6 patient evaluations for Carbamazepine taken for the purpose of 'Epilepsy' with a perceived effectiveness rating of Can’t tell

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Fluff4brains
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Fluff4brains
Data Quality: 0 stars
  • Gender: M
  • Age: 50
Condition: Glioblastoma 6 additional condition(s)
Quality of life:
  • Mental: Mild
  • Physical: Moderate
I am: b
I have:
Glioblastoma

See Fluff4brains's full Carbamazepine history

Mar 14, 2015 (Started Jan 15, 2015)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • Side effects
    Moderate (Numbness in hands, Poor lip closure, Dizziness/walking like I'm drunk)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Twice daily

  • 0 helpful marks
w76b
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w76b
Data Quality: 2 stars
  • Gender: M
  • Age: 62y
  • Duration: 11 yrs
Quality of life:
  • Mental: Mild
  • Physical: Mild
1 seizure
90 weeks ago
I am: b
I have:
Epilepsy

See w76b's full Carbamazepine history

May 14, 2013 (Started Jan 01, 2001)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • Effectiveness
    Moderate (for Seizures)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily

Jun 20, 2012 (Started Jan 01, 2001)

  • Effectiveness
    Moderate (for Seizures)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 200 mg Daily
Advice & Tips: My wife sets out all my medications. otherwise I know that I would forget often. Have someone help remind you.

  • 0 helpful marks
moniq118
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moniq118
Data Quality: 1 star
  • Gender: F
  • Age: 35y
  • Duration: 8 yrs
Quality of life:
  • Mental: Mild
  • Physical: Mild
1 seizure
233 weeks ago
I am: g
I have:
Epilepsy

See moniq118's full Carbamazepine history

May 26, 2012 (Started May 07, 2012)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • Side effects
    Severe (Heavy sensation, Dizziness)
  • Adherence
    Never taken as prescribed
  • Burden
    Very hard to take
Dosage: 400 mg Daily

  • 0 helpful marks
Zarabtul
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Zarabtul
Data Quality: 1 star
  • Gender: M
  • Age: 37y
  • Duration: 34 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: Moderate
  • Physical: Moderate
9 seizures
231 weeks ago
I am: vg
I have:
Epilepsy

See Zarabtul's full Carbamazepine history

Feb 9, 2008 (Started Feb 08, 2008)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • Side effects
    Severe (Rashes (redness, swelling))
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 100 mg Daily
Advice & Tips: It caused my throat to go totally raw and caused me to become ill within one day of taking it...
Cost: < $25 monthly
Side effects: Rashes (redness, swelling)

  • 0 helpful marks
Tegid
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Tegid
Data Quality: 1 star
  • Gender: M
  • Age: 50y
  • Duration: 16 yrs
Quality of life:
  • Mental: Mild
  • Physical: Mild
1 seizure
102 weeks ago
I am: g
I have:
Epilepsy

See Tegid's full Carbamazepine history

Sep 15, 2007 (Started Jul 01, 2001)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • Side effects
    Severe (Loss of thirst, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Low white blood cell count (leukopenia), Low Testosterone, Uveitis, Lactose Intolerance, Non-Celiac Gluten Intolerance, Food allergy, Loss of appetite, loss of thirst, Iritis)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1600 mg Daily
Advice & Tips: I became much less lucid and had major difficulties carrying out everyday activities. I had to stop work.

Sep 15, 2006 (Started Jul 01, 2001)

  • Effectiveness
    Slight (for Epilepsy)
  • Side effects
    Severe (Loss of thirst, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Low white blood cell count (leukopenia), Uveitis, Lactose Intolerance, Non-Celiac Gluten Intolerance, Food allergy, Loss of appetite, loss of thirst, Iritis)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 600 mg Daily
Advice & Tips: Owing to escalating food intolerances, I asked consultant if drugs could be withdrawn. They suggested I switched to Oxycarbazepine.

  • 0 helpful marks
JJWJ
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JJWJ
Data Quality: 1 star
  • Gender: M
  • Age: 60y
  • Duration: 50 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: Mild
  • Physical: None
2 seizures
273 weeks ago
I am: g
I have:
Epilepsy

See JJWJ's full Carbamazepine history

Oct 4, 1996 (Started Apr 16, 1992)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • Side effects
    Severe (Difficulty thinking)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 1200 mg Daily
Advice & Tips: 1) If you request a surgical evaluation and the doctor (in my case, Robert Gumnit, M.D.) refuses to let you out of the hospital forcing you to take more medication, get off of it if you can still think. If you cannot think another person will have to get you off of it and file a lawsuit in less than two years for you to have a chance to have a regular life again. 2) Over twenty percent of mothers I have talked with believe that "doctors know everything" and will not help their children survive. (And about 7000 deaths each year in the 1990s were due to a doctor killing a patient.) Make sure the person watching over you when you try a new medication will take action and not leave you a "zombie" (a nurse who told me I was within two days of death and my Dilantin count was up to 36.6 while getting off of Tegretol following the doctor's orders. 3) When I used over 500 mg/day of Tegretol, I could not think at all. When I got under 200 mg/day, then I regained control of my life. It was three years after my right hip shattered that I learned the Tegretol did that.
Side effects: Difficulty thinking

  • 0 helpful marks
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Showing 6 of 6 patient evaluations for Carbamazepine