4 patient evaluations for Lunasin taken for the purpose of 'ALS (Amyotrophic Lateral Sclerosis)'

145 members have decided to share their profiles only with other members of PatientsLikeMe.

Criss02
84779 thumb
Criss02
Sex: F
Data Quality: 2 stars
Bulbar: none
Arms: mild
Chest: mild
Legs: moderate
I am: g
I have:
ALS

See Criss02's full Lunasin history

Apr 18, 2017 (Started Mar 28, 2016)

  • Effectiveness
    None (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Advice & Tips: Completed clinical trial as of March 27, 2017 with no change in condition.
Cost: < $25 monthly

Mar 27, 2017 (Started Mar 28, 2016)

  • Effectiveness
    None (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: As prescribed per study protocol
Cost: < $25 monthly

Mar 26, 2017 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: As prescribed per study protocol
Cost: < $25 monthly

Jan 28, 2017 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As prescribed per study protocol
Cost: < $25 monthly

Jan 12, 2017 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: As prescribed per study protocol
Advice & Tips: V-8 Splash juice working best - not so filling. Dissolving capsules in juice before adding supplements and blending.
Cost: < $25 monthly

Dec 14, 2016 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As prescribed per study protocol
Cost: < $25 monthly

Nov 30, 2016 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As prescribed per study protocol
Advice & Tips: Still trying variety of juices. If smoothie too filling and won't eat. 
Cost: < $25 monthly

Nov 4, 2016 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As prescribed per study protocol
Advice & Tips: Found that V8 Splash juice a little thinner and not so filling with protocol.
Cost: < $25 monthly

Oct 17, 2016 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As prescribed per study protocol
Cost: < $25 monthly

Sep 28, 2016 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As prescribed per study protocol
Cost: < $25 monthly

Sep 19, 2016 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As prescribed per study protocol
Cost: < $25 monthly

Sep 6, 2016 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As prescribed per study protocol
Cost: < $25 monthly

Aug 16, 2016 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As prescribed per study protocol
Cost: < $25 monthly

Aug 5, 2016 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As prescribed per study protocol
Advice & Tips: Taking is much easier or maybe I'm just getting used to it!
Cost: < $25 monthly

Jul 22, 2016 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: As prescribed per study protocol
Cost: < $25 monthly

Jul 7, 2016 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As prescribed per study protocol
Cost: < $25 monthly

Jun 23, 2016 (Started Mar 28, 2016)

  • Effectiveness
    None (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As prescribed per study protocol
Cost: < $25 monthly

May 31, 2016 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As prescribed per study protocol
Cost: < $25 monthly

May 25, 2016 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As prescribed per study protocol
Cost: < $25 monthly

May 12, 2016 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As prescribed per study protocol
Cost: < $25 monthly

May 3, 2016 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: As prescribed per study protocol
Cost: < $25 monthly

Apr 26, 2016 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: As prescribed per study protocol
Advice & Tips: Hand blender is working great! 
Cost: < $25 monthly

Apr 18, 2016 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: As prescribed per study protocol
Cost: < $25 monthly

Apr 11, 2016 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: As prescribed per study protocol
Advice & Tips: Tried hand blender - works great as more concentrated. Blensd  3 doses together (dry) first to get rid of lump then add juices, milk (chocolate good) or sometimes coffee added.  Always aftertaste but use mint to Vitamin C drop for different taste.
Cost: < $25 monthly

Apr 4, 2016 (Started Mar 28, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: As prescribed per study protocol
Advice & Tips: Tried blenders - did not blend well - lumpy & grainy.  Too thick - tried drinking quickly just to get down.
Cost: < $25 monthly

  • 2 helpful marks
Fz950
89060 thumb
Fz950
Sex: F
Data Quality: 2 stars
Bulbar: none
Arms: none
Chest: none
Legs: moderate
I am: n
I have:
ALS

See Fz950's full Lunasin history

Mar 24, 2017 (Started Oct 01, 2016)

  • Effectiveness
    Moderate (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As prescribed per study protocol
Advice & Tips: Gives me strengths. Maintains weight. I believe it has helped with slowing my progression.
Cost: $200+ monthly

Nov 2, 2016 (Started Oct 01, 2016)

  • Effectiveness
    Moderate (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As prescribed per study protocol
Advice & Tips: I feel that it gives me strength and that it has slowed down my ALS progress.
Cost: $200+ monthly

Oct 24, 2016 (Started Oct 01, 2016)

  • Effectiveness
    Moderate (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As prescribed per study protocol
Advice & Tips: I think it helps maintain weight. Every now and then I feel weird tingling or pain in my left foot which otherwise no longer has much of a feeling. Desperately trying regularly to see if I can move my left toes but not yet.
Cost: $200+ monthly

  • 0 helpful marks
newtons1971
104917 thumb
newtons1971
Sex: M
Data Quality: 3 stars
Bulbar: none
Arms: mild
Chest: none
Legs: mild
I am: vg
I have:
ALS

See newtons1971's full Lunasin history

Feb 28, 2017 (Started Oct 27, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Waiting for Dukes summary of trials. Monitored many people and see no solid help. Still no cure, would have no problem spending the money if I had seen even a 10% positive sign. Have faith that better things are coming. God Bless P.S. It is nutritional but can't see making someone else rich off from such little evidence of help. You would think the distributor would give us a break if it was in fact so good for ALS, don't like guessing...
Cost: $200+ monthly

Feb 27, 2017 (Started Oct 27, 2016)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Three times daily
Cost: $200+ monthly

  • 0 helpful marks
Skinner
5884 thumb
Skinner
Sex: M
Data Quality: 1 star
Bulbar: moderate
Arms: severe
Chest: severe
Legs: severe
I am: vg
I have:
ALS

See Skinner's full Lunasin history

Oct 6, 2016 (Started Jul 29, 2016)

  • Effectiveness
    Slight (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Twice daily
Advice & Tips: Charley has been unable to move anything but his mouth and slight eye movement for the last 2 years. After taking the lunasin we have seen more facial movements. eyebrow movement, more eye movement.

  • 1 helpful mark
Last updated:
Showing 4 of 4 patient evaluations for Lunasin