17 patient evaluations for Milnacipran with a burden rating of A little hard to take

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Jun 15, 2015 (Started Jul 01, 2010)

  • Effectiveness
    Major (for fibromyalgia)
  • Side effects
    Mild (weight gain)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 12.5 mg Daily
Advice & Tips: I felt that Savella was very effective in managing FM symptoms, however, with Obamacare, it was too expensive to keep taking it. I gradually weened off the medication, and am now using supplements from Melaleuca and JuicePlus and am doing just as well.
Cost: $200+ monthly

  • 1 helpful mark

Jul 25, 2013 (Started Nov 27, 2009)

  • Effectiveness
    Moderate (for fibromyalgia)
  • Side effects
    Severe (high blood pressure increased)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Advice & Tips: Make sure you monitor your blood pressure. My blood pressure almost doubled taking this med.

  • 0 helpful marks

Jul 28, 2012 (Started Jul 28, 2011)

  • Effectiveness
    None (for fibromyalgia)
  • Side effects
    Severe (hot flashes, excessive sweating)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Advice & Tips: I am currently lowering my dosage to discontinue this treatment i take 50 mg a day atm
Cost: < $25 monthly

  • 0 helpful marks

Jul 17, 2012 (Started Mar 10, 2010)

  • Effectiveness
    Slight (for fibromyalgia)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

Feb 23, 2011 (Started Mar 10, 2010)

  • Effectiveness
    Moderate (for fibromyalgia)
  • Side effects
    None
  • Adherence
    Sometimes
  • Burden
    Very hard to take
Dosage: 100 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks

Jun 21, 2012 (Started Jun 07, 2012)

  • Effectiveness
    None (for fibromyalgia)
  • Effectiveness
    None (for pain)
  • Side effects
    Severe (dryness)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 12.5 mg Daily

  • 0 helpful marks

Jan 13, 2011 (Started Dec 10, 2010)

  • Effectiveness
    Major (for fibromyalgia)
  • Side effects
    Moderate (nausea, racing heart feeling, brain fog, restless feeling in legs, giddiness, jittery feeling)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Advice & Tips: I was joking with my partner yesterday that "Save-ella" is aptly named :) I've been on it for almost a month now and just refilled for the next three months at my new stable dosage (100mg/day). I requested, and got, a rx for one 100mg tab a day instead of two 50mg tabs because it would be half the cost through my insurance that way. I noticed a HUGE difference with Savella. Clearly whatever that's wrong with me Savella fixes. I do notice the odd nausea or "hot flash" from time to time, but it's gone down in intensity and frequency considerably. And, frankly, the side effects are worth the benefits for me. Actually -- and this could be because it's winter -- I've felt colder in general than I did when I was taking tramadol daily, which also made me sweat. The only problem that I'm still struggling with is an amplification of RLS symptoms, which is common with anything that increases serotonin. I feel almost normal again. I haven't felt like this in four years or so. For people considering taking Savella, two recommendations are to advance dosage MUCH slower than the mfgr suggests. I didn't up my dose until I was OK at the dose I was already at. Also, take it with food. This forced me to eat breakfast every day, which I never did before. Savella is not a 100% cure. I'd say it's muted my pain by about 40-50%, which is a huge improvement. It's given me the "space" to actually consider exercising, which is also supposed to help FM.
Cost: $25-49 monthly
Side effects: jittery feeling, racing heart feeling, giddiness, restless feeling in legs, excessive sweating, brain fog, nausea

Dec 24, 2010 (Started Dec 10, 2010)

  • Effectiveness
    Major (for fibromyalgia)
  • Side effects
    Moderate (nausea, racing heart feeling, brain fog, restless feeling in legs, jittery feeling)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: Now that I've finally stabilized my Savella dosage, I have to say that's I'm extremely pleased with this drug. I feel like myself again for the first time in five years. The strongest positive effect has been with my energy level. I don't have to drag myself to and from bed anymore. I don't dread going up the stairs to fetch something. I actually can do something after work at night instead of collapse in my recliner. I'm still tired at the end of the day, but it's a normal, ready-to-go-to-bed tired instead of exhaustion. I'd say it's muted my pain level by about 40-50%, which feels wonderful. I'm still managing what's left through other medications, but having the fatigue lifted makes a big difference in my mood. If I have to rest because of physical pain I can still be mentally active, which I wasn't able to do before because of brain fog. Lots of people complain about side effects with Savella. As long as I eat a few bites of something in the morning I have no nausea. I'm not sweating anymore either, which is nice, because I was sweating constantly on the tramadol. I think if you want to give this drug a try, make the commitment to go up SLOWLY on your dose, and give it a little time before you expect to see anything. I didn't advance my dose until I was fully adjusted to the dose I was already on, so it was fairly painless.
Cost: $25-49 monthly
Side effects: jittery feeling, racing heart feeling, giddiness, restless feeling in legs, excessive sweating, brain fog, nausea

Dec 20, 2010 (Started Dec 10, 2010)

  • Effectiveness
    Moderate (for fibromyalgia)
  • Side effects
    Moderate (nausea, racing heart feeling, brain fog, restless feeling in legs, jittery feeling)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 75 mg Daily
Advice & Tips: Yesterday and today were the first days I really started to feel better. Last week I noticed I was feeling more cheerful overall, but it wasn't until I hit the 75mg/day mark that it started to make an impact on my pain. I stepped up pretty gradually -- each time I had a little bit of nausea (unless I forgot to eat when I took it, and then I had a LOT of nausea). I feel a LOT more energetic, almost a nervous, over-caffeinated energy which is a little annoying. I expect that to go away after awhile. I take my afternoon dose about 3/4pm so it doesn't interfere with my sleep. Last week I was having a terrible time with RLS symptoms, which might have been because I was coming off of tramadol which is often used for RLS. Last couple of nights were better but I stayed awake until I was exhausted and then took a double does of melatonin when I finally did go to bed. So far feeling REALLY positive about this drug. I feel like "myself" for the first time in years. I hope it continues!
Cost: $25-49 monthly
Side effects: jittery feeling, racing heart feeling, giddiness, restless feeling in legs, excessive sweating, brain fog, nausea

Dec 15, 2010 (Started Dec 10, 2010)

  • Effectiveness
    Can't tell (for fibromyalgia)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg Daily
Advice & Tips: On day 5 of my titration for Savella. Doc was worried about nausea so he started me on 12.5mg a day. When I took the rx to the pharamcy I found out I could get 25mg tablets instead and split them for a cost savings. My insurance copay was $10 for 15 tablets instead of $17.75 for 30 12.5mgs, which the pharmacy didn't stock. Note: 25mg tablets are frickin' tiny! Anyway, I did the 12.5mg a day, with my bedtime medicine cocktail, for 4 days. No effects, bad or good. Started 2 x 12.5mg at lunch and bedtime yesterday and today. If nothing happens, I will go to 2 x 25mg tomorrow. Because of the possible serotonin interaction with Savella, I have to discontinue my tramadol, which I've been on for over a year. I've halved my dose and plan to be done by Friday. I feel like crap, so clearly the tramadol has been doing something for me.
Side effects: jittery feeling, racing heart feeling, giddiness, restless feeling in legs, excessive sweating, brain fog, nausea

  • 2 helpful marks

Nov 8, 2010 (Started Nov 02, 2010)

  • Effectiveness
    None (for fibromyalgia)
  • Side effects
    Moderate
  • Adherence
    Never taken as prescribed
  • Burden
    A little hard to take
Dosage: 12.5 mg Daily
Advice & Tips: Experiencing greater than normal suicidal thoughts again and just not sure if the medicine is causing this and also swelling and pain in my feet. Trying to get off as many meds as I can as my I seem to be intolerant of many meds and I can't tell if this is helping or hurting me. Plus it scares me to be taking so many meds. I only had professional samples - I never filled the script as I never had the money (have been out of work for 3 months since getting hte script and have had no money).

  • 0 helpful marks

Oct 5, 2010 (Started Oct 05, 2010)

  • Effectiveness
    Major (for fibromyalgia)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 25 mg Daily
Cost: $25-49 monthly

  • 0 helpful marks

Aug 15, 2010 (Started Sep 16, 2010)

  • Effectiveness
    None (for fatigue)
  • Effectiveness
    None (for fibromyalgia)
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    A little hard to take
Advice & Tips: pay very close attention to your mood and thought changes, especially in the first few weeks.
Cost: $50-99 monthly

  • 0 helpful marks

May 14, 2010 (Started Apr 21, 2010)

  • Effectiveness
    Moderate (for fibromyalgia)
  • Side effects
    Mild (anxious mood, nausea, hot flashes, night sweats)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Cost: $25-49 monthly
Side effects: night sweats, hot flashes, nausea, anxious mood, anxious mood

Apr 12, 2010 (Started Apr 21, 2010)

  • Effectiveness
    Moderate (for fibromyalgia)
  • Side effects
    Mild (hot flashes, night sweats)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Cost: $25-49 monthly
Side effects: night sweats, hot flashes, nausea, anxious mood, anxious mood

  • 0 helpful marks
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