6 patient evaluations for Zonisamide taken for the purpose of 'Epilepsy' with a perceived effectiveness rating of Moderate

chrissysaurus
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chrissysaurus
Data Quality: 2 stars
  • Sex: F
  • Age: 28y
  • Duration: 9 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Mild
  • Physical: None
0 seizures
6 weeks ago
I am: n
I have:
Epilepsy

See chrissysaurus's full Zonisamide history

Jul 6, 2013 (Started May 02, 2013)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Cost: $100-199 monthly

May 7, 2013 (Started May 02, 2013)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Advice & Tips: Ive been on Zonegran for a month. I still cannot tell whether it is 100% completely effective for my epilepsy but I am taking it alongside with Keppra. I used to take Keppra with Trileptal. I do like it better than the Trileptal so far, but the only major thing I dont like so far is the heat sensitivity that Im having with this medication. What do I mean by this you ask? If you're on Zonegran... please please please... be careful when you go outside in hot weather. This medication will make you super sensitive to it! I had some scary heat exhaustion from it today (but luckily I am fine now) so I guess you can say that I found out the hard way. I never hard that problem before I was on this medication. Make sure you are properly hydrated as much as possible and keep yourself properly cooled is the best advice I can give you at the moment if you are taking this medication.
Cost: $100-199 monthly

  • 0 helpful marks
Atllantia
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Atllantia
Data Quality: 0 stars
  • Sex: F
  • Age: 40y
  • Duration: ? yrs
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
? seizures
I have:
Epilepsy

See Atllantia's full Zonisamide history

Apr 20, 2013 (Started Oct 15, 2012)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: None
  • Adherence: Usually
  • Burden: Not at all
Dosage: 50 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Tonialpha
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Tonialpha
Data Quality: 2 stars
  • Sex: F
  • Age: 60y
  • Duration: 46 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Mild
  • Physical: Mild
Surgery type: Left Temporal Lobectomy, Selective Amygdalohippocampectomy, Vagus Nerve Stimulation (VNS)
4 seizures
7 weeks ago
I am: n
I have:
Epilepsy

See Tonialpha's full Zonisamide history

Sep 22, 2012 (Started Jun 04, 2010)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Moderate
  • Adherence: Usually
  • Burden: Not at all
Dosage: 75 mg Daily
Cost: < $25 monthly

Sep 8, 2012 (Started Jun 04, 2010)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: Not at all
Dosage: 50 mg Daily
Advice & Tips: little better seizure control
Cost: < $25 monthly

May 30, 2012 (Started Jun 04, 2010)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Moderate
  • Adherence: Never
  • Burden: Not at all
Dosage: 400 mg Daily

  • 0 helpful marks
Fizzles
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Fizzles
Data Quality: 1 star
  • Sex: F
  • Age: 28y
  • Duration: 13 yrs
Quality of Life:
  • Mental: Mild
  • Physical: Mild
0 seizures
108 weeks ago
I am: g
I have:
Epilepsy

See Fizzles's full Zonisamide history

Mar 18, 2012 (Started Dec 15, 2010)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Advice & Tips: make sure you take it on time everyday and do not skip doses its hard to get use out of this med if you miss doeses

  • 0 helpful marks
dtiller
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dtiller
Data Quality: 1 star
  • Sex: F
  • Age: 42y
  • Duration: 13 yrs
Quality of Life:
  • Mental: Mild
  • Physical: Mild
0 seizures
166 weeks ago
I am: g
I have:
Epilepsy

See dtiller's full Zonisamide history

Jan 19, 2011 (Started Jan 01, 2009)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg Daily
Cost: $25-49 monthly

  • 0 helpful marks
ridecaptain
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ridecaptain
Data Quality: 2 stars
  • Sex: M
  • Age: 54y
  • Duration: 9 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Moderate
  • Physical: Mild
1 seizure
148 weeks ago
I am: n
I have:
Epilepsy

See ridecaptain's full Zonisamide history

Oct 11, 2010 (Started May 01, 2010)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Side effects: Metallic taste in mouth, Excessive dry mouth (xerostomia) at night, Excessive dry mouth

Aug 24, 2010 (Started May 01, 2010)

  • Perceived effectiveness for Epilepsy: Can’t tell
  • Side Effects: Severe
  • Adherence: Never
  • Burden: Very
Dosage: 200 mg Daily
Advice & Tips: This treatment although seemingly effective caused a dry mouth which was unresolvable. Since a solution was not readily available, I ended this treatment to review with my doctor.
Side effects: Metallic taste in mouth, Excessive dry mouth (xerostomia) at night, Excessive dry mouth

Apr 15, 2010 (Started May 01, 2010)

  • Perceived effectiveness for Epilepsy: Can’t tell
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Side effects: Metallic taste in mouth, Excessive dry mouth (xerostomia) at night, Excessive dry mouth

  • 0 helpful marks
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Showing 6 of 6 patient evaluations for Zonisamide