10 patient evaluations for Riluzole taken for the purpose of 'amyotrophic lateral sclerosis' with a perceived effectiveness rating of Moderate

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Feb 15, 2018 (Started Dec 15, 2017)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks

Aug 18, 2013 (Started Aug 10, 2011)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 100 mg Daily
Cost: $200+ monthly

  • 0 helpful marks

Nov 9, 2011 (Started Jul 01, 2011)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (insomnia, fatigue)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks

Apr 29, 2011 (Started Jun 29, 2010)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: I think this extended my time by at least six months. I started taking it about two months after my diagnosis. I've been told it's more effective when you start taking it early like I did. The drawback is the expense. I started it while I was still working and had very good health insurance. I also had a card from the manufacturer that the ALS clinic gave me for $100/month off for a year. Even with all that I still had to pay $400/mo out of pocket! Now I'm on medicare with blue cross med advantage and now pay $500/mo. They tell me it's $1100 before insurance. I have to admit it's been worth it though. I saw a definite slow down in the progression of the disease.
Cost: $200+ monthly

  • 0 helpful marks

Sep 30, 2010 (Started Mar 16, 2000)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Sep 3, 2010 (Started Aug 18, 2008)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks

Jul 22, 2010 (Started Jul 10, 2009)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Advice & Tips: Liver treatment
Cost: < $25 monthly

  • 0 helpful marks

Mar 17, 2010 (Started Dec 15, 2004)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: started on Hospice; did not make sense therefore to continue. I am ready to die. No problem - I expected this and planned for it when the time came.

  • 0 helpful marks

Jan 28, 2010 (Started Feb 11, 2007)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

Oct 26, 2009 (Started Feb 11, 2007)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

Aug 19, 2008 (Started Feb 11, 2007)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Advice & Tips: MY DOCTOR SAYS MAKE SURE I TAKE IT SO I DO
Cost: < $25 monthly

  • 1 helpful mark

Oct 20, 2008 (Started Feb 11, 2008)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 1 helpful mark
Last updated:
Showing 10 of 10 patient evaluations for Riluzole