4 patient evaluations for Mycophenolic acid taken for the purpose of 'Transplant rejection prevention'

16 members have decided to share their profiles only with other members of PatientsLikeMe.

hunnybird
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hunnybird
Data Quality: 1 star
  • Sex: F
  • Age: 55y
  • Organ: Kidney
Quality of life:
  • Mental: None
  • Physical: None
  1. Kidney : 7y Transplanted
I have:
Kidney Transplant

See hunnybird's full Mycophenolic acid history

Jun 16, 2011 (Started Jun 06, 2009)

  • Effectiveness
    Major (for Transplant rejection prevention)
  • side effects
    Moderate (Cloudy thinking, Forgetfulness, Diarrhea)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 720 mg Daily
Cost: < $25 monthly
Side effects: Cloudy thinking, Forgetfulness, Diarrhea

  • 0 helpful marks
dazzler57
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dazzler57
Data Quality: 1 star
  • Sex: F
  • Age: 59y
  • Organ: Kidney
Quality of life:
  • Mental: Moderate
  • Physical: Mild
  1. Kidney : 13y Transplanted
I have:
Kidney Transplant

See dazzler57's full Mycophenolic acid history

Jan 1, 2011 (Started Feb 01, 2010)

  • Effectiveness
    Slight (for Transplant rejection prevention)
  • Effectiveness
    Slight (for Kidney transplant rejection and organ removal)
  • side effects
    Severe (Sick to my stomach, Diarrhea)
  • Adherence
    Sometimes
  • Burden
    Very hard to take
Dosage: 720 mg Daily
Advice & Tips: I am having extreme difficulty with this medication. In the middle of 2010, it attacked my uterus giving me so much bleeding and pain I had to have it removed. Doctors say that is not a side effect of this medication, I beg to differ. I still have much trouble with it causing extreme puking and Diarrhea always beginning with these rotten egg burps. My doctors say there is nothing else they can give me. I need to look into other doctors now. No benefits for this medication for me. It impacts my life badly.
Cost: $200+ monthly
Side effects: Sick to my stomach, Diarrhea

  • 0 helpful marks
Pedro0703
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Pedro0703
Data Quality: 1 star
  • Sex: F
  • Age: 37y
  • Organ: Kidney(3)
Quality of life:
  • Mental: None
  • Physical: None
  1. Kidney : 35y Transplanted
  2. Kidney : 22y Transplanted
  3. Kidney : 13y Transplanted
I have:
Kidney Transplant

See Pedro0703's full Mycophenolic acid history

Jun 28, 2010 (Started Aug 01, 2008)

  • Effectiveness
    Major (for Transplant rejection prevention)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 180 mg Daily
Advice & Tips: I was switched to Myfortic because I was taking cellcelpt and a biopsy showed cellcept colitis, it was aweful. I was taking 1000mg of that twice a day. Now on the myfortic, my Nephrologist started me on a low dose and it turns out that my labs stayed great on that low dose, so now I take 1 tab of 180mg twice a day and I have less pills. I have had no problems with this drug.
Cost: < $25 monthly

  • 0 helpful marks
Miss Meg Will
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Miss Meg Will
Data Quality: 1 star
  • Sex: F
  • Age: 28y
  • Organ: Heart
Quality of life:
  • Mental: Mild
  • Physical: None
  1. Heart : 10y Transplanted
I have:
Heart Transplant

See Miss Meg Will's full Mycophenolic acid history

Nov 11, 2007 (Started Nov 11, 2007)

  • Effectiveness
    Moderate (for GVHD (Graft Versus Host Disease))
  • Effectiveness
    Moderate (for Transplant rejection prevention)
  • side effects
    Mild (Nausea and vomiting)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 720 mg Daily
Side effects: Nausea and vomiting

  • 0 helpful marks
Last updated:
Showing 4 of 4 patient evaluations for Mycophenolic acid