5 patient evaluations for Hydroxychloroquine taken for the purpose of 'systemic lupus erythematosus' with a perceived effectiveness rating of Moderate

206 members have decided to share their profiles only with other members of PatientsLikeMe.

Jul 7, 2012 (Started May 01, 2009)

  • Effectiveness
    Moderate (for systemic lupus erythematosus)
  • Side effects
    Mild (diarrhea, skin rash)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: After a few months of break from this drug, my new rheumatologist wants me back on it. So far, no side effects like last time.

Apr 19, 2012 (Started May 01, 2009)

  • Effectiveness
    Can't tell (for systemic lupus erythematosus)
  • Side effects
    Mild (diarrhea, skin rash)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I started taking hydroxychloroquine as soon as I was diagnosed with lupus. I had a lesion on my nose (a white bump) that disappeared after a month of taking the drug (the bump had been there for over a year). I had hives when I started the drug (dosage 200mg) and my doctor told me to take the drug every other day until my body got used to it. Once the hives ended, I started taking it everyday, and after a year, my dosage was increased to 400 mg. At the highest, I took 600mg, but only for 6 months, and the dosage was decreased again to 400 mg, which I took for 3 years. I just stopped the drug 2 weeks ago on my own, cold-turkey, and have had no adverse reactions. If anything, I feel and look healthier than I have in years.

  • 2 helpful marks

Mar 31, 2012 (Started Aug 25, 2006)

  • Effectiveness
    Moderate (for systemic lupus erythematosus)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: I have had a consistently low white blood count my entire life. After taking plaquenil, my count began to normalize. I find having an alarm set right before bed time and never moving my pills from my end-table keeps me on track.
Cost: < $25 monthly

  • 0 helpful marks

Jul 27, 2011 (Started Apr 01, 2011)

  • Effectiveness
    Moderate (for rheumatoid arthritis)
  • Effectiveness
    Moderate (for systemic lupus erythematosus)
  • Side effects
    Mild (migraine headaches)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Cost: < $25 monthly
Side effects: migraine headaches

  • 0 helpful marks

Apr 14, 2011 (Started Dec 07, 2010)

  • Effectiveness
    Moderate (for systemic lupus erythematosus)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily

  • 0 helpful marks

Sep 17, 2009 (Started Aug 20, 2009)

  • Effectiveness
    Moderate (for systemic lupus erythematosus)
  • Side effects
    Moderate (stomach pain, flatulence)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: Plaquenil - when I first started it, it was very efiicacious. but did also have immediate side effects of stomach upset, gas, and hair loss. I have decided that the benefits outway the side effects and so am still taking it (200 mg twice a day). my doc did initial blood tests, and also warned me to get eye exams regularaly.
Side effects: stomach pain, hair loss, flatulence

  • 0 helpful marks
Last updated:
Showing 5 of 5 patient evaluations for Hydroxychloroquine