29 patient evaluations for Natalizumab taken for the purpose of 'Multiple Sclerosis' with a side effects rating of Mild

wearingredshoes
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wearingredshoes
Sex: F
Data Quality: 2 stars
Relapse: Severe
Sensation: Mild
Overall: None
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: none
Upper limb: none
Walking: none
I have:
MS

See wearingredshoes's full Natalizumab history

Jun 24, 2013 (Started Oct 16, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 300 mg/15 mL every 4 weeks

  • 0 helpful marks
gardener
864 thumb
gardener
Sex: F
Data Quality: 2 stars
Sensation: Mild
Overall: None
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: none
I am: b
I have:
MS

See gardener's full Natalizumab history

May 30, 2013 (Started Jul 13, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: Taking an antihistamine the day of treatment helped a great deal with treatment day fatigue.
Cost: < $25 monthly

  • 0 helpful marks
kaykay19
58711 thumb
kaykay19
Sex: F
Data Quality: 2 stars
Relapse: Severe
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: mild
Upper limb: mild
Walking: moderate
I am: vg
I have:
MS

See kaykay19's full Natalizumab history

Oct 15, 2012 (Started Jan 01, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: Very
Dosage: 300 mg/15 mL every 4 weeks
Cost: Not specified monthly

  • 0 helpful marks
tigger1982
45245 thumb
tigger1982
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: moderate
I am: g
I have:
MS

See tigger1982's full Natalizumab history

Jun 13, 2012 (Started May 11, 2012)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: just hate the head ache havent found a way to treat it yet

  • 0 helpful marks
ILoveMyDogs!
Portrait default thumb
ILoveMyDogs!
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: mild
I am: n
I have:
MS

See ILoveMyDogs!'s full Natalizumab history

May 17, 2011 (Started Aug 31, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: For people who have been advised that their symptoms to not warrant the risks associated with Tysabri, I would encourage them to expect more from their MS treatment. I have not had any worsening of my symptoms since starting the drug 2 1/2 years ago, and gained back some of my energy! I started taking it due to adverse reactions to my prior medication, not because my symptoms were uncontrolled. I am so glad I made the switch and that my Dr. was behind it. I don't believe that I have to be struggling with this disease day to day or have an expectation that it will get worse. When I meet other people with MS who say they aren't "bad enough" to go on Tysabri, it really bothers me b/c my personal goal is to be as symptom free as possible. If you can't work due to your illness, struggle to do normal physical activities, or take a ton of other medication to lessen your symptoms, I think you should consider another form of treatment!
Side effects: Lethargy

  • 4 helpful marks
mislissa1029
14556 thumb
mislissa1029
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See mislissa1029's full Natalizumab history

Apr 1, 2011 (Started Mar 09, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: Very
Dosage: 300 mg/15 mL every 4 weeks
Cost: Not specified monthly

Oct 10, 2009 (Started Mar 09, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: None
  • Adherence: Sometimes
  • Burden: Very
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I'd love to experience the fullness of this MS med since I have had only 3 monthly treatments since March '09. <------ Going on 7 months w/ only 3 administered infusion therapies. **rolls eyes/shakes head** {Medicaid is willing to pay its share of $18. But only after Medicare stops giving my doctor's office & myself a hard time & pay the balance. Now the pharmaceutical company is stepping in b/c they know MS meds need to be consistent.}
Cost: Not specified monthly

  • 0 helpful marks
life well lived
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life well lived
Sex: M
Data Quality: 3 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: moderate
Upper limb: moderate
Walking: mild
I am: g
I have:
MS

See life well lived's full Natalizumab history

Jan 21, 2011 (Started Jun 01, 2007)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Somewhat
Dosage: 300 mg/15 mL Monthly
Advice & Tips: After I started taking this drug, I actually regained some function. I have been able to work myself back upto running 10k's. It has been a blessing. For more than a year, the day after the infussion was a great MS day. It was when I would feel my best. By the end of the cycle, I felt the withdrawl. Years later, the energy no longer really noticably spikes or dips. For the last few months, I have had increasing pains in my lower arms to my fingers with most recent pains in my fingers. Odd. Looking at list of possible side effects, I see joint pain listed. I can't say with any certainty the Tysabri causes the joint pain. It is but a guess...still, it is a concern I have that years of use may have a cumulative effect.
Cost: $25-49 monthly
Side effects: Pain in hands

  • 0 helpful marks
lala2500
13811 thumb
lala2500
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See lala2500's full Natalizumab history

Aug 13, 2010 (Started Oct 02, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: A little
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I have been taking Tysabri for almost a year at first I did not see any real benefits to this treatment. I have now been lapse free for almost a year now. It has not helped with my current symptoms which remain the same.
Cost: Not specified monthly
Side effects: Weakness in legs, Headaches

  • 1 helpful mark
teejaygrl
12645 thumb
teejaygrl
Sex: F
Data Quality: 2 stars
Sensation: Mild
Overall: None
Cognition: none
Vision: mild
Speech: none
Swallowing: none
Upper limb: mild
Walking: mild
I am: g
I have:
MS

See teejaygrl's full Natalizumab history

Jul 20, 2010 (Started Nov 02, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: THIS DRUG HAS HELPED ME GET MY LIFE BACK. I DON'T FEEL SO DOWN AND USELESS. SO MANY PEOPLE HAS SEEN SUCH A DIFFERENCE IN ME AND SO HAVE I. I REALLY DO FEEL ALIVE AGAIN AND NOT AS NERVOUS TO TAKE CHANCES TO DO THINGS. I KNOW I AM NOT "CURED" BUT EVEN FEEL SOME WHAT BETTER IS AND HAS BEEN SO WORTH THE WAY I FEEL.
Side effects: Tiredness, Fear of PML, Mood changes

Nov 2, 2009 (Started Nov 02, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: We don't know unless we try things. There are side effects to even taking an asprin so it all comes down to choice of the person.
Side effects: Tiredness, Fear of PML, Mood changes

  • 3 helpful marks
longtimesufferer
16627 thumb
longtimesufferer
Sex: M
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I have:
MS

See longtimesufferer's full Natalizumab history

Jun 10, 2010 (Started Aug 10, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: This worked very well.My timeline on the treatment was up and we decided to try something else for a while.
Cost: Not specified monthly
Side effects: Itching

Jan 20, 2010 (Started Aug 10, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Somewhat
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I have not had any major relaspses since I started tysabri .There was some side effects when I first started taking it ,but not as much now.I am getting around a little better now.It seems there are more good days then bad.
Cost: Not specified monthly
Side effects: Itching

  • 1 helpful mark
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Showing 10 of 29 patient evaluations for Natalizumab