53 patient evaluations for Tysabri with a burden rating of Not at all hard to take

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Feb 27, 2017 (Started Jan 15, 2011)

  • Effectiveness
    Major (for multiple sclerosis)
  • Effectiveness
    None (for Improve mobility)
  • Effectiveness
    Major (for General health)
  • Side effects
    Moderate (Bowel problems, Walking slower)
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I completed almost five years on Tysabri. Unfortunately I was diagnosed with breast cancer this month. had to stop it and move to Rebif.

  • 0 helpful marks

Mar 15, 2016 (Started Jun 01, 2007)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: Know your risk tolerance before you start, and then regularly ask what your current risk is when taking tysabri. It was great for me.
Cost: $50-99 monthly
Side effects: Pain in hands

Jan 21, 2011 (Started Jun 01, 2007)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Mild (Pain in hands)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: After I started taking this drug, I actually regained some function. I have been able to work myself back upto running 10k's. It has been a blessing. For more than a year, the day after the infussion was a great MS day. It was when I would feel my best. By the end of the cycle, I felt the withdrawl. Years later, the energy no longer really noticably spikes or dips. For the last few months, I have had increasing pains in my lower arms to my fingers with most recent pains in my fingers. Odd. Looking at list of possible side effects, I see joint pain listed. I can't say with any certainty the Tysabri causes the joint pain. It is but a guess...still, it is a concern I have that years of use may have a cumulative effect.
Cost: $50-99 monthly
Side effects: Pain in hands

  • 0 helpful marks

Sep 14, 2015 (Started May 03, 2013)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: < $25 monthly

  • 0 helpful marks

Oct 9, 2014 (Started Aug 29, 2007)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: $200+ monthly

Mar 22, 2011 (Started Aug 29, 2007)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: $200+ monthly

Feb 27, 2010 (Started Aug 29, 2007)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: $200+ monthly

  • 1 helpful mark

Jul 30, 2014 (Started Jan 15, 2012)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I'm really enjoying my Tysabri experience. Only having a once a month infusion has been liberating after 17 years of shots. I'm lucky to be JCV anti body negative. And I have no side effects at all. It's improved my symptoms as they are less frequent, although still present.

  • 0 helpful marks

Sep 28, 2013 (Started Sep 14, 2011)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Severe (JC virus)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: Cognitive improvement was significant. Muscle strength was significant.
Cost: < $25 monthly

  • 0 helpful marks

Jul 23, 2013 (Started Jul 01, 2010)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: Drink a lot of fluid before, during and after to help the medication's effectiveness. I also ask for food (with protein) to keep my energy level up. Usually the treatment facilities have fantastic food and there is no charge because your there for at least 3hours. Tysabri has been a huge benefit for me, I can't believe I waited as long as I did to start taking it.
Cost: < $25 monthly

  • 0 helpful marks

May 30, 2013 (Started Jul 13, 2011)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (Fatigue post infusion)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: Taking an antihistamine the day of treatment helped a great deal with treatment day fatigue.
Cost: $25-49 monthly

  • 0 helpful marks

Mar 31, 2013 (Started Jun 14, 2009)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks

  • 0 helpful marks

Dec 15, 2012 (Started Nov 01, 2010)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: The best tratment
Cost: < $25 monthly

Feb 19, 2011 (Started Nov 01, 2010)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I feel more secure. My condition still the same , I was having progresive simptoms, but now everything stay like stable.
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
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