22 patient evaluations for Levetiracetam taken for the purpose of 'Epilepsy' with a side effects rating of Moderate

redsoxrich
24901 thumb
redsoxrich
Data Quality: 2 stars
  • Sex: M
  • Age: 36y
  • Duration: 10 yrs
Quality of Life:
  • Mental: Mild
  • Physical: Mild
Surgery type: Left Temporal Lobectomy
0 seizures
2 weeks ago
I am: g
I have:
Epilepsy

See redsoxrich's full Levetiracetam history

Feb 10, 2015 (Started Feb 14, 2011)

  • Perceived effectiveness for Epilepsy: Moderate
  • Perceived effectiveness for Seizures: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 3000 mg Daily
Advice & Tips: Lowers sex drive majorly but will kick your seizures butt,haven't had an episode in a long time.Will also make you tired but you can deal.
Cost: < $25 monthly
Side effects: Want to be left alone

May 10, 2011 (Started Feb 14, 2011)

  • Perceived effectiveness for Epilepsy: Can’t tell
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 3000 mg Daily
Cost: < $25 monthly
Side effects: Want to be left alone

  • 0 helpful marks
Fluff4brains
66962 thumb
Fluff4brains
Data Quality: 3 stars
  • Sex: M
  • Age: 48
Condition: Glioblastoma 4 additional condition(s)
Quality of Life:
  • Mental: Mild
  • Physical: Mild
I am: n
I have:
Glioblastoma

See Fluff4brains's full Levetiracetam history

Dec 24, 2014 (Started Oct 27, 2014)

  • Perceived effectiveness for Seizures: Major
  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 750 mg Twice daily
Advice & Tips: As my G4 GBM has 'woken up' after debulking surgery, it's tickled the brain and caused a few seizures, so we've upped the dose to 750mg twice daily, which has increased the sensation of sleepiness and mild nausea - but really nothing to complain about. And IIRC, these symptoms do reduce after a week or two. Not feeling any of the symptoms some people get (no mood changes, anger or agressiveness problems).

Nov 28, 2014 (Started Oct 27, 2014)

  • Perceived effectiveness for Seizures: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 500 mg Twice daily
Advice & Tips: I've got on so much better than with Phenytoin. Very mild dizziness and faintest hint of what may be a sort of nausea, neither of which are really worth mentioning, but worth it for being completely seizure free.

  • 0 helpful marks
moogie16
4749 thumb
moogie16
Sex: F
Data Quality: 3 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See moogie16's full Levetiracetam history

Jan 31, 2014 (Started Jan 30, 2014)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 500 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
skippy1001
50924 thumb
skippy1001
Data Quality: 2 stars
  • Sex: F
  • Age: 25y
  • Duration: 16 yrs
Quality of Life:
  • Mental: Moderate
  • Physical: Mild
0 seizures
79 weeks ago
I am: n
I have:
Epilepsy

See skippy1001's full Levetiracetam history

Jul 17, 2013 (Started Jun 26, 2013)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 250 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
eabournemouth
46579 thumb
eabournemouth
Data Quality: 2 stars
  • Sex: M
  • Age: 59y
  • Duration: 45 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Moderate
  • Physical: Mild
0 seizures
39 weeks ago
I am: b
I have:
Epilepsy

See eabournemouth's full Levetiracetam history

Apr 26, 2013 (Started Jun 15, 2010)

  • Perceived effectiveness for Epilepsy: Slight
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 250 mg Daily
Cost: < $25 monthly

Jun 28, 2012 (Started Jun 15, 2010)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Dosage: 1000 mg Daily
Advice & Tips: Size of 1000mg Keppra tablet
Cost: < $25 monthly

  • 0 helpful marks
simplesimon53
43108 thumb
simplesimon53
Data Quality: 2 stars
  • Sex: M
  • Age: 39y
  • Duration: 22 yrs
Quality of Life:
  • Mental: Moderate
  • Physical: Mild
0 seizures
33 weeks ago
I am: n
I have:
Epilepsy

See simplesimon53's full Levetiracetam history

Mar 25, 2013 (Started Dec 13, 2012)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 1000 mg Daily

  • 0 helpful marks
62SUMMERS
Portrait default thumb
62SUMMERS
Data Quality: 2 stars
  • Sex: F
  • Age: 52y
  • Duration: 24 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Moderate
  • Physical: Mild
6 seizures
98 weeks ago
I am: b
I have:
Epilepsy

See 62SUMMERS's full Levetiracetam history

Jan 21, 2013 (Started Aug 31, 2009)

  • Perceived effectiveness for Epilepsy: Slight
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 2000 mg Daily
Cost: $200+ monthly
Side effects: Headaches all day, Anxious mood

Jan 26, 2011 (Started Aug 31, 2009)

  • Perceived effectiveness for Epilepsy: None
  • Side Effects: Severe
  • Adherence: Always
  • Burden: A little
Dosage: 2000 mg Daily
Cost: $200+ monthly
Side effects: Headaches all day, Anxious mood

Dec 24, 2010 (Started Aug 31, 2009)

  • Perceived effectiveness for Epilepsy: Slight
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Very
Dosage: 1500 mg Daily
Advice & Tips: I continue with this meds because I also take lamictal and not really sure which is causing which side effects. My seizures have become different and more severe and more often. I was taking Tegratol and Depacote with less side effects.
Cost: $200+ monthly
Side effects: Headaches all day, Anxious mood

  • 0 helpful marks
neuroplasticity
35926 thumb
neuroplasticity
Data Quality: 2 stars
  • Sex: M
  • Age: 55y
  • Duration: 42 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Moderate
  • Physical: Mild
Surgery type: Selective Amygdalohippocampectomy, Vagus Nerve Stimulation (VNS), Extratemporal Resection
0 seizures
117 weeks ago
I am: g
I have:
Epilepsy

See neuroplasticity's full Levetiracetam history

Nov 29, 2012 (Started Apr 12, 2009)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 2000 mg Daily
Cost: $100-199 monthly
Side effects: Vision loss in left side of visual field for both eyes, Nose itch, Paranoia

Jul 7, 2011 (Started Apr 12, 2009)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 2000 mg Daily
Cost: $100-199 monthly
Side effects: Vision loss in left side of visual field for both eyes, Nose itch, Paranoia

  • 0 helpful marks
Tonialpha
21423 thumb
Tonialpha
Data Quality: 2 stars
  • Sex: F
  • Age: 61y
  • Duration: 47 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Mild
  • Physical: Mild
Surgery type: Left Temporal Lobectomy, Selective Amygdalohippocampectomy, Vagus Nerve Stimulation (VNS)
100 seizures
44 weeks ago
I am: n
I have:
Epilepsy

See Tonialpha's full Levetiracetam history

Feb 7, 2012 (Started Aug 14, 2010)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 6000 mg Daily
Advice & Tips: THE XR IS THE BEST THE KEPPRA IS THE BEST. THE MAIL ORDER SENT ME THE GENERIC THE OTHER WEEK AND I TRIED IT AND I NOTICED SEIZURE ACTIVITY THAT DAY. SWALLOWING AND NAUSEA IS MY BIGGEST ISSUE BUT THE SEIZURES ARE A LOT BETTER!
Cost: < $25 monthly
Side effects: Stomach upset, Anxious mood

May 30, 2010 (Started Aug 14, 2010)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: timer from e-pill for taking pills 5 times a day. timer on phone and pill box
Cost: < $25 monthly
Side effects: Stomach upset, Anxious mood

  • 0 helpful marks
AuthorBeckyAyers
36863 thumb
AuthorBeckyAyers
Data Quality: 1 star
  • Sex: F
  • Age: 55y
  • Duration: 49 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Severe
  • Physical: Mild
16 seizures
132 weeks ago
I am: n
I have:
Epilepsy

See AuthorBeckyAyers's full Levetiracetam history

Jan 3, 2012 (Started May 28, 2007)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 2500 mg Daily
Advice & Tips: I take Keppra because I originally started out on Dilantin which hit my liver hard the minute I started taking it. Although Keppra is VERY good at keeping the grand mals away, I have very little time that I feel energetic.
Cost: $50-99 monthly

Aug 16, 2011 (Started May 28, 2007)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Dosage: 2500 mg Daily
Advice & Tips: While Keppra seems to do a very good job of stopping grand mals in their tracks, I still have quite frequent absence seizures, visual auras, olfactory auras (more often than visual) and serious memory issues. On top of all that, I have fits of rage out of nowhere that can last for up to several hours in which case I stay in my bedroom away from the rest of the family. Even though I have been taking Keppra for years, it STILL makes me groggy, especially if I have to take pain killers of any kind. I have also recently noticed having some problems with things tasting wrong, if not totally disgusting. Foods that I normally love taste gross. I have also lost a lot of hair since I started taking Keppra, but I have to admit it could possibly just be coincidental that I am 52 and just thinning out due to age.
Cost: $50-99 monthly

Jul 26, 2011 (Started May 28, 2007)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 2500 mg Daily
Advice & Tips: Even though Keppra has worked much better than Dilantin or Topomax, it still makes me tired much of the day and I sometimes have rage issues that are hard to deal with. Oh, and my hair has thinned out since I started taking it, but then again I am 52 and I guess that might be due to aging. =/
Cost: $50-99 monthly

  • 1 helpful mark
Last updated:
Showing 10 of 22 patient evaluations for Levetiracetam