14 patient evaluations for Riluzole with a side effects rating of Moderate

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Jul 28, 2012 (Started Jul 14, 2006)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (iron deficiency anemia)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily

  • 0 helpful marks

Nov 9, 2011 (Started Jul 01, 2011)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (insomnia, fatigue)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks

Oct 31, 2011 (Started Sep 10, 2010)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (fatigue)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: I took this medication for a year because the doctors handed it to me right after my diagnosis. Instead of doing this, I recommend a self-trial to see how tired this stuff makes you.
Cost: < $25 monthly

  • 0 helpful marks

Oct 19, 2011 (Started Aug 01, 2011)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (fatigue)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mcg Daily
Cost: < $25 monthly

  • 0 helpful marks

Jul 5, 2011 (Started May 27, 2011)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks

Jan 11, 2011 (Started Nov 19, 2010)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (elevated liver enzymes)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 100 mg Daily
Advice & Tips: My adverse effect was elevated liver enzymes. I stopped the drug on my doctor's advice, and couldn't restart because I'm on the dex trial and no interruption in Riluzole treatment is allowed in that trial. I found it very challenging to follow the rules about eating and taking Riluzole, but my doctor told me after I stopped taking it that those rules didn't. matter
Cost: $200+ monthly

  • 0 helpful marks

Nov 12, 2010 (Started Jul 14, 2010)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: $200+ monthly

Sep 2, 2010 (Started Jul 14, 2010)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 100 mg Daily
Advice & Tips: The directions say to take 12 hours apart and either 1 hour before or 2 hours after eating. This is easy in the morning because my husband brings the pill and some water to me at 6:00 a.m., and I don't get up until after 8 a.m. usually. It's harder to schedule my meals in the evening, however, so I take it again at 5:00 p.m. if I'm already hungry then, or at 6:00 p.m., but sometimes I've eaten just before or after taking the evening dose. I don't know if this really matters or not.
Cost: $200+ monthly

  • 0 helpful marks

Sep 3, 2010 (Started Aug 18, 2008)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks

Jul 13, 2010 (Started Apr 28, 2010)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 100 mg Daily
Advice & Tips: We think it was causing diarrea. My Neurologist said we would stop it for a whilw and see if it helps.

  • 0 helpful marks

Jun 15, 2010 (Started Apr 23, 2010)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (generalized weakness (asthenia), nausea, loss of sense of taste)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 100 mg Daily
Advice & Tips: Side effects, weakness, lack of energy and strength, taste loss, slight nausea, weight loss, cannot eat 6 hours out of the day. The side effects were not worth the small possible benefit.
Cost: $200+ monthly
Side effects: generalized weakness (asthenia), loss of sense of taste, nausea

  • 0 helpful marks
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Showing 10 of 14 patient evaluations for Riluzole