74 patient evaluations for Prednisone with a burden rating of Not at all hard to take

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Nov 17, 2018 (Started Oct 15, 2018)

  • Effectiveness
    Major (for Bell's palsy)
  • Effectiveness
    Major (for difficulty eating)
  • Effectiveness
    Major (for facial pain)
  • Effectiveness
    Major (for facial paralysis)
  • Effectiveness
    Major (for nerve pain (neuralgia))
  • Side effects
    Mild (bad taste in mouth)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 mg Daily
Cost: < $25 monthly

Oct 24, 2018 (Started Oct 15, 2018)

  • Effectiveness
    Slight (for Bell's palsy)
  • Effectiveness
    Major (for facial pain)
  • Effectiveness
    Slight (for facial paralysis)
  • Side effects
    Moderate (bad taste in mouth)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Aug 24, 2017 (Started Dec 15, 2015)

  • Effectiveness
    Can't tell (for bronchospasm)
  • Effectiveness
    Can't tell (for asthma)
  • Effectiveness
    Can't tell (for influenza (the "flu"))
  • Effectiveness
    Can't tell (for pneumonia)
  • Side effects
    Mild (fluid retention (edema))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: As needed
Advice & Tips: Currently I just take 20 mg the day before and after my IVIG. I receive 40 mg the day of the infusion as premedication.

Dec 19, 2015 (Started Dec 15, 2015)

  • Effectiveness
    Moderate (for pneumonia)
  • Side effects
    Mild (fluid retention (edema))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily

  • 0 helpful marks

Aug 15, 2016 (Started Jan 01, 1985)

  • Effectiveness
    Major (for Addison's disease)
  • Effectiveness
    Moderate (for rheumatoid arthritis)
  • Side effects
    Moderate (diabetes type 2, weight gain, acute renal failure)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 mg Daily
Advice & Tips: Prednisone has long (30 years worth) been my "nasty but necessary" treatment for my Rheumatoid Arthritis. It has caused me innumerable side effect problems, including 100lbs of weight gain, the dissolution of my previous marriage, Diabetes II, renal (kidney) failure, etc... Going off of it at various times has made me extremely ill, at least 3 times resulted in my hospitalization. For many years, this was the only RA treatment that functioned consistently and allowed me to continue living my life at least somewhat normally.
Cost: < $25 monthly

  • 1 helpful mark

Jul 21, 2016 (Started Sep 15, 2015)

  • Effectiveness
    Moderate (for arthritis pain)
  • Effectiveness
    Moderate (for Crohn's disease)
  • Effectiveness
    Slight (for inflammation in joints)
  • Side effects
    Severe (mood swings, insomnia (less than 2 hours sleep), weight gain, dry skin, excessive thirst (polydipsia))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Daily
Advice & Tips: This is low cost but the side effects are worth considering. For short term use not an issue. For long term however, it has weight gain and insomnia, anxiousness, and need to taper of slowly or major withdrawals an issue. It seems for me it is no longer as effective from long term use.
Cost: < $25 monthly

  • 0 helpful marks

Apr 17, 2016 (Started Feb 03, 2015)

  • Effectiveness
    None (for myalgic encephalomyelitis/chronic fatigue syndrome)
  • Effectiveness
    Can't tell (for polymyalgia rheumatica)
  • Side effects
    Severe (flushing, feeling feverish, wired, tachycardia (fast heart rate), elevated blood pressure, stretch marks, moon face, weight gain, blurry vision, bruising, rash on face)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1.25 mg Daily
Advice & Tips: Down to 1,25 mg since five days. The day after I woke with face rash that worsened during the day and the day after. Try to treat with lavender oil and coconut oil. A little better. Have always had perfect skin. Read somewhere that it might well be effect of tapering, happened to others too. More pain, especially in the thighs (that's why the GP thought it was PMR), weaker, stiffer, feel like I might fall when walking the rest of the day if I take a short walk (300 m) earlier in the day. On the plus side: moon face and double chin visibly reduced. Can't wait to get off completely next week.

Apr 8, 2016 (Started Feb 03, 2015)

  • Effectiveness
    Can't tell (for polymyalgia rheumatica)
  • Side effects
    Severe (flushing, feeling feverish, wired, tachycardia (fast heart rate), elevated blood pressure, stretch marks, moon face, weight gain, blurry vision, bruising)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2.5 mg Daily
Advice & Tips: Turns out I never had PMR. Very difficult to come off. Suddenly easier when came down to 5 mg than earlier (from 40, started being difficult at 27,5 already). Positive: very strong nails, but that is the only one. The side effects are difficult. Especially sad for all the big and ugly stretch marks everywhere that will remain. Looking forward to getting rid of the moon face and the pred belly.

Mar 5, 2015 (Started Feb 03, 2015)

  • Effectiveness
    Moderate (for polymyalgia rheumatica)
  • Side effects
    Moderate (flushing, feeling feverish, wired, tachycardia (fast heart rate), moon face)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 40 mg Daily
Advice & Tips: At 40 mg I am far from well (still weak, unable to stand for long and can't walk too far), but I have started to wake up rested in the mornings the last week or so, not in too much pain, less flu symptoms, and am able to think properly (calmly and methodically) for the first time in 19 years. The side effects seem to come a few days into new or elevated dose, stay for a week or two and then lessen as the body adjusts.
Cost: < $25 monthly

  • 0 helpful marks

May 3, 2015 (Started Oct 06, 2011)

  • Effectiveness
    Slight (for rheumatoid arthritis)
  • Effectiveness
    None (for systemic lupus erythematosus)
  • Side effects
    Mild (rashes (redness, swelling))
  • Adherence
    Always
  • Burden
    Not at all hard to take

Mar 15, 2015 (Started Oct 06, 2011)

  • Effectiveness
    Can't tell (for rheumatoid arthritis)
  • Effectiveness
    Can't tell (for systemic lupus erythematosus)
  • Side effects
    Mild (rashes (redness, swelling))
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 10 mg Daily

  • 0 helpful marks

Nov 22, 2014 (Started Aug 15, 2014)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Moderate (skin thinning, abdominal bloating)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Advice & Tips: I was tapering from Dexamethasone to no steroids.

  • 0 helpful marks

May 31, 2014 (Started Sep 06, 2013)

  • Effectiveness
    Major (for gastrointestinal bleeding)
  • Effectiveness
    Major (for Crohn's disease)
  • Effectiveness
    Major (for Crohn's flare up)
  • Side effects
    Moderate (anxious mood, shaky hands, insomnia, hunger, weight gain, mood elevated or improved, feeling of heart pounding)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 60 mg Daily
Advice & Tips: Expect weight gain and nervousness, for sure... probably insomnia too. Never go off of the medication without TAPERING the doseage down. Once you start tapering down and your flare-up has subsided, you can take more of the doseage in the morning than in the evening. In fact, once I get down to 40mg/day I take one 20mg tab as early in the morning as possible and then the other 20mg tab around noon. After a few days of this, I start sleeping better (though sometimes it is still hard to get to sleep). Taking melatonin or other herbal sleep remedies can help at night, as well. If I do happen to get tired during the day I take advantage of it and nap. The anxiousness just sort of comes with the territory. For me, it goes away once I'm down to about 20mg per day. It is bearable because I know the reason and I know that I'd rather be anxious than bleeding to death from Crohn's disease. :P I have noticed that this time my mood seems to be much better than usual. Even when I don't feel physically very good, I seem to have a positive mental outlook, which is super rare for me.
Cost: < $25 monthly

Sep 6, 2013 (Started Sep 06, 2013)

  • Effectiveness
    Major (for gastrointestinal bleeding)
  • Effectiveness
    Major (for Crohn's disease)
  • Effectiveness
    Major (for Crohn's flare up)
  • Side effects
    Moderate (anxious mood, mood elevated or improved)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 60 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Feb 17, 2014 (Started Dec 20, 2005)

  • Effectiveness
    Major (for systemic lupus erythematosus)
  • Effectiveness
    Moderate (for inflammation)
  • Side effects
    Severe (facial swelling/puffiness, weight gain, high blood pressure (hypertension), fluid retention weight gain, bruising)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 24 mg Daily
Advice & Tips: BP is high..need to taper down
Cost: < $25 monthly

Feb 12, 2014 (Started Dec 20, 2005)

  • Effectiveness
    Major (for systemic lupus erythematosus)
  • Effectiveness
    Major (for inflammation)
  • Side effects
    Moderate (facial swelling/puffiness, weight gain, high blood pressure (hypertension), fluid retention weight gain, bruising)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 24 mg Daily
Advice & Tips: This drug is a double edged sword. It has controlled my symptoms better than any other drug. But the long term usage (8years) has suppressed my adrenals to the point that they make the taper very difficult. I am at 25 mg. and going to try a very slow taper of .5mg/month. Any faster and the withdrawal symptoms are so difficult. I will talk to my doctor this week about whether I need to add methotrexate before attempting the taper. The less prednisone I take the more pain med I require.
Cost: < $25 monthly

Jan 12, 2014 (Started Dec 20, 2005)

  • Effectiveness
    Major (for systemic lupus erythematosus)
  • Effectiveness
    Major (for inflammation)
  • Side effects
    Moderate (facial swelling/puffiness, weight gain, high blood pressure (hypertension), fluid retention weight gain, bruising)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Advice & Tips: This has been the only drug that has improved my quality of life. It is the biggest help for pain. BUT...I was put on it and not tapered off until my body had become totally dependent and my adrenal glands suppressed for too long and will not work now. I personally believe I now have adrenal insufficiency from being on prednisone way too long. I am hoping the appt I have with a new Rheumatologist will provide some fresh approach and answers. IF I taper down more than 1/2mg over 1-2 weeks I have a major flare. Can not think, hard to function and move. Right now I am on 20mg.

  • 0 helpful marks

Jul 14, 2013 (Started Jun 01, 2013)

  • Effectiveness
    Can't tell (for systemic lupus erythematosus)
  • Side effects
    Severe (weight gain, mood swings, abdominal bloating)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I will no longer take Prednisone at any dosage. It makes me feel like I'm losing my mind. Extreme weepiness, depression, anger. For me, it is awful.
Cost: < $25 monthly

Jul 11, 2013 (Started Jun 01, 2013)

  • Effectiveness
    Can't tell (for systemic lupus erythematosus)
  • Side effects
    Severe (weight gain, mood swings, abdominal bloating)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Cost: < $25 monthly

Jun 1, 2013 (Started Jun 01, 2013)

  • Effectiveness
    Can't tell (for systemic lupus erythematosus)
  • Side effects
    Moderate (weight gain, mood swings, abdominal bloating)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Wane down carefully as prescribed. I started with 20 mg daily last month, and after 2 weeks, went to 15 mg for 4 days, then 10 mg for 4 days, and I will get to 5 mg.
Cost: < $25 monthly

Apr 19, 2012 (Started Jun 01, 2013)

  • Effectiveness
    Can't tell (for systemic lupus erythematosus)
  • Side effects
    Severe (weight gain, mood swings, abdominal bloating)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I hated being on Prednisone, and was never able to see if it had positive effects because I stopped after a couple months. The bloating, weight gain, and moodiness were too much for me to handle. I gained 10-15 pounds while taking it (which is quite extreme on my petite 5'2'' frame). Also, my mood swings were uncontrollable. The drug wasn't for me, and possibly because I was put on too high of a dosage. Because of my bad experience, I never take steroids, unless it is a 1-time injection to help my immune system beat a cold.

  • 0 helpful marks
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