)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Severe (for Overall) (generalized weakness (asthenia), excessive daytime sleepiness (somnolence), brain fog, losing train of thought, loss of short term memory, addiction, vision problem due to fatigue heat and stress, difficulty staying asleep)
  • Adherence
    Always
  • Burden
    A little hard to take
Advice & Tips: The treatment was effective for the first 23 monthly treatments. However the treatments have lost their effectiveness. I now have every side effect attributed to PML. I would not recommend this treatment side effects to dangerous to consider and fatal.I am still alive but been extremely sick since October of 3009, I understand a tet will soon be available that will tell if you can take Tysabri by testine for the antigens. positive test dont take negative test ok.
Cost: $200+ monthly
Side effects: difficulty staying asleep, addiction, vision problem due to fatigue heat and stress, excessive daytime sleepiness (somnolence), brain fog, losing train of thought, generalized weakness (asthenia), loss of short term memory
  • 3 helpful marks
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