18 patient evaluations for Riluzole taken for the purpose of 'amyotrophic lateral sclerosis' with a perceived effectiveness rating of None

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Oct 6, 2016 (Started Oct 11, 2010)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Stopped taking because the VA stopped sending it to us. Also after 4 years of taking did not see any results.

Jul 1, 2015 (Started Oct 11, 2010)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: Did not see any changes from taking this drug.

  • 0 helpful marks

Aug 21, 2016 (Started Jun 30, 2004)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (muscle fatigue)
  • Adherence
    Never taken as prescribed
  • Burden
    Very hard to take

  • 0 helpful marks

Oct 8, 2012 (Started Oct 03, 2012)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (tremor(s))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks

Sep 28, 2012 (Started Mar 16, 2011)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (burning sensation in eyes)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Cost: $25-49 monthly

Apr 11, 2011 (Started Mar 16, 2011)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: It made my fasciculations become noticeably less severe.
Cost: $25-49 monthly

  • 0 helpful marks

May 21, 2012 (Started Mar 16, 2012)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (fatigue, symptoms worse when on Rilutek, disease progression increased, numbness in lips)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: side effects outway benefits. I've become extremely fatigued in the last 30 days, in addition I believe it may be making my symptoms worse. In addition, too expensive for the possible benefit of a 2 to 3 month extension of life.
Cost: $200+ monthly

May 15, 2012 (Started Mar 16, 2012)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (fatigue, symptoms worse when on Rilutek, disease progression increased, numbness in lips)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: In my opinion, the cost and possible side effects can out way the benefit. With my current insurance plan this drug will cost me $2,850 annually. But my dr insists I take it, and since my side effects are minimal, I will continue to take it.
Cost: $200+ monthly

  • 0 helpful marks

Jul 5, 2011 (Started May 27, 2011)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks

Apr 27, 2011 (Started Aug 04, 2009)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks

Mar 30, 2011 (Started Jan 10, 2009)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (loss of interest in food)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 100 mg Daily
Advice & Tips: I feel much better since I stopped
Cost: $200+ monthly
Side effects: loss of interest in food

  • 0 helpful marks

Mar 2, 2011 (Started Jan 08, 2008)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: Discontinued as progression increased
Cost: < $25 monthly

Jan 8, 2009 (Started Jan 08, 2008)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Jan 3, 2011 (Started Mar 01, 2006)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks
Last updated:
Showing 10 of 18 patient evaluations for Riluzole