5 patient evaluations for Primidone taken for the purpose of 'essential tremor'

30 members have decided to share their profiles only with other members of PatientsLikeMe.

Jun 24, 2015 (Started Jul 01, 2013)

  • Effectiveness
    Can’t tell (for essential tremor)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Aug 15, 2013 (Started Jul 01, 2011)

  • Effectiveness
    Moderate (for essential tremor)
  • Side effects
    Severe (Dizziness/walking like I'm drunk)
  • Adherence
    Sometimes
  • Burden
    A little hard to take
Dosage: 150 mg Daily
Cost: $25-49 monthly

  • 0 helpful marks

Oct 10, 2010 (Started Aug 01, 2010)

  • Effectiveness
    Moderate (for essential tremor)
  • Effectiveness
    Moderate (for Migraine headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: I am taking a low dose of this because of kidney disease, so be careful of that factor. I am taking it for seizures, chronic migraine headaches, and essential tremor. It works best on the headaches, though it isn't perfect. Same with the essential tremor, although I can use my hands better and write my name well again. It has helped my daily life in that it has reduced the number and severity of most of my headaches, not all of them. I still get bad ones. So it's had a mixed benefit. I'd still choose to take it because it does give enough relief to be helpful.
Cost: < $25 monthly

  • 1 helpful mark

Aug 18, 2008 (Started Jul 01, 2006)

  • Effectiveness
    Slight (for essential tremor)
  • Side effects
    Mild (Grogginess)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 200 mg Daily
Advice & Tips: Started before took sinemet, and had slight effect on tremor. When sinemet was started, had more effect on tremor than primidone. When sinemet was increased to six pills daily, tried to decrease primidone and found could do so with no increase in tremor.
Cost: < $25 monthly
Side effects: Grogginess

  • 1 helpful mark

May 15, 2008 (Started Mar 12, 2008)

  • Effectiveness
    None (for essential tremor)
  • Side effects
    Moderate (Grogginess, Dizziness, Low blood pressure, Fatigue)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 750 mg Daily
Side effects: Low blood pressure, Grogginess, Dizziness, Fatigue

  • 1 helpful mark
Last updated:
Showing 5 of 5 patient evaluations for Primidone