11 patient evaluations for Riluzole with a side effects rating of Severe

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Feb 15, 2016 (Started Jan 14, 2016)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (sexual impotence)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Twice daily
Advice & Tips: I started taking this medication at the same time as nuedextaI. i don't know which one caused my inability to ejaculate but I wasn't willing to take the medication as long as I had to have this side effect. I was not willing to forgo my sex life, which I still enjoy, to "possibly give me 3 -6 months"
Cost: < $25 monthly

  • 0 helpful marks

Oct 8, 2012 (Started Oct 03, 2012)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (tremor(s))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks

May 21, 2012 (Started Mar 16, 2012)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (fatigue, symptoms worse when on Rilutek, disease progression increased, numbness in lips)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: side effects outway benefits. I've become extremely fatigued in the last 30 days, in addition I believe it may be making my symptoms worse. In addition, too expensive for the possible benefit of a 2 to 3 month extension of life.
Cost: $200+ monthly

May 15, 2012 (Started Mar 16, 2012)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (fatigue, symptoms worse when on Rilutek, disease progression increased, numbness in lips)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: In my opinion, the cost and possible side effects can out way the benefit. With my current insurance plan this drug will cost me $2,850 annually. But my dr insists I take it, and since my side effects are minimal, I will continue to take it.
Cost: $200+ monthly

  • 0 helpful marks

Mar 30, 2011 (Started Jan 10, 2009)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (loss of interest in food)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 100 mg Daily
Advice & Tips: I feel much better since I stopped
Cost: $200+ monthly
Side effects: loss of interest in food

  • 0 helpful marks

Oct 5, 2010 (Started Mar 12, 2010)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (tiredness)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 50 mg Daily
Cost: $25-49 monthly
Side effects: tiredness

Jun 30, 2010 (Started Mar 12, 2010)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (tiredness)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Advice & Tips: I made a decision that 10% increased lifespan from onset was not worth being very sleepy all the time. I would rather require far less sleep each day than live slightly longer. I am typing this about 10 days after stopping and have enjoyed being far less tired. I wasn't sure if tiredness was a symptom of ALS or side effect of Rilutek. I have now confirmed it was a side effect of Rilutek.
Cost: $25-49 monthly
Side effects: tiredness

Apr 12, 2010 (Started Mar 12, 2010)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: $25-49 monthly
Side effects: tiredness

  • 0 helpful marks

Jul 5, 2010 (Started Jun 14, 2010)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (dizziness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: Severe fatigue Dizziness Possible drop in BP
Cost: < $25 monthly
Side effects: dizziness

  • 0 helpful marks

Dec 16, 2009 (Started Jun 13, 2007)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Severe
  • Adherence
    Sometimes
  • Burden
    A little hard to take
Dosage: 50 mg Daily
Advice & Tips: Ao tomar esse medicamento nao tive melhoras e meu figado ficou muito ruim, TGO E TGP acima de 600
Cost: $200+ monthly

Oct 13, 2009 (Started Jun 13, 2007)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Severe
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: nao faz efeito e maltrata o figado

  • 0 helpful marks

Feb 4, 2009 (Started May 08, 2008)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (liver inflammation)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Have regular blood tests to moderate your liver function.
Cost: < $25 monthly
Side effects: liver inflammation

  • 0 helpful marks

Jul 24, 2008 (Started Jun 02, 2006)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Severe
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: tue le foie

  • 0 helpful marks

Jul 2, 2008 (Started Jun 01, 2008)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (nausea, stomach pain, abdominal pain)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 50 mg Daily
Cost: $50-99 monthly
Side effects: abdominal pain, stomach pain, nausea

Jun 28, 2008 (Started Jun 01, 2008)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (nausea, stomach pain, abdominal pain)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 50 mg Daily
Advice & Tips: Try it because it is the only treatment at this time.
Cost: $50-99 monthly
Side effects: abdominal pain, stomach pain, nausea

  • 0 helpful marks
Last updated:
Showing 10 of 11 patient evaluations for Riluzole