8 patient evaluations for Rotigotine taken for the purpose of 'Parkinson's disease' with a perceived effectiveness rating of Major

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Jul 15, 2017 (Started Sep 15, 2012)

  • Effectiveness
    Major (for Increase effect of another treatment)
  • Effectiveness
    Moderate (for Medication management)
  • Effectiveness
    Major (for Parkinson's disease)
  • Effectiveness
    None (for falls)
  • Effectiveness
    Moderate (for lethargic in the evening)
  • Side effects
    Severe
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1 PATCH Daily
Advice & Tips: When my physician switched me to RYTARY from carbidopa-levodopa in July 2017 I began experiencing excessive movements, imbalance and falls. I fell more in the four months after I began taking Rytary and using the neupro patch than I had in the four previous years. I left off the patch for a week and the excessive movements and imbalance symptoms gradually faded, but the wearing off returned. I then experimented and cut the patch in half and then into quarters which seemed to be the right dosage. Make sure that your medical prescribers consider factors such as how much your weight size and age when changing your medications. I don’t think this was considered in my case. I’m a 70 year old woman, 5’1” and weigh 125 lbs. Consideration of these factors should have been given before I was told to continue on as usual with the Neupro patch. Drug interaction is a primary problem with medications
Cost: $50-99 monthly

  • 0 helpful marks

Jun 25, 2016 (Started Jun 15, 2015)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Severe (hypnagogic hallucinations, delusional behavior, excessive daytime sleepiness (somnolence), hypersexuality, delusional thinking)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 8 mg Daily
Advice & Tips: Have someone closely monitor your behavior and medicine for the firs few months.
Cost: $200+ monthly

Oct 7, 2015 (Started Jun 15, 2015)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (hypnagogic hallucinations, delusional behavior, excessive daytime sleepiness (somnolence), hypersexuality, delusional thinking)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 8 mg Daily
Advice & Tips: I use the Neupro patch; which requires making sure it is properly "stuck" to your skin and in the ideal locations they give you in their instructions. I enjoy the 24 hour release and no more pills. You should carry a spare when you are learning to apply it. Stays on well in water.
Cost: $200+ monthly

  • 0 helpful marks

Apr 14, 2015 (Started Sep 05, 2007)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 4 mg/24 hr Daily
Advice & Tips: Since Neupro again became available in the US, I use it as prescribed, i.e., change patch daily
Cost: $25-49 monthly
Side effects: swelling in lower extremities, anxious mood

Jan 31, 2010 (Started Sep 05, 2007)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (anxious mood, swelling in lower extremities)
  • Adherence
    Sometimes
  • Burden
    Not at all hard to take
Dosage: 4 mg Daily
Advice & Tips: due to the cost, I change patches every other day instead of daily and still get the benefits I seek. After 4 weeks on the new dosage my calves & feet were very swollen, but it was mostly gone by the time I saw my neuro 01/28. He commented it was probably my body adjusting to the new dosage. I am also eating more - let's see if that cuts back? :)
Cost: $200+ monthly
Side effects: swelling in lower extremities, anxious mood

Mar 11, 2009 (Started Sep 05, 2007)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate (anxious mood)
  • Adherence
    Never taken as prescribed
  • Burden
    Somewhat hard to take
Dosage: 2 mg Daily
Advice & Tips: It's the only dopamine agonist I can tolerate (Mirapex & Requip gave me unacceptable side effects). Re: not adhering to the dosing schedule, I cannot afford to use a Neupro patch for just one day, so I use a patch for 2-3 days with good relief. My only downside to Neupro is eating compulsively, but it's *much* better than either Mirapex or Requip.
Cost: $50-99 monthly
Side effects: swelling in lower extremities, anxious mood

Aug 27, 2008 (Started Sep 05, 2007)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Sometimes
  • Burden
    A little hard to take
Dosage: 2 mg Daily
Advice & Tips: Pray Neupro patches become available again soon in the US.
Cost: $100-199 monthly
Side effects: swelling in lower extremities, anxious mood

  • 1 helpful mark

Sep 23, 2008 (Started Apr 23, 2007)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 6 mg Daily
Advice & Tips: Start using it, as low dosage as possible. I truly know that had I taken it early on I would not have the deterioration I have. Since using Neupro, I am 80% better in some ways, and 100% restored in other ways.
Cost: $200+ monthly

  • 1 helpful mark

Jun 30, 2008 (Started Feb 28, 2007)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (auditory hallucinations)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 4 PATCH Daily
Advice & Tips: this was the drug that worked best for me. i was extremely disappointed to find that the FDA had pulled it from the market because of a manufacturing error.
Side effects: auditory hallucinations

  • 0 helpful marks

Apr 15, 2008 (Started Nov 14, 2007)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 6 mg Daily
Advice & Tips: This was a great treatment. It worked well, and I had no side effects.
Cost: < $25 monthly

  • 0 helpful marks

Apr 3, 2008 (Started Feb 21, 2008)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 2 mg Daily
Advice & Tips: I have nothing but good news to say about Neupro. I had virtually no "Off" time. I had no symptoms. I am awaiting its return.
Cost: $100-199 monthly

  • 0 helpful marks

Mar 31, 2008 (Started Sep 09, 2007)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 10 mg Daily
Advice & Tips: THE BEST OF ALL TREATMENTS I TRIED UNFORTUNATELY DISCONTINUED HOPE THEY BRING IT BACK OR SOMETHING SIMILAR
Cost: $200+ monthly

  • 0 helpful marks
Last updated:
Showing 8 of 8 patient evaluations for Rotigotine