10 patient evaluations for Levetiracetam with a burden rating of A little hard to take

100 members have decided to share their profiles only with other members of PatientsLikeMe.

Sep 21, 2017 (Started Nov 30, 2016)

  • Effectiveness
    Moderate (for seizures (grand mal or tonic-clonic))
  • Effectiveness
    Moderate (for epilepsy)
  • Side effects
    Moderate (headaches)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 500 mg Twice daily
Cost: $25-49 monthly

Jan 6, 2017 (Started Nov 30, 2016)

  • Effectiveness
    Moderate (for seizures (grand mal or tonic-clonic))
  • Side effects
    Mild (headaches)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 500 mg Twice daily
Cost: $50-99 monthly

  • 0 helpful marks

Aug 30, 2016 (Started Nov 15, 2008)

  • Effectiveness
    Moderate (for stiffness/spasticity)
  • Side effects
    Mild (drowsiness)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 1000 mg Three times daily

Aug 13, 2011 (Started Nov 15, 2008)

  • Effectiveness
    Slight (for stiffness/spasticity)
  • Side effects
    Mild (drowsiness)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 1000 mg Three times daily

Nov 17, 2010 (Started Nov 15, 2008)

  • Effectiveness
    Moderate (for stiffness/spasticity)
  • Side effects
    Mild (drowsiness)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 300 mg Daily

  • 0 helpful marks

Mar 25, 2013 (Started Dec 13, 2012)

  • Effectiveness
    Moderate (for epilepsy)
  • Side effects
    Moderate (Mood swings, mild depression, mood swings)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 1000 mg Daily

  • 0 helpful marks

Nov 29, 2012 (Started Apr 12, 2009)

  • Effectiveness
    Moderate (for epilepsy)
  • Side effects
    Moderate (paranoia, itchy nose)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 2000 mg Daily
Cost: $100-199 monthly
Side effects: vision loss in left side of visual field for both eyes, itchy nose, paranoia

Jul 7, 2011 (Started Apr 12, 2009)

  • Effectiveness
    Moderate (for epilepsy)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily
Cost: $100-199 monthly
Side effects: vision loss in left side of visual field for both eyes, itchy nose, paranoia

  • 0 helpful marks

Jun 2, 2011 (Started Apr 01, 2011)

  • Effectiveness
    Major (for epilepsy)
  • Side effects
    Moderate (anxious mood, brain fog, tiredness, difficulty eating, excessive sleeping (hypersomnia))
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 1000 mg Daily
Cost: < $25 monthly
Side effects: excessive sleeping (hypersomnia), tiredness, anxious mood, brain fog, difficulty eating

May 23, 2011 (Started Apr 01, 2011)

  • Effectiveness
    Major (for epilepsy)
  • Side effects
    Severe (anxious mood, brain fog, difficulty eating, excessive sleeping (hypersomnia))
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 1000 mg Daily
Advice & Tips: -Get into a routine taking it, I take it multiple times a day and make sure I take them roughly the same time each day. -Keppra has leveled out my night sleeping pattern nicely! -Keppra makes me very very tired so I find it hard to concentrate and "join in" activities sometimes because I am tired.
Cost: < $25 monthly
Side effects: excessive sleeping (hypersomnia), tiredness, anxious mood, brain fog, difficulty eating

  • 0 helpful marks

May 15, 2011 (Started Jan 10, 2011)

  • Effectiveness
    Moderate (for epilepsy)
  • Side effects
    Moderate (excessive daytime sleepiness (somnolence), tremor in hands, pain in fingers, nightmares, bad dreams)
  • Adherence
    Always
  • Burden
    A little hard to take
Advice & Tips: Taking Levetiracetam is not difficult. My neuro replaced it for Topamax. I've not seen any benefits from it. Unlike the Topamax that kept me seizure free for 6 months, Levetiracetam did not improve or change the sz activity. The side effects are bothersome. I have nightmares nightly. It makes me extremely sleepy around midday. I try to fight it but sometimes I can't win. I feel over medicated. So it has disrupted my night sleep now and it makes me nervous when I go to bed and when I'm not feeling well. Also something I never experienced with any drug, sometimes I have audio hallucinations. Random strange noises that don't last long. My appetite has increased. I'll be fine then all of a sudden I'm starving! I don't know if I'm eating from nervousness but it's consumption is constant and I'm gaining weight.
Cost: < $25 monthly
Side effects: nightmares, pain in fingers, tremor in hands, excessive daytime sleepiness (somnolence), bad dreams

May 1, 2011 (Started Jan 10, 2011)

  • Effectiveness
    Can't tell (for epilepsy)
  • Side effects
    Moderate (excessive daytime sleepiness (somnolence), tremor in hands, pain in fingers, nightmares, bad dreams)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: It didn't improve my seizure activity. I gained weight with this drug. It made me increasingly nervous. It was hard to stay awake during the day. At night I dreaded going to sleep because of nightmares. I heard sounds with this drug. Not voices, but sounds. Unidentifiable sounds. I was taking the generic form of Keppra.
Cost: < $25 monthly
Side effects: nightmares, pain in fingers, tremor in hands, excessive daytime sleepiness (somnolence), bad dreams

Mar 1, 2011 (Started Jan 10, 2011)

  • Effectiveness
    Moderate (for epilepsy)
  • Side effects
    Moderate (excessive daytime sleepiness (somnolence), tremor in hands, pain in fingers, nightmares, bad dreams)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Advice & Tips: 1. I take this treatment with food twice daily. 1 in the morning and 1 at night. 2. I had hoped it would stop the sz but just like everything else it's not been effective. 3. Experiencing nightmares or bad dreams. Excessive sleepiness around midday. Increase in appetite. I wish I could afford brand name Keppra (and Dilantin) if nothing else to compare them with the generic brands and see if the results differ.
Cost: < $25 monthly
Side effects: nightmares, pain in fingers, tremor in hands, excessive daytime sleepiness (somnolence), bad dreams

Feb 2, 2011 (Started Jan 10, 2011)

  • Effectiveness
    Moderate (for epilepsy)
  • Side effects
    Severe (nightmares)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1500 mg Daily
Advice & Tips: I think this is Keppra by generic name. and it had too many side effects for me. It made me nervous and bad dreams.
Cost: < $25 monthly
Side effects: nightmares, pain in fingers, tremor in hands, excessive daytime sleepiness (somnolence), bad dreams

  • 1 helpful mark

Mar 23, 2011 (Started Jun 03, 2011)

  • Effectiveness
    Major (for epilepsy)
  • Side effects
    Mild (sleepiness)
  • Adherence
    Always
  • Burden
    A little hard to take
Advice & Tips: This has been a great product. The side effects are minimal - it tends to make me a bit more tired, and I seem to be more ADD, but I would recommend it in a heartbeat.
Side effects: sleepiness

Oct 10, 2010 (Started Jun 03, 2011)

  • Effectiveness
    Major (for epilepsy)
  • Side effects
    Mild (sleepiness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Great - just stay on it consistently.
Side effects: sleepiness

  • 0 helpful marks

Jun 9, 2010 (Started Mar 15, 2011)

  • Effectiveness
    Major (for epilepsy)
  • Side effects
    Moderate (memory problems, balance problems, clumsiness)
  • Adherence
    Always
  • Burden
    A little hard to take
Side effects: balance problems, clumsiness, memory problems

  • 1 helpful mark

Feb 18, 2010 (Started May 03, 2010)

  • Effectiveness
    Major (for epilepsy)
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    A little hard to take
Advice & Tips: The cocktail of medication I take has caused me to change my diet and certain things I like to often eat since the food will no longer agree with me or can also reverse the effects of the medication.

  • 0 helpful marks

Oct 21, 2009 (Started Apr 01, 2003)

  • Effectiveness
    Moderate (for nerve pain (neuralgia))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 4500 mg Daily

  • 0 helpful marks
Last updated:
Showing 10 of 10 patient evaluations for Levetiracetam