30 patient evaluations for Natalizumab taken for the purpose of 'multiple sclerosis' with a side effects rating of Mild

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Jul 20, 2016 (Started Jun 22, 2016)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Mild (fever)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15ml every 4 weeks
Advice & Tips: Feel slightly energetic for a few days after treatment. The side effect, fever, is for about an hour post infusion and it hits about 99deg but some acetaminophen and some bedrest clears it up.
Cost: < $25 monthly

  • 0 helpful marks

Dec 8, 2015 (Started Sep 19, 2015)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    Mild (fatigue)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL Monthly
Cost: < $25 monthly

  • 0 helpful marks

Jun 24, 2013 (Started Oct 16, 2009)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (headaches)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL every 4 weeks

  • 0 helpful marks

May 30, 2013 (Started Jul 13, 2011)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (fatigue post infusion)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: Taking an antihistamine the day of treatment helped a great deal with treatment day fatigue.
Cost: $25-49 monthly

  • 0 helpful marks

Oct 15, 2012 (Started Jan 01, 2009)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (fatigue)
  • Adherence
    Usually
  • Burden
    Very hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: < $25 monthly

  • 0 helpful marks

Jun 13, 2012 (Started May 11, 2012)

  • Effectiveness
    Slight (for multiple sclerosis)
  • Side effects
    Mild (headaches)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: just hate the head ache havent found a way to treat it yet

  • 0 helpful marks

May 17, 2011 (Started Aug 31, 2008)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (lethargy)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: For people who have been advised that their symptoms to not warrant the risks associated with Tysabri, I would encourage them to expect more from their MS treatment. I have not had any worsening of my symptoms since starting the drug 2 1/2 years ago, and gained back some of my energy! I started taking it due to adverse reactions to my prior medication, not because my symptoms were uncontrolled. I am so glad I made the switch and that my Dr. was behind it. I don't believe that I have to be struggling with this disease day to day or have an expectation that it will get worse. When I meet other people with MS who say they aren't "bad enough" to go on Tysabri, it really bothers me b/c my personal goal is to be as symptom free as possible. If you can't work due to your illness, struggle to do normal physical activities, or take a ton of other medication to lessen your symptoms, I think you should consider another form of treatment!
Side effects: lethargy

  • 4 helpful marks

Apr 1, 2011 (Started Mar 09, 2009)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (tiredness)
  • Adherence
    Usually
  • Burden
    Very hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: < $25 monthly

Oct 10, 2009 (Started Mar 09, 2009)

  • Effectiveness
    Slight (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Sometimes
  • Burden
    Very hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I'd love to experience the fullness of this MS med since I have had only 3 monthly treatments since March '09. <------ Going on 7 months w/ only 3 administered infusion therapies. **rolls eyes/shakes head** {Medicaid is willing to pay its share of $18. But only after Medicare stops giving my doctor's office & myself a hard time & pay the balance. Now the pharmaceutical company is stepping in b/c they know MS meds need to be consistent.}
Cost: < $25 monthly

  • 0 helpful marks

Aug 13, 2010 (Started Oct 02, 2009)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Mild (headaches, weakness in legs)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I have been taking Tysabri for almost a year at first I did not see any real benefits to this treatment. I have now been lapse free for almost a year now. It has not helped with my current symptoms which remain the same.
Cost: < $25 monthly
Side effects: weakness in legs, headaches

  • 1 helpful mark

Jul 20, 2010 (Started Nov 02, 2009)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (mood changes, Fear of PML, tiredness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: THIS DRUG HAS HELPED ME GET MY LIFE BACK. I DON'T FEEL SO DOWN AND USELESS. SO MANY PEOPLE HAS SEEN SUCH A DIFFERENCE IN ME AND SO HAVE I. I REALLY DO FEEL ALIVE AGAIN AND NOT AS NERVOUS TO TAKE CHANCES TO DO THINGS. I KNOW I AM NOT "CURED" BUT EVEN FEEL SOME WHAT BETTER IS AND HAS BEEN SO WORTH THE WAY I FEEL.
Side effects: tiredness, Fear of PML, mood changes

Nov 2, 2009 (Started Nov 02, 2009)

  • Effectiveness
    Can’t tell (for multiple sclerosis)
  • Side effects
    Moderate (mood changes, Fear of PML, tiredness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: We don't know unless we try things. There are side effects to even taking an asprin so it all comes down to choice of the person.
Side effects: tiredness, Fear of PML, mood changes

  • 3 helpful marks
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