51 patient evaluations for Tysabri with a burden rating of Not at all hard to take

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Stillmovin
20005 thumb
Stillmovin
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: none
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See Stillmovin's full Tysabri history

Sep 14, 2015 (Started May 03, 2013)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: < $25 monthly

  • 0 helpful marks
a-non-mouse
17881 thumb
a-non-mouse
Sex: M
Data Quality: 3 stars
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: none
Speech: none
Swallowing: none
Upper limb: mild
Walking: severe
I am: g
I have:
MS

See a-non-mouse's full Tysabri history

Oct 9, 2014 (Started Aug 29, 2007)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: $200+ monthly

Mar 22, 2011 (Started Aug 29, 2007)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: $200+ monthly

Feb 27, 2010 (Started Aug 29, 2007)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • side effects
    Mild
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL every 4 weeks
Cost: $200+ monthly

  • 1 helpful mark
amygtz
3379 thumb
amygtz
Sex: F
Data Quality: 1 star
Sensation: Mild
Overall: None
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: moderate
I am: n
I have:
MS

See amygtz's full Tysabri history

Jul 30, 2014 (Started Jan 15, 2012)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I'm really enjoying my Tysabri experience. Only having a once a month infusion has been liberating after 17 years of shots. I'm lucky to be JCV anti body negative. And I have no side effects at all. It's improved my symptoms as they are less frequent, although still present.

  • 0 helpful marks
cyclistgirl
Portrait default thumb
cyclistgirl
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: mild
I have:
MS

See cyclistgirl's full Tysabri history

Sep 28, 2013 (Started Sep 14, 2011)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • side effects
    Severe (JC Virus)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: Cognitive improvement was significant. Muscle strength was significant.
Cost: < $25 monthly

  • 0 helpful marks
NancyBeth
56600 thumb
NancyBeth
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: none
Speech: mild
Swallowing: none
Upper limb: mild
Walking: moderate
I am: g
I have:
MS

See NancyBeth's full Tysabri history

Jul 23, 2013 (Started Jul 01, 2010)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: Drink a lot of fluid before, during and after to help the medication's effectiveness. I also ask for food (with protein) to keep my energy level up. Usually the treatment facilities have fantastic food and there is no charge because your there for at least 3hours. Tysabri has been a huge benefit for me, I can't believe I waited as long as I did to start taking it.
Cost: < $25 monthly

  • 0 helpful marks
gardener
864 thumb
gardener
Sex: F
Data Quality: 2 stars
Sensation: Mild
Overall: None
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: none
I am: b
I have:
MS

See gardener's full Tysabri history

May 30, 2013 (Started Jul 13, 2011)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • side effects
    Mild (Fatigue post infusion)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: Taking an antihistamine the day of treatment helped a great deal with treatment day fatigue.
Cost: $25-49 monthly

  • 0 helpful marks
sleavell1
28211 thumb
sleavell1
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See sleavell1's full Tysabri history

Mar 31, 2013 (Started Jun 14, 2009)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks

  • 0 helpful marks
mangons02
Portrait default thumb
mangons02
Sex: F
Data Quality: 1 star
Sensation: None
Overall: Mild
Cognition: mild
Vision: mild
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See mangons02's full Tysabri history

Dec 15, 2012 (Started Nov 01, 2010)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: The best tratment
Cost: < $25 monthly

Feb 19, 2011 (Started Nov 01, 2010)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I feel more secure. My condition still the same , I was having progresive simptoms, but now everything stay like stable.
Cost: < $25 monthly

  • 0 helpful marks
baebae
2510 thumb
baebae
Sex: F
Data Quality: 2 stars
Relapse: Moderate
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: none
Speech: moderate
Swallowing: moderate
Upper limb: none
Walking: mild
I am: b
I have:
MS

See baebae's full Tysabri history

Jun 16, 2012 (Started Aug 15, 2008)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: I just received my 39th infusion on 6/13 (my 35th birthday) and I'm still going strong. Tysabri is still currently the best and most aggressive treatment available for me. The impact is small, only once per month for 2 hours and I love my nurse so that helps a lot. Some unexpected benefits would be that I am still doing great up to this point. I have a new neurologist as of October 2011 and she does not advise drug holidays. Her proposed approach is to consider getting infused every 8 weeks instead of every 4 weeks which equates to every other month and cuts my infusions in half to 6 per year instead of 12. This is an attempt to avoid the most dangerous side effect PML. The longer you take Tysabri, the greater your risk for developing PML if you are positive for the JC Virus which I am. For details about this, see my blog at http://didimentionmyms.blogspot.com/. 04/11/14-Today I am receiving my 62nd Tysabri infusion and I'm still going strong and relapse free, thank you Jesus!!
Cost: < $25 monthly
Side effects: Dry mouth, Dry eyes, Headaches, Fear of PML

May 23, 2011 (Started Aug 15, 2008)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I love Tysabri. I take drug holidays to give my immune system time to bounce back per doctor advice. I seriously recommend Tysabri for anyone whose disease is on the agressive side but has a decent and strong immune system since it is very aggressive. It works for me and really adds to my quality of life.
Cost: < $25 monthly
Side effects: Dry mouth, Dry eyes, Headaches, Fear of PML

Jan 9, 2010 (Started Aug 15, 2008)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • side effects
    Mild (Fear of PML, Headaches)
  • Adherence
    Always
  • Burden
    A little hard to take
Cost: < $25 monthly
Side effects: Dry mouth, Dry eyes, Headaches, Fear of PML

Nov 18, 2009 (Started Aug 15, 2008)

  • Effectiveness
    Major (for Multiple Sclerosis)
  • side effects
    Mild (Fear of PML, Headaches)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg/15 mL Monthly
Advice & Tips: I was on Tysabri for 18 months, now I plan to take a "drug holiday" for 6 months per doc's advice. My experience with Tysabri has been mainly positive. I hope and pray that I do well for the next 6 months. Before Tysabri, my lesions were multiplying at a fast pace. It was crazy.
Cost: < $25 monthly
Side effects: Dry mouth, Dry eyes, Headaches, Fear of PML

  • 3 helpful marks
Skuter58
Portrait default thumb
Skuter58
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: mild
I am: vg
I have:
MS

See Skuter58's full Tysabri history

May 30, 2012 (Started May 05, 2012)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • side effects
    Severe (Joint pain, Stiffness in morning)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I'll try 2nd infusion since I tested negative for rheumatoid arthritis and Lyme disease. Pain and stiffness have just decreased in time for my next infusion in June.
Cost: < $25 monthly

  • 0 helpful marks
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