27 patient evaluations for Topiramate with a side effects rating of Severe

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Dec 16, 2016 (Started Jun 30, 2016)

  • Effectiveness
    Can't tell (for epilepsy)
  • Side effects
    Severe (paresthesia)
  • Adherence
    Sometimes
  • Burden
    Very hard to take
Dosage: 50 mg Three times daily
Cost: < $25 monthly

  • 0 helpful marks

Jan 8, 2014 (Started May 15, 2009)

  • Effectiveness
    Slight (for persistent aura without infarction)
  • Side effects
    Severe (electric shock sensation in feet)
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Advice & Tips: Worked for awhile, but the electric shocks to my feet grew to be unbearable and lasted for up to 5 mins. which doesn't sound bad, but it was extreme as if I was being electrocuted
Cost: < $25 monthly

  • 0 helpful marks

Aug 7, 2012 (Started Feb 19, 2010)

  • Effectiveness
    Major (for headaches)
  • Side effects
    Severe (blurry vision, pain behind eye, recurring urinary tract infection, kidney pain)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks

Jul 1, 2012 (Started Feb 15, 2010)

  • Effectiveness
    Slight (for seizures)
  • Side effects
    Severe (dizziness, dry mouth, paresthesia, hallucinations)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg Daily
Advice & Tips: I would never take this medication again. And if any of you smoke weed to alleviate pain this medication causing horrible hallucinations and time lapses accompanied by severe headaches
Cost: < $25 monthly

Mar 31, 2012 (Started Feb 15, 2010)

  • Effectiveness
    Can't tell (for seizures)
  • Side effects
    Mild (dizziness, dry mouth, paresthesia, hallucinations)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg Daily
Advice & Tips: I don't recommend this medication
Cost: < $25 monthly

  • 0 helpful marks

Mar 12, 2012 (Started Nov 10, 2010)

  • Effectiveness
    Moderate (for fibromyalgia)
  • Side effects
    Severe (hair loss, numbness and tingling with pins and needles, balance problems, brain fog, forgetting words)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg Daily
Cost: < $25 monthly
Side effects: hair loss, balance problems, numbness and tingling with pins and needles

Feb 28, 2012 (Started Nov 10, 2010)

  • Effectiveness
    Moderate (for fibromyalgia)
  • Side effects
    Severe (hair loss, numbness and tingling with pins and needles, balance problems, brain fog, forgetting words)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: This medication worked relatively well for my fibro pain, but after about a year or so it started affecting my cognitive functions. I have had difficulty completing sentences and remembering words, and have been unable to drive for the past few weeks. After visiting a neurologist, I am discontinuing this medication on his advice.
Cost: < $25 monthly
Side effects: hair loss, balance problems, numbness and tingling with pins and needles

May 8, 2011 (Started Nov 10, 2010)

  • Effectiveness
    Moderate (for fibromyalgia)
  • Side effects
    Moderate (hair loss, numbness and tingling with pins and needles, balance problems)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly
Side effects: hair loss, balance problems, numbness and tingling with pins and needles

  • 1 helpful mark

Dec 31, 2011 (Started Oct 21, 2011)

  • Effectiveness
    Slight (for chest pain)
  • Side effects
    Severe (vision problems, cognitive confusion, cognitive impairment, blurry vision, dizziness and feeling faint)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily

Dec 21, 2011 (Started Oct 21, 2011)

  • Effectiveness
    Slight (for chest pain)
  • Side effects
    Moderate (vision problems, cognitive confusion, cognitive impairment, blurry vision, dizziness and feeling faint)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 200 mg Daily

Oct 22, 2011 (Started Oct 21, 2011)

  • Effectiveness
    None (for chest pain)
  • Side effects
    Severe (cognitive confusion, cognitive impairment, dizziness and feeling faint)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg Daily
Advice & Tips: Comb of this and tramadol made me blackout and stop breathing. Started taking at half dose and increased to current dose.

  • 0 helpful marks

Sep 1, 2011 (Started Jan 01, 2009)

  • Effectiveness
    Slight (for migraine headaches)
  • Side effects
    Severe (memory loss)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: I urge all people who are taking, or are thinking of taking, this drug to stop immediately. I am a 28 year-old woman who was prescribed this drug for migraines before the lupus, MS, and hypothyroidism was diagnosed. The side effects of Topiramate are SO severe - I have lost significant portions of my memory, and even though I stopped the drug six months ago, the memories are not coming back. I not only cannot remember graduate coursework, but I have forgotten sentimental moments with my loved one, forgotten people who I used to know, and still have cognitive difficulties. PLEASE do not take this drug. It really didn't help with my migraines either, but I stayed on the drug because I was afraid of weight gain, and was just used to the status quo of taking it everyday (and none of my doctors ever told me to stop). I know the drug is also prescribed for epilepsy and to assist people to quit smoking, but I urge you to evaluate why you need it. If you are taking it for migraines or to quit smoking, don't take it... I think the chance of getting lung cancer is better than living as an amnesiac.

  • 0 helpful marks

Apr 5, 2011 (Started May 31, 2009)

  • Effectiveness
    None (for migraine headaches)
  • Side effects
    Severe (brain cloud)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Nov 4, 2010 (Started Oct 17, 2010)

  • Effectiveness
    Slight (for migraine headaches)
  • Side effects
    Severe (drowsiness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg Daily
Cost: < $25 monthly
Side effects: drowsiness

  • 0 helpful marks

Oct 27, 2010 (Started Jan 01, 2004)

  • Effectiveness
    Moderate (for epilepsy)
  • Side effects
    Severe (unexplained itching, hearing problems, blurry vision, weight loss)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: Hearing loss is becoming more obvious, vision problems are rapidly becoming a problem also. itching of my larger skin areas is an unusual and new problem that could maybe be due to Topamax or the antidepressant Prozac, unsure about this. I have had terrible crying jags and depression over inappropriate issues in the last year or so that was assumed to be due to my aging process, but was recently debunked by a hormonal test. I therefore believe that the Topamax is a more likely suspect.
Cost: < $25 monthly
Side effects: weight loss, blurry vision, hearing problems, unexplained itching, unexplained itching

Feb 15, 2010 (Started Jan 01, 2004)

  • Effectiveness
    Major (for epilepsy)
  • Side effects
    Moderate (hearing problems, blurry vision, weight loss)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: The side effects of Topamax are really tough, but not as tough as others, and certainly not as tough as beating the heck out of yourself and frying your brain during a seizure. I never miss a dose, if I do, I could really end up hurting myself. I take it as exactly to the minute as I can, I do the same with all my meds, and for the last several years since I have been doing this, my seizures have been much less invasive into my life. I also NEVER NEVER take generic epilepsy medication. It must be brand always! Generic is NOT the same, no matter who insists that it is. I can take generic on other medication, but generic Topamax allowed me to have 3 months of severe cluster seizures last year.
Cost: < $25 monthly
Side effects: weight loss, blurry vision, hearing problems, unexplained itching, unexplained itching

  • 2 helpful marks
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