108 patient evaluations for Natalizumab

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Feb 18, 2012 (Started Jan 18, 2012)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Moderate (for Overall) (stiffness/spasticity, back pain, headaches, chills, fatigue, tiredness, whole body ache)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 300 mg/15 mL Monthly
  • 0 helpful marks

Oct 10, 2011 (Started Oct 09, 2012)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
  • 0 helpful marks

Apr 1, 2011 (Started Mar 09, 2009)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (for Overall) (tiredness)
  • Adherence
    Usually
  • Burden
    Very hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: < $25 monthly

Oct 10, 2009 (Started Mar 09, 2009)

  • Effectiveness
    Slight (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Sometimes
  • Burden
    Very hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I'd love to experience the fullness of this MS med since I have had only 3 monthly treatments since March '09. <------ Going on 7 months w/ only 3 administered infusion therapies. **rolls eyes/shakes head** {Medicaid is willing to pay its share of $18. But only after Medicare stops giving my doctor's office & myself a hard time & pay the balance. Now the pharmaceutical company is stepping in b/c they know MS meds need to be consistent.}
Cost: < $25 monthly
  • 0 helpful marks

Sep 1, 2011 (Started Jul 23, 2009)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: It seemed to make me fell better after 1 week then about 1 week before my next treatment I started feeling crummy again. I had a flair up and stopped using the drug.
  • 0 helpful marks

Sep 8, 2011 (Started Oct 08, 2009)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Severe (for Overall) (eczema, shingles rash, genital herpes)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I tested positive for jc virus. I experienced side effects such as shingles, herpes, and excema.
  • 1 helpful mark

Aug 26, 1900 (Started Feb 03, 2006)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: This is not a cure but it has allowed me to drive again. I can take myself t a store go ut with friends to dinner. I can go with a friend to a doctor as long as it is local. It has given me back my independence. Do I worry about PML? Not in the least. I have never taken anything other than Copaxone and have ony had steroids twice in 45 years. I'm basically a medication Virgin
Cost: $50-99 monthly
  • 0 helpful marks

Jul 25, 2011 (Started Dec 01, 2007)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: I have been on Tysabri for several years now and I am totally happy with my therapy. I did have to get a port last summer, however it makes my infusions so much easier! It is working well for me.
Cost: $200+ monthly

May 18, 2009 (Started Dec 01, 2007)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: The expense is my only complaint. I have pretty good insurance and it's still expensive for me. I have friends who don't pay quite as much though???
Cost: $100-199 monthly
  • 3 helpful marks

Mar 30, 2011 (Started Mar 17, 2011)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Never taken as prescribed
  • Burden
    Very hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: < $25 monthly
Side effects: headaches
  • 0 helpful marks

May 17, 2011 (Started Aug 31, 2008)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (for Overall) (lethargy)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: For people who have been advised that their symptoms to not warrant the risks associated with Tysabri, I would encourage them to expect more from their MS treatment. I have not had any worsening of my symptoms since starting the drug 2 1/2 years ago, and gained back some of my energy! I started taking it due to adverse reactions to my prior medication, not because my symptoms were uncontrolled. I am so glad I made the switch and that my Dr. was behind it. I don't believe that I have to be struggling with this disease day to day or have an expectation that it will get worse. When I meet other people with MS who say they aren't "bad enough" to go on Tysabri, it really bothers me b/c my personal goal is to be as symptom free as possible. If you can't work due to your illness, struggle to do normal physical activities, or take a ton of other medication to lessen your symptoms, I think you should consider another form of treatment!
Side effects: lethargy
  • 4 helpful marks

Aug 1, 2009 (Started Jan 05, 2009)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
  • 0 helpful marks
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Showing 10 of 108 patient evaluations for Natalizumab