108 patient evaluations for Natalizumab

976 members have decided to share their profiles only with other members of PatientsLikeMe.

Sort by: Most recent

Dec 1, 2020 (Started Aug 29, 2007)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15ml Every 6 Weeks
Cost: $200+ monthly

Oct 9, 2014 (Started Aug 29, 2007)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: $200+ monthly

Mar 22, 2011 (Started Aug 29, 2007)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: $200+ monthly

Feb 27, 2010 (Started Aug 29, 2007)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: $200+ monthly
  • 1 helpful mark

Jul 16, 2020 (Started Nov 16, 2017)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15ml every 4 weeks
  • 0 helpful marks

Jul 29, 2020 (Started Jul 07, 2008)

  • Effectiveness
    Major (for multiple sclerosis)
  • Effectiveness
    Moderate (for balance problems)
  • Effectiveness
    Moderate (for Walking was getting worse)
  • Side effects
    Mild (for Overall) (feeling hot/overheating)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Cost: $200+ monthly

May 12, 2008 (Started Jul 07, 2008)

  • Effectiveness
    Slight (for Walking was getting worse)
  • Effectiveness
    Major (for multiple sclerosis)
  • Effectiveness
    Slight (for balance problems)
  • Side effects
    Mild (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: The treatment has worked wonders for me and i spent a year in the wheelchair and after 3 months on Tysabri, i git out the chair and now i walk with just walking aids. Just be positive when starting the treatment. I've had 27 Infusions so far and i always no when i'm due for my top up.
Cost: $200+ monthly
  • 0 helpful marks

Aug 16, 2018 (Started Aug 01, 2018)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15ml Monthly
  • 0 helpful marks

Mar 30, 2018 (Started Jul 01, 2014)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15ml every 4 weeks
Cost: < $25 monthly
  • 0 helpful marks

Mar 15, 2016 (Started Jun 01, 2007)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: Know your risk tolerance before you start, and then regularly ask what your current risk is when taking tysabri. It was great for me.
Cost: $50-99 monthly
Side effects: pain in hands

Jan 21, 2011 (Started Jun 01, 2007)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Mild (for Overall) (pain in hands)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: After I started taking this drug, I actually regained some function. I have been able to work myself back upto running 10k's. It has been a blessing. For more than a year, the day after the infussion was a great MS day. It was when I would feel my best. By the end of the cycle, I felt the withdrawl. Years later, the energy no longer really noticably spikes or dips. For the last few months, I have had increasing pains in my lower arms to my fingers with most recent pains in my fingers. Odd. Looking at list of possible side effects, I see joint pain listed. I can't say with any certainty the Tysabri causes the joint pain. It is but a guess...still, it is a concern I have that years of use may have a cumulative effect.
Cost: $50-99 monthly
Side effects: pain in hands
  • 0 helpful marks

Feb 27, 2017 (Started Jan 15, 2011)

  • Effectiveness
    Major (for General health)
  • Effectiveness
    None (for Improve mobility)
  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Moderate (for Overall) (slower gait, bowel problems)
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Advice & Tips: I completed almost five years on Tysabri. Unfortunately I was diagnosed with breast cancer this month. had to stop it and move to Rebif.

Jan 14, 2017 (Started Jan 15, 2011)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Severe (for Overall) (slower gait, bowel problems)
  • Adherence
    Sometimes
  • Burden
    Somewhat hard to take
Dosage: 300 mg/15 mL every 4 weeks
  • 0 helpful marks

Jan 19, 2017 (Started Aug 24, 2016)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15ml every 4 weeks
Advice & Tips: Headaches last two Days... Stress for the most part!! ReLax and Breathe!!
Cost: $25-49 monthly

Dec 14, 2016 (Started Aug 24, 2016)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15ml every 4 weeks
Advice & Tips: 5th IV Today... feeling great now...took wrong turn coming home..now on to meet client's and then HOME to see my husband!! It's his Birthday 59!!
Cost: $25-49 monthly

Dec 6, 2016 (Started Aug 24, 2016)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15ml every 4 weeks
Advice & Tips: Doing well only four times to the restroom during treatment~
Cost: $25-49 monthly

Dec 3, 2016 (Started Aug 24, 2016)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15ml every 4 weeks
Cost: $25-49 monthly

Nov 22, 2016 (Started Aug 24, 2016)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15ml every 4 weeks
Advice & Tips: I had water and drank water all week before treatment..stay away from alcohol
Cost: $25-49 monthly

Sep 17, 2016 (Started Aug 24, 2016)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15ml every 4 weeks
Advice & Tips: Bring something to drink and read when getting IV!
Cost: $25-49 monthly
  • 0 helpful marks

Mar 15, 2013 (Started Jan 06, 2011)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 30 mg Monthly
  • 0 helpful marks

Jul 20, 2016 (Started Jun 22, 2016)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Mild (for Overall) (fever)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15ml every 4 weeks
Advice & Tips: Feel slightly energetic for a few days after treatment. The side effect, fever, is for about an hour post infusion and it hits about 99deg but some acetaminophen and some bedrest clears it up.
Cost: < $25 monthly
  • 0 helpful marks
Last updated:
Showing 10 of 108 patient evaluations for Natalizumab