10 patient evaluations for Zonisamide taken for the purpose of 'Epilepsy'

chrissysaurus
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chrissysaurus
Data Quality: 2 stars
  • Gender: F
  • Age: 30y
  • Duration: 11 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: Mild
  • Physical: None
0 seizures
10 weeks ago
I am: n
I have:
Epilepsy

See chrissysaurus's full Zonisamide history

Jul 6, 2013 (Started May 02, 2013)

  • Effectiveness
    None (for Epilepsy)
  • side effects
    Severe (Brain fog, Temperature sensitivity to heat, Drowsiness, Weight loss, Anxious mood, Dizziness and feeling faint, Panic attacks, Sex drive (libido) decreased, Blurry vision, Lack of motivation)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: $100-199 monthly

May 7, 2013 (Started May 02, 2013)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Moderate (Brain fog, Temperature sensitivity to heat, Drowsiness, Weight loss, Anxious mood, Dizziness and feeling faint, Panic attacks, Sex drive (libido) decreased, Blurry vision, Lack of motivation)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: Ive been on Zonegran for a month. I still cannot tell whether it is 100% completely effective for my epilepsy but I am taking it alongside with Keppra. I used to take Keppra with Trileptal. I do like it better than the Trileptal so far, but the only major thing I dont like so far is the heat sensitivity that Im having with this medication. What do I mean by this you ask? If you're on Zonegran... please please please... be careful when you go outside in hot weather. This medication will make you super sensitive to it! I had some scary heat exhaustion from it today (but luckily I am fine now) so I guess you can say that I found out the hard way. I never hard that problem before I was on this medication. Make sure you are properly hydrated as much as possible and keep yourself properly cooled is the best advice I can give you at the moment if you are taking this medication.
Cost: $100-199 monthly

  • 0 helpful marks
Atllantia
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Atllantia
Data Quality: 0 stars
  • Gender: F
  • Age: 42
Condition: Hashimoto's Thyroiditis 1 additional condition(s)
Quality of life:
  • Mental: Mild
  • Physical: Mild
I have:
Hashimoto's Thyroiditis

See Atllantia's full Zonisamide history

Apr 20, 2013 (Started Oct 15, 2012)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Tonialpha
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Tonialpha
Data Quality: 2 stars
  • Gender: F
  • Age: 62y
  • Duration: 48 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: Mild
  • Physical: Mild
Surgery type: Left Temporal Lobectomy, Selective Amygdalohippocampectomy, Vagus Nerve Stimulation (VNS)
100 seizures
105 weeks ago
I am: n
I have:
Epilepsy

See Tonialpha's full Zonisamide history

Sep 22, 2012 (Started Jun 04, 2010)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Moderate (Gait problems)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 75 mg Daily
Cost: < $25 monthly

Sep 8, 2012 (Started Jun 04, 2010)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Gait problems)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: little better seizure control
Cost: < $25 monthly

May 30, 2012 (Started Jun 04, 2010)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Moderate (Gait problems)
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily

  • 0 helpful marks
Stormborn
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Stormborn
Data Quality: 1 star
  • Gender: M
  • Age: 35y
  • Duration: 34 yrs
Quality of life:
  • Mental: Moderate
  • Physical: Mild
0 seizures
202 weeks ago
I am: vb
I have:
Epilepsy

See Stormborn's full Zonisamide history

Jun 5, 2012 (Started Jul 15, 2006)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Severe (Poor Concentration, Anger and irritability between doses, Outburst of anger, Short term memory problems, Depression with suicidal thoughts, Nausea and vomiting, Loss of appetite)
  • Adherence
    Always
  • Burden
    Very hard to take
Advice & Tips: I turned into a zombie, who just might take your head off. I went from 210lbs. around the end of October down to 145lbs. in January. I also *looked* like a zombie. I can't tell you how long I spent just staring out the window of my apartment. It was so bad that I actually told my ex-wife that I didn't think it was safe for our son to come visit me. It worked, but eventually the benefits just weren't worth it.

  • 0 helpful marks
Fizzles
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Fizzles
Data Quality: 1 star
  • Gender: F
  • Age: 30y
  • Duration: 15 yrs
Quality of life:
  • Mental: Mild
  • Physical: Mild
0 seizures
214 weeks ago
I am: g
I have:
Epilepsy

See Fizzles's full Zonisamide history

Mar 18, 2012 (Started Dec 15, 2010)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: make sure you take it on time everyday and do not skip doses its hard to get use out of this med if you miss doeses

  • 0 helpful marks
dtiller
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dtiller
Data Quality: 1 star
  • Gender: F
  • Age: 44y
  • Duration: 15 yrs
Quality of life:
  • Mental: Mild
  • Physical: Mild
0 seizures
272 weeks ago
I am: g
I have:
Epilepsy

See dtiller's full Zonisamide history

Jan 19, 2011 (Started Jan 01, 2009)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg Daily
Cost: $25-49 monthly

  • 0 helpful marks
joan53
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joan53
Data Quality: 2 stars
  • Gender: F
  • Age: 53y
  • Duration: 51 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: None
  • Physical: None
1 seizure
8 weeks ago
I am: g
I have:
Epilepsy

See joan53's full Zonisamide history

Jan 7, 2011 (Started Jan 01, 2008)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg Daily
Advice & Tips: There are no positive side effects, but I havn't found any negitive ones either. But this medication has decreased my ability to sweat, making me more likely to get heat stroke. But the out come is worth it. I have never been in a better place with my seizures. I just need to avoid activities that may cause me to over heat. And drink plenty of fluids in hot weather.

Jun 16, 2010 (Started Jan 01, 2008)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • side effects
    Mild
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg Daily

  • 0 helpful marks
ridecaptain
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ridecaptain
Data Quality: 2 stars
  • Gender: M
  • Age: 56y
  • Duration: 11 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: Moderate
  • Physical: Mild
1 seizure
254 weeks ago
I am: n
I have:
Epilepsy

See ridecaptain's full Zonisamide history

Oct 11, 2010 (Started May 01, 2010)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Moderate (Excessive dry mouth (xerostomia) at night, Excessive dry mouth, Metallic taste in mouth)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Side effects: Metallic taste in mouth, Excessive dry mouth (xerostomia) at night, Excessive dry mouth

Aug 24, 2010 (Started May 01, 2010)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • side effects
    Severe (Excessive dry mouth (xerostomia) at night, Excessive dry mouth, Metallic taste in mouth)
  • Adherence
    Never taken as prescribed
  • Burden
    Very hard to take
Dosage: 200 mg Daily
Advice & Tips: This treatment although seemingly effective caused a dry mouth which was unresolvable. Since a solution was not readily available, I ended this treatment to review with my doctor.
Side effects: Metallic taste in mouth, Excessive dry mouth (xerostomia) at night, Excessive dry mouth

Apr 15, 2010 (Started May 01, 2010)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • side effects
    Severe (Excessive dry mouth (xerostomia) at night, Excessive dry mouth, Metallic taste in mouth)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Side effects: Metallic taste in mouth, Excessive dry mouth (xerostomia) at night, Excessive dry mouth

  • 0 helpful marks
kato
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kato
Data Quality: 1 star
  • Gender: F
  • Age: 40y
  • Duration: 19 yrs
Quality of life:
  • Mental: Unreported
  • Physical: Unreported
Surgery type: Vagus Nerve Stimulation (VNS)
7 seizures
312 weeks ago
I have:
Epilepsy

See kato's full Zonisamide history

May 5, 2010 (Started Sep 12, 2009)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily

  • 0 helpful marks
Zarabtul
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Zarabtul
Data Quality: 1 star
  • Gender: M
  • Age: 36y
  • Duration: 34 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: Moderate
  • Physical: Moderate
9 seizures
203 weeks ago
I am: vg
I have:
Epilepsy

See Zarabtul's full Zonisamide history

Dec 1, 2007 (Started Oct 01, 2007)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • side effects
    Moderate (Hallucinations, Rashes (redness, swelling))
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 25 mg Daily
Advice & Tips: Serious hallucinations and stomach problems arose from this medicine. Also it made me schizophrenic...
Cost: < $25 monthly
Side effects: Hallucinations, Rashes (redness, swelling), Rashes (redness, swelling)

  • 0 helpful marks
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Showing 10 of 10 patient evaluations for Zonisamide