Filter by patients with: All

7 patient evaluations for Mycophenolate mofetil with a side effects rating of Moderate

78 members have decided to share their profiles only with other members of PatientsLikeMe.

Sort by: Most recent

Jan 9, 2019 (Started Oct 23, 2016)

  • Effectiveness
    Major (for Sjogren's syndrome)
  • Side effects
    Moderate (cluster headaches)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 1000 mg Twice daily
Cost: < $25 monthly

Apr 18, 2017 (Started Oct 23, 2016)

  • Effectiveness
    Major (for Sjogren's syndrome)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 1000 mg Twice daily
Cost: < $25 monthly
  • 0 helpful marks

Jan 2, 2012 (Started Mar 06, 2002)

  • Effectiveness
    Major (for Prevent organ rejection)
  • Side effects
    Moderate (stomach irritation if not enough food in stomach)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 500 mg Daily
Advice & Tips: I had to stop my mycophenolate because I was having a lot of stomach pain. They put me on myfortic instead.
Cost: < $25 monthly
  • 0 helpful marks

Jan 20, 2011 (Started Jan 01, 2000)

  • Effectiveness
    Major (for Prevent organ rejection)
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
  • 0 helpful marks

Oct 26, 2010 (Started Mar 14, 2010)

  • Effectiveness
    Major (for transplant rejection prevention)
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 750 mg Daily
Advice & Tips: Everyone assumes thes immunosuppresents are working, until . . .
Cost: < $25 monthly
  • 0 helpful marks

Jun 24, 2010 (Started May 03, 2010)

  • Effectiveness
    Moderate (for transplant rejection prevention)
  • Side effects
    Moderate (stomach pain)
  • Adherence
    Usually
  • Burden
    Very hard to take
Dosage: 2000 mg Daily
Advice & Tips: Be aware this stuff seems to rip up my stomach compared to my old meds. I'm supposed to take on an empty stomach, but I have to eat a little somethng first or I'll lose it
Cost: < $25 monthly
Side effects: stomach pain
  • 0 helpful marks

Apr 4, 2010 (Started Sep 22, 2009)

  • Effectiveness
    Moderate (for transplant rejection prevention)
  • Side effects
    Moderate (hair loss, chronic diarrhea, very low white blood cell count)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 500 mg Daily
Advice & Tips: Cellcept is a pretty nasty medication. Recently experienced an adverse reaction where it knocked my WBC (white blood cell count) down to 2.2. Had to immediately be quarantined and stop CellCept completely. Took 8 days for WBC to return to normal levels, now am back on a low dose.
Cost: < $25 monthly
Side effects: chronic diarrhea, very low white blood cell count, hair loss
  • 1 helpful mark

Mar 15, 2010 (Started Jun 28, 2009)

  • Effectiveness
    Moderate (for Prevent organ rejection)
  • Side effects
    Moderate (diarrhea, loss of balance)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 250 mg Daily
Cost: < $25 monthly
  • 0 helpful marks
Last updated:
Showing 7 of 7 patient evaluations for Mycophenolate mofetil