9 patient evaluations for Natalizumab taken for the purpose of 'multiple sclerosis' with a side effects rating of Moderate

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Feb 27, 2017 (Started Jan 15, 2011)

  • Effectiveness
    Major (for multiple sclerosis)
  • Effectiveness
    None (for Improve mobility)
  • Effectiveness
    Major (for General health)
  • Side effects
    Moderate (Bowel problems, Walking slower)
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I completed almost five years on Tysabri. Unfortunately I was diagnosed with breast cancer this month. had to stop it and move to Rebif.

  • 0 helpful marks

Jul 1, 2013 (Started Jan 10, 2011)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Moderate (Flu like symptoms)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 300 mg/15 mL every 4 weeks

  • 0 helpful marks

Feb 18, 2012 (Started Jan 18, 2012)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    Moderate (Stiffness/Spasticity, Back pain, Headaches, Chills, Fatigue, Tiredness, Whole body ache)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 300 mg/15 mL Monthly

  • 0 helpful marks

Mar 15, 2011 (Started Jan 15, 2008)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Moderate (Whole body ache)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Tysabri was wonderful for my MS for two years, then I had a major reaction and neuro. suggested I stop the treatment.
Cost: < $25 monthly

Feb 1, 2011 (Started Jan 15, 2008)

  • Effectiveness
    Slight (for multiple sclerosis)
  • Side effects
    Severe
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: Monthly

  • 0 helpful marks

Nov 11, 2010 (Started May 26, 2009)

  • Effectiveness
    Slight (for multiple sclerosis)
  • Side effects
    Moderate (Jerky movements (myoclonus))
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: clicking noise in ears was very bothersome for my sleep
Cost: $50-99 monthly
Side effects: Jerky movements (myoclonus)

May 13, 2010 (Started May 26, 2009)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: $50-99 monthly
Side effects: Jerky movements (myoclonus)

  • 0 helpful marks

Sep 14, 2010 (Started Jul 08, 2010)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL Monthly
Cost: < $25 monthly

  • 0 helpful marks

Jun 29, 2010 (Started Aug 01, 2006)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Moderate (Bullous pemphigoid)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: First four years uneventful. Last year developed gum ulcerations, initially diagnosed by my dentist as ANUG (acute necrotizing ulcerative gingivitis), with disseminated ulcers on my inner cheeks and gums. Referred to periodontist after failing to respond to conventional first-round treatment. Further treatment and biopsies inconclusive. In late 2009, developed rash on scalp, ears, scrotum. Treated for eczema and other bacterial and fungal infections without effect by dermatologist. In March 2010, rash developed on forehead and torso. Returned to dermatologist, diagnosed as allergic reaction to previous medications. In late March, 2010, developed blistering rash on thighs, toes, forearms, shins, axillae. Tentatively diagnosed as Stephens-Johnson, with biopsy to confirm. Biopsy instead confirmed Bullous Pemphigoid.
Cost: < $25 monthly
Side effects: Bullous pemphigoid

Jun 15, 2009 (Started Aug 01, 2006)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Severe
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL Monthly
Cost: < $25 monthly
Side effects: Bullous pemphigoid

  • 1 helpful mark

Aug 7, 2009 (Started Aug 07, 2009)

  • Effectiveness
    Slight (for multiple sclerosis)
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: Don't expect this treatment to work quickly. Since I've been on it I still had 3 relapses. Now that I take it regulary every month I feel ok. I mean, I take it every 1st friday of every month and by the end of the month I'm dragging again. I still get weak, sleep alot, and start slurring or stutter when I talk.
Cost: < $25 monthly

  • 0 helpful marks

Jul 18, 2009 (Started Apr 08, 2008)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Moderate (Allergic reaction, Head pain, Itchy rash, Tiredness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Monthly
Advice & Tips: The main side affect that bothers me the most is the tightening of my chest and the difficulty breathing during the infusion, also I get the chills during the flush
Cost: < $25 monthly
Side effects: Tiredness, Allergic reaction, Itchy rash, Head pain

  • 0 helpful marks
Last updated:
Showing 9 of 9 patient evaluations for Natalizumab