25 patient evaluations for Pregabalin taken for the purpose of 'myalgic encephalomyelitis/chronic fatigue syndrome'

185 members have decided to share their profiles only with other members of PatientsLikeMe.

Apr 6, 2018 (Started Feb 15, 2007)

  • Effectiveness
    Moderate (for nerve pain (neuralgia))
  • Effectiveness
    Slight (for myalgic encephalomyelitis/chronic fatigue syndrome)
  • Effectiveness
    Slight (for fibromyalgia)
  • Effectiveness
    Major (for chronic neuralgia)
  • Side effects
    Mild (sleepiness)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 200 mg Twice daily
Advice & Tips: As long as you take your prescribed dosages more or less on time you fill find that the nerve pain issues can be controlled, but only once you hit 150mg per dose or over. Below you have to be constantly on your guard
Cost: < $25 monthly

  • 0 helpful marks

Jul 21, 2016 (Started Apr 01, 2016)

  • Effectiveness
    Slight (for myalgic encephalomyelitis/chronic fatigue syndrome)
  • Effectiveness
    Moderate (for fibromyalgia)
  • Side effects
    Moderate (anxious mood)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 225 mg Twice daily
Advice & Tips: It helps for awhile and then I seem to build a tolerance. I just had a change in dose to double and expect worsening fog and anxiousness.
Cost: < $25 monthly

  • 0 helpful marks

Sep 7, 2015 (Started Oct 15, 2011)

  • Effectiveness
    Major (for pain)
  • Effectiveness
    Major (for myalgic encephalomyelitis/chronic fatigue syndrome)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 150 mg Daily
Advice & Tips: Don't forget to take it as directed. It won't work if you don't maintain therapeutic levels.

  • 0 helpful marks

Jul 20, 2015 (Started Oct 10, 2008)

  • Effectiveness
    Moderate (for stiffness/spasticity)
  • Effectiveness
    Moderate (for pain)
  • Effectiveness
    Moderate (for myalgic encephalomyelitis/chronic fatigue syndrome)
  • Effectiveness
    Major (for fibromyalgia)
  • Side effects
    Mild (tachycardia (fast heart rate), headaches, dry mouth, muscle twitching (fasciculations), blurry vision, weight gain)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Twice daily
Advice & Tips: Be VERY careful about missed doses - especially on higher dosages. I found when they had me on higher dosages that if I missed a dose - or heaven forbid, ran out, I had horrible withdrawal symptoms (much like a heroine addict) with sweats and chills and abdominal cramping and nausea with explosive diarrhea.
Cost: $25-49 monthly
Side effects: muscle twitching (fasciculations), tachycardia (fast heart rate), weight gain, dizziness, dry mouth, blurry vision, headaches

Apr 5, 2012 (Started Oct 10, 2008)

  • Effectiveness
    Major (for stiffness/spasticity)
  • Effectiveness
    Major (for pain)
  • Side effects
    Mild (tachycardia (fast heart rate), headaches, dry mouth, muscle twitching (fasciculations), blurry vision, weight gain)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 300 mg Daily
Advice & Tips: I had no idea how much pain I had on a constant level until I took this. It has worked wonderfully on the fibromyalgia pain, which is not MS related. I have applied to and been accepted by Pfizer's program that offers Lyrica free to those who are on limited incomes. If you are on a limited income, look up Pfizer's free Lyrica program on the internet.
Cost: $25-49 monthly
Side effects: muscle twitching (fasciculations), tachycardia (fast heart rate), weight gain, dizziness, dry mouth, blurry vision, headaches

Dec 17, 2008 (Started Oct 10, 2008)

  • Effectiveness
    Major (for stiffness/spasticity)
  • Effectiveness
    Major (for pain)
  • Side effects
    Mild (tachycardia (fast heart rate), headaches, dry mouth, muscle twitching (fasciculations), blurry vision)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 225 mg Daily
Side effects: muscle twitching (fasciculations), tachycardia (fast heart rate), weight gain, dizziness, dry mouth, blurry vision, headaches

Dec 11, 2008 (Started Oct 10, 2008)

  • Effectiveness
    Can't tell (for stiffness/spasticity)
  • Effectiveness
    Major (for pain)
  • Side effects
    Moderate (tachycardia (fast heart rate), headaches, dry mouth, muscle twitching (fasciculations), blurry vision)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 225 mg Daily
Side effects: muscle twitching (fasciculations), tachycardia (fast heart rate), weight gain, dizziness, dry mouth, blurry vision, headaches

  • 0 helpful marks

Jun 24, 2015 (Started Nov 17, 2010)

  • Effectiveness
    Moderate (for pain in leg(s))
  • Effectiveness
    Moderate (for pain)
  • Effectiveness
    Moderate (for nerve damage)
  • Effectiveness
    Slight (for myalgic encephalomyelitis/chronic fatigue syndrome)
  • Effectiveness
    Moderate (for fibromyalgia)
  • Side effects
    Mild (weight gain)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 400 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks

May 11, 2015 (Started Mar 30, 2015)

  • Effectiveness
    Slight (for pain)
  • Effectiveness
    Slight (for myalgic encephalomyelitis/chronic fatigue syndrome)
  • Effectiveness
    Slight (for fibromyalgia)
  • Side effects
    Mild (drowsiness)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 100 mg Three times daily

  • 0 helpful marks

Nov 28, 2014 (Started Jul 01, 2009)

  • Effectiveness
    Slight (for fibromyalgia)
  • Effectiveness
    Slight (for myalgic encephalomyelitis/chronic fatigue syndrome)
  • Side effects
    Severe (vertigo, problems concentrating, fatigue, weight gain, mood swings, brain fog, tiredness, daytime sleepiness, forgetting words, forgetfulness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: Gradually just stopped working.
Cost: $25-49 monthly
Side effects: problems concentrating, fatigue, weight gain, mood swings, daytime sleepiness, brain fog, tiredness

Jun 8, 2013 (Started Jul 01, 2009)

  • Effectiveness
    Slight (for myalgic encephalomyelitis/chronic fatigue syndrome)
  • Effectiveness
    Major (for fibromyalgia)
  • Side effects
    Moderate (vertigo, problems concentrating, fatigue, weight gain, mood swings, brain fog, tiredness, daytime sleepiness, forgetting words, forgetfulness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: Now that I'm taking a lower dosage, I really like Lyrica. At higher doses, I was a raging maniac that could barely remember her own name. That IS an exaggeration, but only a slight one. At the lower dosage, I don't get the anger symptoms, and the memory issues are bearable. I still have a hard time remember anything, I have to write everything down on my calendar.
Cost: $50-99 monthly
Side effects: problems concentrating, fatigue, weight gain, mood swings, daytime sleepiness, brain fog, tiredness

Mar 12, 2013 (Started Jul 01, 2009)

  • Effectiveness
    Moderate (for myalgic encephalomyelitis/chronic fatigue syndrome)
  • Effectiveness
    Major (for fibromyalgia)
  • Side effects
    Mild (vertigo, problems concentrating, fatigue, weight gain, mood swings, brain fog, tiredness, daytime sleepiness, forgetting words, forgetfulness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: The lower dosage in combination with Trazodone has been working amazingly well. I haven't had many of the mood issues I had before. I'm feeling a lot more like a normal human being and am working on getting my stamina back.
Cost: $25-49 monthly
Side effects: problems concentrating, fatigue, weight gain, mood swings, daytime sleepiness, brain fog, tiredness

Sep 1, 2009 (Started Jul 01, 2009)

  • Effectiveness
    Major (for fibromyalgia)
  • Side effects
    Severe (vertigo, problems concentrating, fatigue, weight gain, mood swings, brain fog, tiredness, daytime sleepiness)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 200 mg Daily
Advice & Tips: The brain fog and mood swings were more than I could deal with. It worked wonderfully on the Fibro pain, but I could barely remember my name.
Cost: $25-49 monthly
Side effects: problems concentrating, fatigue, weight gain, mood swings, daytime sleepiness, brain fog, tiredness

  • 2 helpful marks

Aug 24, 2013 (Started Sep 29, 2012)

  • Effectiveness
    Moderate (for myalgic encephalomyelitis/chronic fatigue syndrome)
  • Effectiveness
    Slight (for anxious mood)
  • Effectiveness
    Slight (for generalized anxiety disorder)
  • Effectiveness
    Major (for pain)
  • Side effects
    Severe (nightmares)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 150 mg Daily
Advice & Tips: it did help relax me and get rid of the little aches and pains .. but miss a dose, and you go crazy .. I just got scared and left it!
Cost: $200+ monthly

  • 0 helpful marks

Jul 1, 2013 (Started Dec 07, 2010)

  • Effectiveness
    None (for myalgic encephalomyelitis/chronic fatigue syndrome)
  • Effectiveness
    None (for fibromyalgia)
  • Side effects
    Severe (nausea and vomiting)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Cost: < $25 monthly

Apr 1, 2011 (Started Dec 07, 2010)

  • Effectiveness
    None (for myalgic encephalomyelitis/chronic fatigue syndrome)
  • Effectiveness
    None (for fibromyalgia)
  • Side effects
    Severe (nausea and vomiting)
  • Adherence
    Always
  • Burden
    Very hard to take
Cost: < $25 monthly

  • 0 helpful marks

Apr 15, 2013 (Started Jan 15, 2011)

  • Effectiveness
    Moderate (for fibromyalgia)
  • Effectiveness
    Major (for myalgic encephalomyelitis/chronic fatigue syndrome)
  • Side effects
    Moderate (weight gain)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 150 mg Daily
Advice & Tips: POSSIBLE unexpected results: improved incontinence (went off of Cymbalta around the same time, so not sure which, if either, was to credit because I am beginning to see a decline) Neurontin, although much cheaper, seems to be far less effective. I have lost my prescription coverage through my husband's health insurance, so I can no longer afford Lyrica.
Cost: $25-49 monthly

  • 0 helpful marks
Last updated:
Showing 10 of 25 patient evaluations for Pregabalin