25 patient evaluations for Levetiracetam taken for the purpose of 'Epilepsy' with a side effects rating of Mild

133 members have decided to share their profiles only with other members of PatientsLikeMe.

dhaniboi
19508 thumb
dhaniboi
Data Quality: 3 stars
  • Gender: M
  • Age: 45y
  • Duration: 42 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: None
  • Physical: Mild
Surgery type: Vagus Nerve Stimulation (VNS)
19 seizures
this week
I am: vg
I have:
Epilepsy

See dhaniboi's full Levetiracetam history

May 24, 2016 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Rage Disorder, Lightheadedness, Increased seizures, Cranky, Back pain, Pain in lower back)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1500 mg Twice daily
Advice & Tips: Took way longer then it should have.  He said give him at least 5 days.  I  did call the refill in within 5 days but Kmart had not transfered it yet, so Victor told me to call back in a day or 2.  Whhich I did but it still was not transferedd yet.
Cost: < $25 monthly

Apr 26, 2016 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1500 mg Twice daily
Cost: < $25 monthly

Mar 31, 2016 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1500 mg Twice daily
Cost: < $25 monthly

Mar 2, 2016 (Started Jan 01, 1995)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1500 mg Twice daily
Cost: < $25 monthly

Feb 5, 2016 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1500 mg Twice daily
Cost: < $25 monthly

Jan 7, 2016 (Started Jan 01, 1995)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1500 mg Twice daily
Cost: < $25 monthly

Dec 15, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1500 mg Twice daily
Advice & Tips: filled: 12/06/15
Cost: < $25 monthly

Nov 12, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1500 mg Twice daily
Advice & Tips: got with no packing list.
Cost: < $25 monthly

Oct 12, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1500 mg Twice daily
Cost: < $25 monthly

Sep 9, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1500 mg Twice daily
Advice & Tips: Filled the day I called it in.
Cost: < $25 monthly

Aug 17, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1500 mg Twice daily
Cost: < $25 monthly

Jul 14, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1500 mg Twice daily
Cost: < $25 monthly

Jun 19, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1500 mg Twice daily
Advice & Tips: Was perscribed 180. but again got just 150, so that was fixed. But it still says 3/2 instead of 3/3.
Cost: < $25 monthly

May 28, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1500 mg Twice daily
Advice & Tips: I picked up my and the 5/26/15 and the instructions are correct but the quantity is still 150. I emailed cathy she wrote back saying another script had been called in. Sue said shed fix it and just changed the instructions
Cost: < $25 monthly

May 1, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1500 mg Twice daily
Advice & Tips: I only started 3 in am and 3 in pm last night then this AM. I feel lightheaded already but am gonna give it a few days to a week. I am thinking this is just i my head. going from 4 to 5 did the same thing and it went away soon after. Sue said the doctor changed it to 3 and 3 but only was perscribed the150 pills so I will need to call it in 5/12-5/19 because I only have a 25 day supply and I don't need to do anything. glad I had a week left at moms. who knows it age, I would guess about 4 years.
Cost: < $25 monthly

Apr 30, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2500 mg Daily
Cost: < $25 monthly

Apr 2, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 2500 mg Daily
Advice & Tips: last filled 2/23/15, called in refill 3/18/15, kmart hadn't called me by 3/23/15 so I called them and they said AHCCCS, called cathy and told they are working on the referral 3/24/15, no referral still on 3/25, cathy email me they are working on it 3/26. no keppra@ 2:44 at pharmacy....officially out of keppre 3/27, no keppra till monday. email dr. labiner & cathy......dr. labiners office said call AHCCCS.....AHCCCS is closed.....shelly was rude and un professional, no keppra still on 3/28 & 29. finally went through 3/30 but pharmacy doesn't have it.....its ordered, wasnt ready till 3/31. was ready 6 days after it was due & 4 days after I was out, told to take 2 Lorazepm a day....I felt sooo zombie like, FIRST time I had ever had to go without. I blame whoever works on the approvals &AHCCCS..
Cost: < $25 monthly

Mar 27, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Mild (Rage Disorder, Increased seizures, Cranky, Back pain, Pain in lower back)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 2500 mg Daily
Advice & Tips: as of today I am OUT of Keppra. I called it in 3/16 but AHCCCS wont pay it because the need a PA. Cathy just recieved a request the 24th. The pharmacy said the request may have gone to the main or the clinic on ajo and Still its not fixed. I am beyond pissed.
Cost: < $25 monthly

Mar 8, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Mild (Rage Disorder, Cranky, Back pain, Pain in lower back)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2500 mg Daily
Advice & Tips: seizures are getting better ay by day. The past 2 days were mainly absence seizures. Want to ask Dr. Labiner why he wants to remove Banzel? Was it just one person hospitalized by it? For some reason Lennox gastaut medication seems to work for me. I would prefer not to go lower on the banzel dosage. I was taking 5 a day when i came back to seeing him. He tried reducing before but when I got to 1 1/2 twice a day the seizures went up. I was raised up to 2 BID. I prefer to get rid of Oxcarbazepine.
Cost: < $25 monthly

Feb 27, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2500 mg Daily
Cost: < $25 monthly

Feb 20, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2500 mg Daily
Advice & Tips: yesterday Dr. Labiner called in the script but its only for 1 500mg in am and 1 in pm.
Cost: $200+ monthly

Feb 19, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: $200+ monthly

Feb 17, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Slight (for Epilepsy)
  • side effects
    Moderate (Rage Disorder, Back pain, Pain in lower back)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Advice & Tips: I want Keppra at 3 in am, and 2 in pm. seizures have increased from 30-40 a month to over 300 a month.
Cost: $200+ monthly

Feb 13, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Slight (for Epilepsy)
  • side effects
    Mild (Rage Disorder, Pain in lower back)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: $200+ monthly

Feb 12, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Slight (for Epilepsy)
  • side effects
    Mild (Rage Disorder, Pain in lower back)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: $200+ monthly

Feb 11, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Slight (for Epilepsy)
  • side effects
    Mild (Rage Disorder, Pain in lower back)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Advice & Tips: Camber Pharmaceuticals causes more seizures. Try other manufacturer
Cost: $200+ monthly

Feb 6, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Rage Disorder, Pain in lower back)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Advice & Tips: would rather go off this is any. The name brand affects temper and the generic by Camber pharmaceuticals give me back pain, 2-5 on a 1-10 scale.
Cost: $200+ monthly

Jan 30, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Moderate (Rage Disorder, Pain in lower back)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Advice & Tips: hurts more above small of back. Closed to the middle.
Cost: $200+ monthly

Jan 27, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Rage Disorder, Pain in lower back)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: $200+ monthly

Jan 25, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Rage Disorder, Pain in lower back)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Advice & Tips: lumbar seemed to hurt more after increase.
Cost: $200+ monthly

Jan 24, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Advice & Tips: upped yesterday. But so tired of the seizures, I am at 195+ for the past 4 months.
Cost: $200+ monthly

Jan 23, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Advice & Tips: just told to increase it from 1000 mg BID to 1250 BID because seizures this past month from approx. 80 last month to almost 160 this month. The doctors nurse said he doesn't want me to decrease so many meds without his help, ALL the decreases were made by him throughout 2014.On my next appointment he still wants to get rid of a medication and work from there. hasn't he learned decreasing meds doesn't work. This is the medication I would choose to lose and have Banzel increased. Banzel has helped more than keppra or Levetiracetam. And I want tests to happen.
Cost: $200+ monthly

Jan 20, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: $200+ monthly

Jan 12, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: $100-199 monthly

Jan 3, 2015 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Advice & Tips: felt better 2 days after starting this but now seizures are coming back.
Cost: $100-199 monthly

Dec 28, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: $100-199 monthly

Dec 23, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Advice & Tips: Moving to Kmart.
Cost: $100-199 monthly

Dec 21, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: $100-199 monthly

Dec 18, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: $100-199 monthly

Nov 28, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Advice & Tips: wanna talk about switching to the generic, Does Labiner reccomend or not?
Cost: $200+ monthly

Nov 18, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: $200+ monthly

Nov 3, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: $200+ monthly

Oct 24, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: $200+ monthly

Oct 21, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Advice & Tips: I can be ardumentative, but Onfi hass lessened that.
Cost: $200+ monthly

Oct 7, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Advice & Tips: lose temper at times but is easier to control unless the wrong nerve is hit.
Cost: $200+ monthly

Oct 6, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Advice & Tips: like to hear the price of keppra vs. keppra XR.
Cost: $200+ monthly

Oct 2, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: $200+ monthly

Sep 27, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Advice & Tips: FINALLY got the name brand. 1 more stressor down. AHCCCS pays for all but I list the price so I can keep track of it.
Cost: $200+ monthly

Sep 26, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Advice & Tips: Sorry I tried to save those thanksless bastards at AHCCCS money. A new script was called in for the name brand but according the pharmacy tech. AHCCCS refused to honor it for 30 days so the tech. called and explained the mistake and its now fixed.
Cost: $200+ monthly

Sep 25, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Advice & Tips: hope this is fixed soon. Read to many bad stories about the generic. I can swear Dr. Labiner said I must stay on the name brand.
Cost: $200+ monthly

Sep 23, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Advice & Tips: Today the number was changed from Keppra to Levetracetam. I asked Labiner if I should change while in a drug study and he said no. big price diff. The generic is 160.00 as oppsed to 1324.00
Cost: $200+ monthly

Sep 20, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: $200+ monthly

Sep 18, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: $200+ monthly

Sep 17, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Advice & Tips: pills are 8.02
Cost: $200+ monthly

Sep 15, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: < $25 monthly

Sep 10, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: < $25 monthly

Sep 6, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: < $25 monthly

Sep 3, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: < $25 monthly

Aug 31, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: < $25 monthly

Aug 25, 2014 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 2500 mg Daily
Cost: < $25 monthly

Jun 3, 2012 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2500 mg Daily
Cost: < $25 monthly

Feb 21, 2011 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2500 mg Daily
Cost: < $25 monthly

Jan 2, 2011 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2500 mg Daily
Cost: < $25 monthly

Mar 12, 2010 (Started Jan 01, 1995)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2500 mg Daily
Cost: $200+ monthly

  • 0 helpful marks
seizetheday
30116 thumb
seizetheday
Data Quality: 2 stars
  • Gender: F
  • Age: 58y
  • Duration: 44 yrs
Quality of life:
  • Mental: Unreported
  • Physical: Unreported
2 seizures
53 weeks ago
I am: g
I have:
Epilepsy

See seizetheday's full Levetiracetam history

Jul 1, 2014 (Started Dec 03, 2007)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • side effects
    Mild (Elevated liver enzymes)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3000 mg Daily

  • 0 helpful marks
OhtaharaPfffff
68093 thumb
OhtaharaPfffff
Data Quality: 2 stars
  • Gender: M
  • Age: 18y
  • Duration: 18 yrs
Quality of life:
  • Mental: Moderate
  • Physical: Severe
Surgery type: Vagus Nerve Stimulation (VNS)
280 seizures
27 weeks ago
I have:
Epilepsy

See OhtaharaPfffff's full Levetiracetam history

Feb 15, 2014 (Started Apr 14, 2008)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Somnolence)
  • Adherence
    Always
  • Burden
    Not at all hard to take

  • 0 helpful marks
chrissysaurus
33019 thumb
chrissysaurus
Data Quality: 2 stars
  • Gender: F
  • Age: 30y
  • Duration: 12 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: Mild
  • Physical: None
0 seizures
13 weeks ago
I am: n
I have:
Epilepsy

See chrissysaurus's full Levetiracetam history

Jun 1, 2013 (Started Oct 21, 2011)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Mild (Drowsiness, Decreased appetite, Makes me emotional or short fused, Clumsiness, Irritability, Short temper)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily
Advice & Tips: Ive been on Keppra since the end of 2011. Its been an interesting experience. I was on it with Trileptal originally, and now Im on it with Zonegran. I noticed that once they increased my Keppra dosage that my irritability increased. And thats when I started to experience the famous "Keppra rage." Once I noticed that, I told my neuro to decrease my dosage, and my irritability decreased with it. My advice to anyone is that if you dont like dealing with irritability issues than by all means, please discuss decreasing your dosage with your doctor.... they'll be more than willing to help you out with your dosage so you wont become a raging lunatic like I was during that time. Trust me on this! Haha. Another thing is that Keppra has helped me out with my seizures better than any other medication has so far and I am so happy with it so far. Im also on generic Keppra! So if name brand Keppra doesnt work for you, feel free to try generic Keppra like me, and it might just work for you too!
Cost: $25-49 monthly

Feb 1, 2013 (Started Oct 21, 2011)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Mild (Drowsiness, Decreased appetite, Makes me emotional or short fused, Clumsiness, Irritability, Short temper)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily

Dec 14, 2011 (Started Oct 21, 2011)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Drowsiness, Decreased appetite, Makes me emotional or short fused, Clumsiness, Irritability, Short temper)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily
Advice & Tips: Ive been on Keppra with Trileptal for about two months now, and most of the side effects have subsided. I've been feeling pretty good so far and havent had a major complex or major simple partial seizure since October and I'd like to keep it that way. Also, I still havent had the "Keppra rage" yet. To anyone thats considering Keppra, don't be afraid, just give it a try and make sure you keep an eye on any mood changes is all (and ask your family and friends too!)

Nov 15, 2011 (Started Oct 21, 2011)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Moderate (Drowsiness, Decreased appetite, Makes me emotional or short fused, Clumsiness, Irritability, Short temper)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily
Advice & Tips: Ive been on Keppra for about a month now, and in the beginning I was extremely worried about the infamous "Keppra rage". I do notice that it has been making my fuse a bit shorter, but i'm not acting out on aggression without a reason. I have also been having a fluctuating appetite while on Keppra and some weight loss (but very slow weight loss). On the other hand, I have been having less frequent auras and have not had a major complex or simple partial since Ive been taking it! (crosses fingers)

Oct 26, 2011 (Started Oct 21, 2011)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • side effects
    Moderate (Drowsiness, Decreased appetite, Makes me emotional or short fused, Clumsiness, Irritability, Short temper)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily
Advice & Tips: Ive been taking Keppra for only a week and it gets me really drowsy for a few hours. I suggest to anyone taking this: please be careful when youre first on this medication. Dont over exert yourself because you might get dizzy.

  • 0 helpful marks
spector164
52183 thumb
spector164
Data Quality: 2 stars
  • Gender: M
  • Age: 41y
  • Duration: 25 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: Mild
  • Physical: None
0 seizures
114 weeks ago
I am: vg
I have:
Epilepsy

See spector164's full Levetiracetam history

Apr 4, 2013 (Started Jun 01, 2012)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Mild (Tiredness, Loss of appetite)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1500 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Jennay
46776 thumb
Jennay
Data Quality: 2 stars
  • Gender: F
  • Age: 34y
  • Duration: ? yrs
Quality of life:
  • Mental: None
  • Physical: Mild
1 seizure
192 weeks ago
I am: g
I have:
Epilepsy

See Jennay's full Levetiracetam history

Sep 23, 2012 (Started Sep 09, 2012)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg Daily

  • 0 helpful marks
stefmor
45931 thumb
stefmor
Data Quality: 0 stars
  • Gender: F
  • Age: 33y
  • Duration: 20 yrs
Quality of life:
  • Mental: Moderate
  • Physical: Mild
0 seizures
180 weeks ago
I am: g
I have:
Epilepsy

See stefmor's full Levetiracetam history

May 30, 2012 (Started Jun 30, 2000)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Mild (Lethargy)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3000 mg Daily
Advice & Tips: This medication kept my seizures at bay for 10 years before I had some breakthrough seizures. It's wonderful! And it was safe to take during my pregnancy and while breastfeeding.
Cost: < $25 monthly

  • 0 helpful marks
dark angel 2012
44591 thumb
dark angel 2012
Data Quality: 1 star
  • Gender: F
  • Age: 43y
  • Duration: 13 yrs
Quality of life:
  • Mental: Mild
  • Physical: Mild
0 seizures
194 weeks ago
I am: vg
I have:
Epilepsy

See dark angel 2012's full Levetiracetam history

Apr 15, 2012 (Started Apr 04, 2012)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Excessive daytime sleepiness (somnolence))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 500 mg Daily
Advice & Tips: none
Cost: $25-49 monthly

  • 0 helpful marks
Angeleyes_99
42157 thumb
Angeleyes_99
Data Quality: 0 stars
  • Gender: F
  • Age: 32y
  • Duration: 11 yrs
Quality of life:
  • Mental: Mild
  • Physical: Mild
5 seizures
222 weeks ago
I am: n
I have:
Epilepsy

See Angeleyes_99's full Levetiracetam history

Feb 11, 2012 (Started Jun 30, 2008)

  • Effectiveness
    Major (for Epilepsy)
  • side effects
    Mild (Excessive daytime sleepiness (somnolence))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 4000 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Br0thershin
41476 thumb
Br0thershin
Data Quality: 2 stars
  • Gender: M
  • Age: 30y
  • Duration: 8 yrs
Quality of life:
  • Mental: Moderate
  • Physical: Mild
0 seizures
112 weeks ago
I am: n
I have:
Epilepsy

See Br0thershin's full Levetiracetam history

Jan 24, 2012 (Started Aug 15, 2007)

  • Effectiveness
    Moderate (for Epilepsy)
  • side effects
    Mild (Dysnomia, Ataxia (lack of coordination), Decreased appetite, Cognitive impairment)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 6 tab(s) Daily
Advice & Tips: Take lots of B6 (Pyroxidine HCL) and B12, Keppra depletes your natural stores.
Cost: $50-99 monthly

  • 0 helpful marks
Last updated:
Showing 10 of 25 patient evaluations for Levetiracetam