11 patient evaluations for Riluzole with a side effects rating of Severe
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Feb 15, 2016 (Started Jan 14, 2016)
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EffectivenessCan't tell (for amyotrophic lateral sclerosis)
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Side effectsSevere (sexual impotence)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
50 mg
Twice daily
Advice & Tips:
I started taking this medication at the same time as nuedextaI. i don't know which one caused my inability to ejaculate but I wasn't willing to take the medication as long as I had to have this side effect. I was not willing to forgo my sex life, which I still enjoy, to "possibly give me 3 -6 months"
Cost:
< $25 monthly
- 0 helpful marks
Oct 8, 2012 (Started Oct 03, 2012)
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EffectivenessNone (for amyotrophic lateral sclerosis)
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Side effectsSevere (tremor(s))
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
50 mg
Daily
Cost:
$50-99 monthly
- 0 helpful marks
May 21, 2012 (Started Mar 16, 2012)
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EffectivenessNone (for amyotrophic lateral sclerosis)
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Side effectsSevere (fatigue, symptoms worse when on Rilutek, disease progression increased, numbness in lips)
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AdherenceAlways
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BurdenNot at all hard to take
Advice & Tips:
side effects outway benefits. I've become extremely fatigued in the last 30 days, in addition I believe it may be making my symptoms worse. In addition, too expensive for the possible benefit of a 2 to 3 month extension of life.
Cost:
$200+ monthly
May 15, 2012 (Started Mar 16, 2012)
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EffectivenessNone (for amyotrophic lateral sclerosis)
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Side effectsMild (fatigue, symptoms worse when on Rilutek, disease progression increased, numbness in lips)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
50 mg
Daily
Advice & Tips:
In my opinion, the cost and possible side effects can out way the benefit. With my current insurance plan this drug will cost me $2,850 annually. But my dr insists I take it, and since my side effects are minimal, I will continue to take it.
Cost:
$200+ monthly
- 0 helpful marks
Mar 30, 2011 (Started Jan 10, 2009)
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EffectivenessNone (for amyotrophic lateral sclerosis)
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Side effectsSevere (loss of interest in food)
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AdherenceAlways
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BurdenSomewhat hard to take
Dosage:
100 mg
Daily
Advice & Tips:
I feel much better since I stopped
Cost:
$200+ monthly
Side effects:
loss of interest in food
- 0 helpful marks
Oct 5, 2010 (Started Mar 12, 2010)
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EffectivenessCan't tell (for amyotrophic lateral sclerosis)
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Side effectsSevere (tiredness)
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AdherenceAlways
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BurdenSomewhat hard to take
Dosage:
50 mg
Daily
Cost:
$25-49 monthly
Side effects:
tiredness
Jun 30, 2010 (Started Mar 12, 2010)
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EffectivenessCan't tell (for amyotrophic lateral sclerosis)
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Side effectsSevere (tiredness)
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AdherenceAlways
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BurdenA little hard to take
Dosage:
100 mg
Daily
Advice & Tips:
I made a decision that 10% increased lifespan from onset was not worth being very sleepy all the time. I would rather require far less sleep each day than live slightly longer. I am typing this about 10 days after stopping and have enjoyed being far less tired. I wasn't sure if tiredness was a symptom of ALS or side effect of Rilutek. I have now confirmed it was a side effect of Rilutek.
Cost:
$25-49 monthly
Side effects:
tiredness
Apr 12, 2010 (Started Mar 12, 2010)
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EffectivenessCan't tell (for amyotrophic lateral sclerosis)
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Side effectsNone
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
100 mg
Daily
Cost:
$25-49 monthly
Side effects:
tiredness
- 0 helpful marks
Jul 5, 2010 (Started Jun 14, 2010)
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EffectivenessCan't tell (for amyotrophic lateral sclerosis)
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Side effectsSevere (dizziness)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
100 mg
Daily
Advice & Tips:
Severe fatigue
Dizziness
Possible drop in BP
Cost:
< $25 monthly
Side effects:
dizziness
- 0 helpful marks
Dec 16, 2009 (Started Jun 13, 2007)
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EffectivenessNone (for amyotrophic lateral sclerosis)
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Side effectsSevere
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AdherenceSometimes
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BurdenA little hard to take
Dosage:
50 mg
Daily
Advice & Tips:
Ao tomar esse medicamento nao tive melhoras e meu figado ficou muito ruim, TGO E TGP acima de 600
Cost:
$200+ monthly
Oct 13, 2009 (Started Jun 13, 2007)
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EffectivenessNone (for amyotrophic lateral sclerosis)
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Side effectsSevere
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AdherenceNever taken as prescribed
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BurdenNot at all hard to take
Dosage:
50 mg
Daily
Advice & Tips:
nao faz efeito e maltrata o figado
- 0 helpful marks
Feb 4, 2009 (Started May 08, 2008)
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EffectivenessCan't tell (for amyotrophic lateral sclerosis)
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Side effectsSevere (liver inflammation)
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AdherenceAlways
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BurdenNot at all hard to take
Advice & Tips:
Have regular blood tests to moderate your liver function.
Cost:
< $25 monthly
Side effects:
liver inflammation
- 0 helpful marks
Jul 24, 2008 (Started Jun 02, 2006)
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EffectivenessNone (for amyotrophic lateral sclerosis)
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Side effectsSevere
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
100 mg
Daily
Advice & Tips:
tue le foie
- 0 helpful marks
Jul 2, 2008 (Started Jun 01, 2008)
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EffectivenessCan't tell (for amyotrophic lateral sclerosis)
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Side effectsSevere (nausea, stomach pain, abdominal pain)
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AdherenceAlways
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BurdenVery hard to take
Dosage:
50 mg
Daily
Cost:
$50-99 monthly
Side effects:
abdominal pain, stomach pain, nausea
Jun 28, 2008 (Started Jun 01, 2008)
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EffectivenessCan't tell (for amyotrophic lateral sclerosis)
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Side effectsSevere (nausea, stomach pain, abdominal pain)
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AdherenceAlways
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BurdenVery hard to take
Dosage:
50 mg
Daily
Advice & Tips:
Try it because it is the only treatment at this time.
Cost:
$50-99 monthly
Side effects:
abdominal pain, stomach pain, nausea
- 0 helpful marks
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Showing 10 of 11 patient evaluations for Riluzole