14 patient evaluations for Pregabalin with a adherence rating of Never taken as prescribed

204 members have decided to share their profiles only with other members of PatientsLikeMe.

Feb 1, 2017 (Started Jul 01, 2010)

  • Effectiveness
    None (for fibromyalgia)
  • Side effects
    Severe (sweating increased, nausea, swelling in legs, feet and ankles, headaches, weight gain)
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Advice & Tips: I developed EVERY side effect listed, just about. It was a disaster.

  • 0 helpful marks

Jan 2, 2016 (Started Feb 15, 2010)

  • Effectiveness
    Slight (for fibromyalgia)
  • Side effects
    Moderate (involuntary movement)
  • Adherence
    Never taken as prescribed
  • Burden
    Very hard to take
Advice & Tips: I stopped taking this after discussing it with my doctor. I was having involuntary twitches and muscle movements that I found very disturbing and was concerned that they would become permanent. I found the Lyrica to only help on a minimal level. Yes it did take some of the pain away, but not enough to make it worth the side effects becoming permanent.

  • 0 helpful marks

Jan 8, 2014 (Started Jul 01, 2006)

  • Effectiveness
    None (for fibromyalgia)
  • Side effects
    Severe (major depressive disorder, bipolar manic episodes)
  • Adherence
    Never taken as prescribed
  • Burden
    Very hard to take
Advice & Tips: if you have ANY feelings of anxiety, depression, paranoia, etc. go IMMEDIATELY to your doctor or emergency!!!!!!
Cost: < $25 monthly

  • 0 helpful marks

Jun 29, 2012 (Started Jan 04, 2001)

  • Effectiveness
    None (for Pain)
  • Effectiveness
    Slight (for migraine headaches)
  • Effectiveness
    Slight (for fibromyalgia)
  • Side effects
    Moderate (vision changes)
  • Adherence
    Never taken as prescribed
  • Burden
    Somewhat hard to take
Dosage: 300 mg Daily
Advice & Tips: Coming off lyrics was horrible, ive done it twice now and b oth times it affected my vision badly.

  • 0 helpful marks

Apr 28, 2012 (Started Oct 01, 2009)

  • Effectiveness
    None (for Pain)
  • Effectiveness
    None (for muscle pain)
  • Effectiveness
    None (for fibromyalgia)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Very hard to take
Dosage: 25 mg Daily
Advice & Tips: I DO NOT TAKE THIS DRUG ANY MORE tHIS DRUG NEARLY CAUSED ME TO COMMIT SUSICIDE!
Cost: < $25 monthly
Side effects: feelings of isolation, muscle twitching, fluid retention under the eyes, large fluid filled blisters on face, facial swelling, itching arms and all over upper torso, jerky movements (dyskinesia) of hands, jerky movements (dyskinesia) of arms, jerky movements (dyskinesia) of feet, suicidal thoughts or urges

Aug 7, 2010 (Started Oct 01, 2009)

  • Effectiveness
    None (for Pain)
  • Effectiveness
    None (for muscle pain)
  • Side effects
    Moderate (jerky movements (dyskinesia) of feet, fluid retention under the eyes, itching arms and all over upper torso, large fluid filled blisters on face, jerky movements (dyskinesia) of hands, jerky movements (dyskinesia) of arms, feelings of isolation, facial swelling, suicidal thoughts or urges, muscle twitching)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 25 mg Daily
Advice & Tips: I would tell anyone don't try it! Even my Dr. won't prescribe it anymore after seeing what it's done to me and researching it from the company that makes it. According to the side effects listed by the company, these are all a "normal" reactions. Well I wish I'd have known that before I took it. I've tried to get off about 6 times now and every time I get down to the last few days of one pill the feelings of suicide are just awful and scare me so bad I have to go back on them. I don't know what the answer to this is. Do I have to go in to drug rehab to get off of the darn things? I wonder.
Cost: < $25 monthly
Side effects: feelings of isolation, muscle twitching, fluid retention under the eyes, large fluid filled blisters on face, facial swelling, itching arms and all over upper torso, jerky movements (dyskinesia) of hands, jerky movements (dyskinesia) of arms, jerky movements (dyskinesia) of feet, suicidal thoughts or urges

Jan 24, 2010 (Started Oct 01, 2009)

  • Effectiveness
    Slight (for Pain)
  • Effectiveness
    Can’t tell (for muscle pain)
  • Side effects
    Severe (jerky movements (dyskinesia) of feet, fluid retention under the eyes, itching arms and all over upper torso, large fluid filled blisters on face, jerky movements (dyskinesia) of hands, jerky movements (dyskinesia) of arms, feelings of isolation, facial swelling, suicidal thoughts or urges, muscle twitching)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg Daily
Advice & Tips: My doctor placed me on Lyrica thinking it might help my pain, and perhaps they do somewhat, but they cause severe swelling , especially on my face in fluid filled blister like things. I have small bumps under my skin all over my upper torso which itch awfully all the time. I've tried to get off this drug twice with my doctors help and every time I had to go back on because the suicidal feelings were so strong, I couldn't take it any more. I wouldn't wish this drug on anyone!
Cost: < $25 monthly
Side effects: feelings of isolation, muscle twitching, fluid retention under the eyes, large fluid filled blisters on face, facial swelling, itching arms and all over upper torso, jerky movements (dyskinesia) of hands, jerky movements (dyskinesia) of arms, jerky movements (dyskinesia) of feet, suicidal thoughts or urges

Jan 2, 2010 (Started Oct 01, 2009)

  • Effectiveness
    Slight (for Pain)
  • Effectiveness
    None (for muscle pain)
  • Side effects
    Severe (jerky movements (dyskinesia) of feet, fluid retention under the eyes, itching arms and all over upper torso, large fluid filled blisters on face, jerky movements (dyskinesia) of hands, jerky movements (dyskinesia) of arms, feelings of isolation, facial swelling, suicidal thoughts or urges, muscle twitching)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg Daily
Advice & Tips: This is a drug I wouldn't ever give to anyone I cared about! It has caused me nothing but trouble from day1. Between the huge fluid filled blisters on my face to the constant muscle twitches and jerks, this is a drug that is more tha a sligt burden to my daily life and I would qut taking it immediately if I could, but the last problem and most important problem is the severe suicidal feelings I get as soon as I lower the dosage.
Cost: < $25 monthly
Side effects: feelings of isolation, muscle twitching, fluid retention under the eyes, large fluid filled blisters on face, facial swelling, itching arms and all over upper torso, jerky movements (dyskinesia) of hands, jerky movements (dyskinesia) of arms, jerky movements (dyskinesia) of feet, suicidal thoughts or urges

  • 1 helpful mark

Jan 15, 2012 (Started May 16, 2008)

  • Effectiveness
    None (for Pain)
  • Effectiveness
    None (for muscle pain)
  • Effectiveness
    Moderate (for nerve pain (neuralgia))
  • Side effects
    Severe (problems concentrating, blurry vision, weight gain, brain fog)
  • Adherence
    Never taken as prescribed
  • Burden
    Very hard to take
Dosage: 450 mg Daily
Advice & Tips: I was taking Lyrica for a few years and then I had trouble with my insurance paying for my script so I stopped using the Lyrica for awhile. I finally got things squared away with the insurance and I started taking Lyrica again at a lower dose. Within 3 days of restarting the Lyrica my family noticed that I had changed. I was groggy and not paying attention to important things. I felt a presence who talked to me and I talked back. That was a really creepy feeling once I realized what was happening. I stopped taking the Lyrica again because my family was shocked at the difference in my behavior. My pain is worse without the Lyrica, but my life is much better.
Cost: < $25 monthly
Side effects: problems concentrating, blurry vision, brain fog, weight gain, weight gain

Nov 29, 2009 (Started May 16, 2008)

  • Effectiveness
    Moderate (for Pain)
  • Effectiveness
    Moderate (for nerve pain (neuralgia))
  • Effectiveness
    Moderate (for muscle pain)
  • Side effects
    Moderate (problems concentrating, blurry vision, weight gain, brain fog)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 600 mg Daily
Advice & Tips: Before I was taking my current dose of 600 mg. of Lyrica a day I was a total mess with electric type pain consuming my whole body in addition to the regular type of pain that the doctor prescribes regular pain meds for. Now that I am on such a high dose of the Lyrica I am at least able to live a normal life where I am not constantly being electrocuted by everything I touch and feel inside.
Cost: < $25 monthly
Side effects: problems concentrating, blurry vision, brain fog, weight gain, weight gain

  • 1 helpful mark

May 20, 2011 (Started Mar 01, 2007)

  • Effectiveness
    Moderate (for Pain)
  • Side effects
    Moderate (fatigue)
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: As needed
Cost: $25-49 monthly

  • 0 helpful marks

Oct 19, 2010 (Started Mar 22, 2010)

  • Effectiveness
    Moderate (for nerve pain (neuralgia))
  • Side effects
    Mild
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: 75 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Jul 1, 2010 (Started May 15, 2010)

  • Effectiveness
    Moderate (for fibromyalgia)
  • Side effects
    Severe (leg edema)
  • Adherence
    Never taken as prescribed
  • Burden
    Very hard to take
Dosage: 200 mg Daily
Cost: $50-99 monthly

Jun 13, 2010 (Started May 15, 2010)

  • Effectiveness
    Moderate (for fibromyalgia)
  • Side effects
    Severe (leg edema)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: Becareful when taking this medication and you have a heart condition
Cost: $50-99 monthly

  • 0 helpful marks

Mar 15, 2010 (Started Dec 19, 2009)

  • Effectiveness
    None (for fibromyalgia)
  • Side effects
    Severe (shakiness, itching, nausea, itchiness, shakes, insomnia)
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: 600 mg Daily
Advice & Tips: This was a horrible drug. It didnt have any effect on my fibromyalgia symtptoms, nor on my fatigue. When I came off of the drug, I took 1 1/2 months to reduce my dose and then had basically a withdrawl equal to that of coming off of a narcotic. Couldnt sleep, super itchy body, extreme nausea, the shakes..it was so bad and awful, I would hate for anyone else to go through it.
Cost: $100-199 monthly

Mar 17, 2009 (Started Dec 19, 2009)

  • Effectiveness
    Major (for fibromyalgia)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: This has been a dream. I never realized what I was coping with, until I started these meds and got the stomache flu and couldnt take them. The gnawing pain was unbearable. It is amazing that I dealt with that pain for so long with no medication and then once I start one and off it for one day, I realized just what that pain must have been doing to me. No wonder coping is difficult!!
Cost: $100-199 monthly

  • 0 helpful marks
Last updated:
Showing 10 of 14 patient evaluations for Pregabalin