12 patient evaluations for Riluzole with a side effects rating of Mild

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Mar 12, 2017 (Started May 06, 2004)

  • Effectiveness
    Moderate (for progressive muscular atrophy)
  • Side effects
    Mild (skin irritation, flaky skin on face and head)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Side effects: skin irritation, flaky skin on face and head

Jun 10, 2016 (Started May 06, 2004)

  • Effectiveness
    Moderate (for progressive muscular atrophy)
  • Side effects
    Mild (skin irritation, flaky skin on face and head)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Side effects: skin irritation, flaky skin on face and head

Apr 3, 2013 (Started May 06, 2004)

  • Effectiveness
    Major (for progressive muscular atrophy)
  • Side effects
    Moderate (skin irritation, flaky skin on face and head)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Side effects: skin irritation, flaky skin on face and head

Sep 3, 2010 (Started May 06, 2004)

  • Effectiveness
    Moderate (for progressive muscular atrophy)
  • Side effects
    Moderate (skin irritation, flaky skin on face and head)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: itchiness all over,flaking of skin off face/head- wash hair every day,use DermaVeen shower wash/moisturising lotion daily.
Side effects: skin irritation, flaky skin on face and head

Sep 15, 2008 (Started May 06, 2004)

  • Effectiveness
    Slight (for progressive muscular atrophy)
  • Side effects
    Mild (skin irritation, flaky skin on face and head)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Side effects: skin irritation, flaky skin on face and head

  • 1 helpful mark

Aug 21, 2016 (Started Jun 30, 2004)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (muscle fatigue)
  • Adherence
    Never taken as prescribed
  • Burden
    Very hard to take

  • 0 helpful marks

Feb 15, 2016 (Started Oct 10, 2010)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (dry skin)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks

Dec 15, 2012 (Started May 01, 2006)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

Jan 1, 2012 (Started May 01, 2006)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

Oct 28, 2009 (Started May 01, 2006)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

Apr 4, 2009 (Started May 01, 2006)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

Jan 27, 2009 (Started May 01, 2006)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

Aug 23, 2008 (Started May 01, 2006)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Sep 28, 2012 (Started Mar 16, 2011)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (burning sensation in eyes)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Cost: $25-49 monthly

Apr 11, 2011 (Started Mar 16, 2011)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: It made my fasciculations become noticeably less severe.
Cost: $25-49 monthly

  • 0 helpful marks

Dec 20, 2011 (Started Aug 27, 2010)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (tiredness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: I stopped with Rilutek because I want to be fitter for the time I have left. I am now using vitamine D and feeling better than with Rilutek. Rilutek just is not the thing for me, why living 3 months longer at the end when your a wreck?
Cost: < $25 monthly

  • 0 helpful marks

Dec 11, 2010 (Started Feb 05, 2009)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Mild
  • Adherence
    Never taken as prescribed
  • Burden
    A little hard to take
Dosage: 50 mg Daily

  • 0 helpful marks

Oct 15, 2010 (Started Jun 01, 2009)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 50 mg Daily

  • 0 helpful marks

Jul 22, 2010 (Started Jul 10, 2009)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Advice & Tips: Liver treatment
Cost: < $25 monthly

  • 0 helpful marks

Jan 21, 2010 (Started Mar 30, 2002)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: Initially it made me more tired but i seemed to get used to it. (Jan 2008) After 6 years with MND I reduced my daily dose by half with seemingly no affect to my progression rate.

  • 0 helpful marks
Last updated:
Showing 10 of 12 patient evaluations for Riluzole