25 patient evaluations for Carbidopa-Entacapone-Levodopa with a burden rating of Not at all hard to take

130 members have decided to share their profiles only with other members of PatientsLikeMe.

Mar 26, 2018 (Started Jan 10, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50-200-200 mg Three times daily
Advice & Tips: I take the kind that dissolves in your mouth, because of my emphysema. I take it three times a day at 8am 3pm and 10pm. That works well for me.
Cost: < $25 monthly

Jun 8, 2016 (Started Jan 10, 2011)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 50-200-200 mg Three times daily
Cost: < $25 monthly

  • 0 helpful marks

Jun 19, 2017 (Started Jul 01, 2011)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 12.5-200-50 mg Three times daily

  • 0 helpful marks

Jun 13, 2017 (Started May 19, 2017)

  • Effectiveness
    None (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50-200-200 mg Five times daily
Advice & Tips: I have advanced pd. We were hoping it might help me a little bit more than Rytary. It didn't.
Cost: $200+ monthly

Sep 16, 2015 (Started May 19, 2017)

  • Effectiveness
    Can't tell (for stiffness/spasticity)
  • Effectiveness
    Can't tell (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I HAVE BEEN GOING BACK AND FORTH BETWEEN STALEVO AND RYTARY. UNFORTUNATELY, NEITHER SEEM TO BE HELPNG ME.
Cost: $200+ monthly

Apr 13, 2015 (Started May 19, 2017)

  • Effectiveness
    Can't tell (for stiffness/spasticity)
  • Effectiveness
    Can't tell (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I STOPPED STALEVO TO GO ON RYTARY--THE NEW DRUG. I DON'T FEEL LIKE IT HELPED ME AT ALL
Cost: $200+ monthly

  • 0 helpful marks

Sep 15, 2016 (Started Mar 05, 2005)

  • Effectiveness
    Can't tell (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Cost: $25-49 monthly

Apr 14, 2015 (Started Mar 05, 2005)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 5 x 50-200-200 mg Daily
Advice & Tips: Stalevo did a great job for me for a very long time. After all these years it just wasn't working well.
Cost: $25-49 monthly

Apr 13, 2015 (Started Mar 05, 2005)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 50-200-200 mg Daily
Cost: $25-49 monthly

Jun 29, 2014 (Started Mar 05, 2005)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Five times daily
Advice & Tips: NOT WORKING SO WELL AFTER ALL THESE YEARS.
Cost: $25-49 monthly

Jul 14, 2012 (Started Mar 05, 2005)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Five times daily
Cost: $25-49 monthly

Sep 4, 2010 (Started Mar 05, 2005)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Five times daily
Cost: $25-49 monthly

Dec 13, 2009 (Started Mar 05, 2005)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Five times daily
Advice & Tips: Since the addition of Azilect 1mg, I have been able to lower my Stalevo dosing again. I now take Stalevo 100mg every 4 hours instead of every 3 1/2. Stalevo & Azilect have been a dream come true for me. My mobility has increased, and my dosage has gone down. What more could anyone ask for?!!!!
Cost: $25-49 monthly

Oct 1, 2009 (Started Mar 05, 2005)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Twice daily
Advice & Tips: I take Stalevo 100mg every 3 1/2 hours throughout the day which adds up to normally 500-600mg a day. I was taking Stalevo 150mg 4 times a day, but after getting some "wearing off" effects, my doctor added Azilect 1mg in the am and dropped my Stalevo down to 100mg every 3 1/2 hours. Now, I can normally go 3 1/2 hours without feeling the "wearing off" effect. Sometimes, I can push it to 4 hours, but under doctor's orders, I take it every 3 1/2 hours to keep the stability of being "on".
Cost: $25-49 monthly

Aug 23, 2009 (Started Mar 05, 2005)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Twice daily
Advice & Tips: Stalevo was the first drug that I could tolerate in my first two years after my PD diagnosis. My neurologist and gastroenterologist worked together to find out why, trying Mirapex twice and Requip twice, that I would get severe abdominal pain, vomiting, dry heaves & migraines after titrating up to the six week point; then wound up in the hospital twice. I spent the first two years like this to the point that I lost 35 pounds in a year taking me down to 105 lbs. and could barely get out of bed. My doctor was waiting for the release of Stalevo, thinking it would be the only drug that I could tolerate at this point. I started taking 50mg and titrated to 150mg four times a day. It gave me my life back again. I finally started to feel better.
Cost: $25-49 monthly

  • 5 helpful marks

Jan 22, 2015 (Started Nov 02, 2008)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (jerky movements, excessive sweating)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 25 mg-200 mg-100 mg Five times daily
Side effects: jerky movements, excessive sweating

Jan 15, 2014 (Started Nov 02, 2008)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Side effects
    Moderate (jerky movements, excessive sweating)
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: 3 x 12.5 mg-200 mg-50 mg Daily
Side effects: jerky movements, excessive sweating

  • 0 helpful marks

Jul 1, 2014 (Started Aug 01, 2010)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Moderate (elevated liver enzymes)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 25 mg-200 mg-100 mg Daily
Advice & Tips: did not experience OCD while on this drug
Cost: $25-49 monthly

Dec 21, 2010 (Started Aug 01, 2010)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg-200 mg-100 mg Daily
Cost: $25-49 monthly

  • 0 helpful marks

Jan 29, 2013 (Started Jul 01, 2010)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 x 12.5 mg-200 mg-50 mg Daily

  • 0 helpful marks

Dec 15, 2012 (Started Jul 12, 2010)

  • Effectiveness
    Can't tell (for walking problems)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 18.75 mg-200 mg-75 mg Daily

Jun 30, 2012 (Started Jul 12, 2010)

  • Effectiveness
    Can't tell (for walking problems)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 18.75 mg-200 mg-75 mg Daily

  • 0 helpful marks

Nov 22, 2012 (Started Nov 09, 2010)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 4 x 50 mg-200 mg-200 mg Daily
Advice & Tips: The peaks and valleys of this drug had started at about a 4 hourly cycle, but it had diminished to under 3 hours. Due to this I found Sinimet CR a longer cycle of sbout 4 hours which allowed me to take less medicine
Cost: < $25 monthly

  • 0 helpful marks

Mar 21, 2012 (Started Sep 15, 2008)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 7 x 18.75 mg-200 mg-75 mg Daily
Cost: $200+ monthly

  • 0 helpful marks
Last updated:
Showing 10 of 25 patient evaluations for Carbidopa-Entacapone-Levodopa