16 patient evaluations for Topiramate with a burden rating of A little hard to take

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May 25, 2017 (Started Apr 10, 2017)

  • Effectiveness
    Can’t tell (for Support mental / emotional health)
  • Effectiveness
    Can’t tell (for dissociation)
  • Side effects
    Severe (word fishing, numbness and tingling with pins and needles, dizziness and feeling faint)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 200 mg Twice daily

  • 0 helpful marks

May 9, 2017 (Started Feb 18, 2010)

  • Effectiveness
    Moderate (for Treat my mood condition(s))
  • Effectiveness
    Major (for migraine headaches)
  • Effectiveness
    Moderate (for bipolar disorder)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 200 mg Daily

Dec 4, 2010 (Started Feb 18, 2010)

  • Effectiveness
    Moderate (for Treat my mood condition(s))
  • Effectiveness
    Moderate (for bipolar disorder)
  • Effectiveness
    Moderate (for migraine headaches)
  • Side effects
    Severe
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 200 mg Daily

  • 1 helpful mark

Mar 17, 2017 (Started Mar 05, 2017)

  • Effectiveness
    Major (for migraine headaches)
  • Side effects
    Moderate (anorexia nervosa, aphasia, stuttering)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Twice daily
Advice & Tips: I suffered from crushing migraines for 40 years.... when i got the 100mg dose 2 x day my migraines disappeared, fir that i will put up with aphasia and stuttering and spelling errors to not have crushing pain for 40 years. i can now wean off the narcotics i took norco 10mg /325 to get pain control to 4-5/10 and now i am pain free it is a good trade.
Cost: < $25 monthly

  • 0 helpful marks

May 19, 2014 (Started Jul 29, 2005)

  • Effectiveness
    Slight (for epilepsy)
  • Side effects
    Moderate (hair loss, hair loss)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 600 mg Daily
Advice & Tips: after trying 4 different kinds of seizure med gained 70 lbs I asked to go back to Dilantin . now they feel other meds or symptoms may be counteracting with my Dilantin from working , trying me on metformin for sugar to help with counteractions .
Cost: < $25 monthly

Mar 8, 2014 (Started Jul 29, 2005)

  • Effectiveness
    Moderate (for epilepsy)
  • Side effects
    Mild (hair loss, hair loss)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 600 mg Daily
Advice & Tips: I have to take topomax reg DAW because the generic topomax causes me to have , pedimal seizures . No matter what the dr, or insurance co. tells you , the generic is not as safe , always found out many times with other meds .
Cost: < $25 monthly

  • 0 helpful marks

Mar 15, 2013 (Started Jun 01, 2011)

  • Effectiveness
    Slight (for migraine headaches)
  • Side effects
    Mild (withdrawal effects, insomnia, anxious mood, agitation)
  • Adherence
    Sometimes
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Advice & Tips: I started taking as needed then, realized that it could be contributing to what I believe (self-diagnosed) was Serotonin Syndrome which, combined with everything else I was taking. If you find your condition (of any type) suddenly worse (within minutes or hours), start by asking your doctor about this first. It's taken me a year worth of specialists (who found nothing), psych tests (which proved I wasn't 'making it up'), and SELF RESEARCH to realize my problem. Miraculously, at least the symptoms that have been plaguing me since EXACTLY April of 2012 have gotten about 75% better within about 4 days. It happened so fast, I thought I had had a stroke or was going insane. Don't let this happen to you.
Cost: < $25 monthly

Jul 21, 2012 (Started Jun 01, 2011)

  • Effectiveness
    Major (for Prevent migraine)
  • Effectiveness
    Major (for migraine headaches)
  • Side effects
    Mild (withdrawal effects, insomnia, anxious mood, agitation)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: Helps when taken. My prescription ran out a few days ago and I haven't gone into the drugstore yet. Will be starting dose again soon. 8/2/12 Pharmacy informs me I haven't refilled since May. Oops!
Cost: < $25 monthly

Jun 30, 2012 (Started Jun 01, 2011)

  • Effectiveness
    Major (for Prevent migraine)
  • Effectiveness
    Major (for migraine headaches)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 1 helpful mark

Aug 19, 2012 (Started Feb 13, 2003)

  • Effectiveness
    Major (for epilepsy)
  • Side effects
    Mild (Reduced Sweating, alternating constipation and diarrhea, tingling sensation in extremities, constipation, weight loss, difficulty speaking (dysarthria), decreased sweating (hypohidrosis))
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 500 mg Daily
Cost: < $25 monthly

Apr 27, 2012 (Started Feb 13, 2003)

  • Effectiveness
    Major (for epilepsy)
  • Side effects
    Moderate (Reduced Sweating, alternating constipation and diarrhea, tingling sensation in extremities, constipation, weight loss, difficulty speaking (dysarthria), decreased sweating (hypohidrosis))
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 500 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Mar 14, 2012 (Started Jun 15, 2009)

  • Effectiveness
    Can’t tell (for seizures from flashing lights (photosensitive epilepsy))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 150 mg Daily

  • 0 helpful marks

Jan 5, 2012 (Started Jul 01, 2010)

  • Effectiveness
    Can’t tell (for epilepsy)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks

Jun 16, 2011 (Started Jun 14, 2011)

  • Effectiveness
    Moderate (for epilepsy)
  • Side effects
    Mild (suicidal thoughts or urges, feeling of heart pounding, trouble spelling, night cramps in legs and feet, numbness in hands)
  • Adherence
    Always
  • Burden
    A little hard to take
Advice & Tips: I stopped Topamax (generic) in January when my neuro put me on generic keppra. There has not been any improvement with that drug and I do not like the effects of it. Neuro has started me on Topamax again. 06/14/11 I began taking 1/2 caplet of topamax at bedtime along with my regular dose of 4 dilantin and 2 keppra. Gradually I will build the dose up to 2 tablets of topamax daily with 4 dilantin (as before) and stop the keppra. Wish me luck! My meds are all generic prices.
Cost: < $25 monthly
Side effects: suicidal thoughts or urges, feeling of heart pounding, trouble spelling, numbness in hands, night cramps in legs and feet

Jan 10, 2011 (Started Jun 14, 2011)

  • Effectiveness
    Moderate (for epilepsy)
  • Side effects
    Moderate (suicidal thoughts or urges, feeling of heart pounding, trouble spelling, night cramps in legs and feet, numbness in hands)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Manage: I took Topamax 2x daily. 1 in the morning with food and 1 in the evening with supper. 2. Benefits: It made lose weight. 3. Impact: Learning to adjust to it's side effects.
Side effects: suicidal thoughts or urges, feeling of heart pounding, trouble spelling, numbness in hands, night cramps in legs and feet

Jun 24, 2010 (Started Jun 14, 2011)

  • Effectiveness
    Can’t tell (for epilepsy)
  • Side effects
    Moderate (suicidal thoughts or urges, feeling of heart pounding, trouble spelling, night cramps in legs and feet, numbness in hands)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: 1.Manage: Inform and prepare yourself for this drug. If you are experienced with taking medications you may manage well with it. If you are a weak person, you may want to try something else. 2. Benefits: Weight loss and it keeps it off. Please do not use this drug for weight loss!! It might sharpen your cognitive or judgment skills but it's only temporary. Then they may become clouded. 3. Impact: Food flavor may suddenly change. There will be times when you are sleeping that you will awake to your heart pounding in your chest...feeling of impending doom, thoughts of being sicker than you really are and ideas of suicide are side effects you may experience with this drug. Brand name or generic it is a high priced drug.
Side effects: suicidal thoughts or urges, feeling of heart pounding, trouble spelling, numbness in hands, night cramps in legs and feet

Jun 22, 2010 (Started Jun 14, 2011)

  • Effectiveness
    Can’t tell (for epilepsy)
  • Side effects
    Moderate (suicidal thoughts or urges, feeling of heart pounding, trouble spelling, night cramps in legs and feet, numbness in hands)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Topamax helped me drop weight but that's not why I agreed to take it. I wanted to be seizure free! And the spells stopped for 6 months but then they started up again. One must be very careful when using this drug because it has many side effects. I have learned to recognize them and distinguish the difference between me and the drug but the most bothersome and hardest to cope with is the sudden rush of my heart pounding on my chest. It scares me to death. I think it's time for me to get off this drug. Please be careful if you use this drug. It's also very expensive in generic brand too.
Side effects: suicidal thoughts or urges, feeling of heart pounding, trouble spelling, numbness in hands, night cramps in legs and feet

  • 1 helpful mark

Jun 6, 2011 (Started Feb 10, 2007)

  • Effectiveness
    Moderate (for migraine)
  • Side effects
    Moderate (metallic taste in mouth, mental confusion, dry mouth)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 200 mg Daily
Advice & Tips: dry mouth, taste altering, weight changes, confusion
Cost: < $25 monthly
Side effects: dry mouth, mental confusion, metallic taste in mouth

  • 0 helpful marks
Last updated:
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