4 patient evaluations for Prednisone taken for the purpose of 'Systemic Lupus Erythematosus' with a perceived effectiveness rating of Major

sierramama
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sierramama
Data Quality: 2 stars
  • Sex: F
  • Age: 65
Condition: Systemic Lupus Erythematosus 7 additional condition(s)
Quality of Life:
  • Mental: Mild
  • Physical: Mild
I am: b
I have:
Systemic Lupus Erythematosus

See sierramama's full Prednisone history

Feb 17, 2014 (Started Dec 20, 2005)

  • Perceived effectiveness for Inflammation: Moderate
  • Perceived effectiveness for Systemic Lupus Erythematosus: Major
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 24 mg Daily
Advice & Tips: BP is high..need to taper down
Cost: < $25 monthly

Feb 12, 2014 (Started Dec 20, 2005)

  • Perceived effectiveness for Inflammation: Major
  • Perceived effectiveness for Systemic Lupus Erythematosus: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 24 mg Daily
Advice & Tips: This drug is a double edged sword. It has controlled my symptoms better than any other drug. But the long term usage (8years) has suppressed my adrenals to the point that they make the taper very difficult. I am at 25 mg. and going to try a very slow taper of .5mg/month. Any faster and the withdrawal symptoms are so difficult. I will talk to my doctor this week about whether I need to add methotrexate before attempting the taper. The less prednisone I take the more pain med I require.
Cost: < $25 monthly

Jan 12, 2014 (Started Dec 20, 2005)

  • Perceived effectiveness for Inflammation: Major
  • Perceived effectiveness for Systemic Lupus Erythematosus: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 20 mg Daily
Advice & Tips: This has been the only drug that has improved my quality of life. It is the biggest help for pain. BUT...I was put on it and not tapered off until my body had become totally dependent and my adrenal glands suppressed for too long and will not work now. I personally believe I now have adrenal insufficiency from being on prednisone way too long. I am hoping the appt I have with a new Rheumatologist will provide some fresh approach and answers. IF I taper down more than 1/2mg over 1-2 weeks I have a major flare. Can not think, hard to function and move. Right now I am on 20mg.

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stickflea
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stickflea
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: none
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See stickflea's full Prednisone history

Jan 10, 2011 (Started Jul 20, 2007)

  • Perceived effectiveness for Systemic Lupus Erythematosus: Major
  • Side Effects: Mild
  • Adherence: Sometimes
  • Burden: Not at all
Dosage: 5 mg Daily
Advice & Tips: I HAD NO PROBLEM TAKING THE TABLETS APART FROM THEM TASTING DISGUSTING. PREDNISONE HELPED BY TAKING SOME OF THE INFLAMATION AWAY THEREFORE I WASN'T IN AS MUCH PAIN. THE ONLY PROBLEM OR SIDE EFFECT THAT I HAD WAS THAT I GAINED WEIGHT & MY FACE BLOW UP LIKE A PUFFER FISH & LOOKED VERY ROUND. I WAS ON PREDNISONE FOR YEARS WELL SINCE 2007 & IT WAS A GREAT INFLAMATORY BUT I HAVE RECENTLY BEEN CHANGED TO METHOTREXATE WHICH IS A STEP UP FROM PREDNISONE & ONLY TO BE TAKEN ONCE A WEEK INSTEAD OF EVERY DAY. I AM ON HEAPS OF TABLETS MORNING NOON & NIGHT SO I DON'T HAVE ANY PROBLEMS OR WAS PUT OUT FOR TAKING THESE TABLETS. THEY ARE A VERY TINY TABLET SO THEY WON'T GET STUCK IN YOUR THROAT.
Cost: < $25 monthly
Side effects: Puffy face

  • 0 helpful marks
emitchell
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emitchell
Sex: F
Data Quality: 1 star
Pain: Most
Fatigue: Most
Sleep: All
Stiffness: All
function: None
external_stress: Some
Stickman: all
Description:F35y
FM:3y Dx
CFS:4y Dx
I am: b
I have:
Fibromyalgia

See emitchell's full Prednisone history

Dec 6, 2010 (Started Apr 01, 2009)

  • Perceived effectiveness for Systemic Lupus Erythematosus: Major
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all

  • 0 helpful marks
susan79912
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susan79912
Data Quality: 1 star
  • Sex: F
  • Age: 56
Condition: Systemic Lupus Erythematosus
Quality of Life:
  • Mental: Mild
  • Physical: Mild
I am: b
I have:
Systemic Lupus Erythematosus

See susan79912's full Prednisone history

Mar 7, 2007 (Started Mar 07, 2007)

  • Perceived effectiveness for Systemic Lupus Erythematosus: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Dosage: As needed
Advice & Tips: I take Prednisone when I flare and taper off of it over 12 days.
Cost: < $25 monthly
Side effects: Weight gain

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Showing 4 of 4 patient evaluations for Prednisone